The Cooperative Study of Sickle Cell Disease Phase 1 (CSSCDP1) Data Documentation
Data Documentation (includes data codebook, form, and variable counts)
Record
Format
1) CSSCD Roster Data
PDF
2) Past Medical History
PDF
3) Demographics
PDF
4) Physical Exam and Labs
PDF
5) Special Lab Studies
PDF
6) Neurological and Development
PDF
7) X-rays and other Scans
PDF
8) Ocular Exam
PDF
9) Pulmonary Function Test
PDF
10) Cardiac Evaluation
PDF
11) Psychosocial Questionnaires
PDF
12) Painful Episodes
PDF
13) Acute Chest Syndrome
PDF
14) Right Upper Quadrant
PDF
15) Hand-Foot Syndrome
PDF
16) Neurological Events
PDF
17) Acute Anemic Events
PDF
18) Acute Febrile/sepsis
PDF
19) Priapism
PDF
20) Acute Events, Patients less than 6 months
PDF
21) Chronic Events
PDF
22) Interactive Events
PDF
23) Other Data
PDF
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