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Lupus Guide

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Publication Date: May 2001
Revised September 2006

Lupus: A Patient Care Guide for Nurses and Other Health Professionals
3rd Edition

Chapter 8: Resources, Bibliography, and Index

Nurses and other health professionals may find the following organizations and written materials useful as sources of further information about lupus and patient care for the disease.

Resources

  • National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
    The mission of the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), a part of the Department of Health and Human Services’ National Institutes of Health (NIH), is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases; the training of basic and clinical scientists to carry out this research; and the dissemination of information on research progress in these diseases. The NIAMS Information Clearinghouse is a public service sponsored by the NIAMS that provides health information and information sources. Additional information can be found on the NIAMS Web site at:

    National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
    Information Clearinghouse
    National Institutes of Health

    1 AMS Circle
    Bethesda,  MD 20892-3675
    Phone: 301-495-4484
    Toll Free: 877-22-NIAMS (226-4267)
    TTY: 301–565–2966
    Fax: 301-718-6366
    Email: NIAMSinfo@mail.nih.gov
    Website: http://www.niams.nih.gov

  • National Institute of Nursing Research
    The National Institute of Nursing Research (NINR), a component of NIH, supports research and research training in universities, hospitals, research centers, and at NIH in areas related to health promotion and disease prevention, managing the symptoms and disabilities of illness, and improving the environment in which patient care is delivered. Chronic diseases, such as lupus and arthritis, are among the six major areas of emphasis for the Institute. For more information on the Institute and its programs, contact the NINR Office of Science Policy and Public Liaison at:

    National Institute of Nursing Research

    31 Center Drive, MSC 2178
    Building 31, Room 5B10
    Bethesda,  MD 20892
    Phone: 301-496-0207
    Website: http://www.ninr.nih.gov

  • American College of Rheumatology’s Association of Rheumatology Health Professionals
    The American College of Rheumatology (ACR) is an organization of doctors and associated health professionals who specialize in arthritis and related diseases of the bones, joints, and muscles. The Association of Rheumatology Health Professionals (ARHP) is a division of ACR. The ARHP aims to enhance the knowledge and skills of rheumatology health professionals and to promote their involvement in rheumatology research, education, and quality patient care. The Association also works to advance and promote basic and continuing education in rheumatology for health professionals who provide care to people with rheumatic diseases. For more information, contact ARHP at:

    American College of Rheumatology (ACR)

    1800 Century Place, Suite 250
    Atlanta,  GA 30345-4300
    Phone: 404-633-3777
    Fax: 404-633-1870
    Website: http://www.rheumatology.org

  • Arthritis Foundation
    The Arthritis Foundation is the major voluntary organization devoted to supporting arthritis research and providing educational and other services to individuals with arthritis. It publishes free pamphlets and a magazine for members on all types of arthritis. It also provides up-to-date information on research and treatment, nutrition, alternative therapies, and self-management strategies. Chapters nationwide offer exercise programs, classes, support groups, physician referral services, and free literature. For more information, call your local chapter, listed in the white pages of the phone book, or contact the Arthritis Foundation at:

    Arthritis Foundation

    P.O. Box 7669
    Atlanta,  GA 30357-0669
    Phone: 404-872-7100
    Toll Free: 800-283-7800
    Website: http://www.arthritis.org

  • Lupus Foundation of America
    The Lupus Foundation of America (LFA) is the main voluntary organization devoted to lupus. LFA assists local chapters in providing services, including education, referrals, and support groups, to people with lupus; works to educate the public about lupus; and supports lupus research. For more information, contact LFA at:

    Lupus Foundation of America (LFA)

    2000 L Street, N.W., Suite 710
    Washington,  DC 20036
    Phone: 202-349-1155
    Toll Free: 800-558-0121
    Fax: 202-349-1156
    Website: http://www.lupus.org

  • SLE Lupus Foundation
    The SLE Foundation supports and encourages medical research to find the cause and cure of lupus, and improve its diagnosis and treatment. It also provides a wide variety of services to help people with lupus and their families. In addition, this voluntary organization conducts a broad-based public education program to raise awareness of lupus, and increase understanding of this serious chronic autoimmune disease.

    SLE Lupus Foundation

    330 Seventh Avenue, Suite 1701
    New York,  NY 10001
    Phone: 212–685–4118
    Toll Free: 800-74-LUPUS (745-8787)
    Fax: 212-545-1843
    Email: lupus@lupusny.org
    Website: http://www.lupusny.org

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Boumpas T, et al. Systemic lupus erythematosus: emerging concepts. Part 1: Renal, neuropsychiatric, cardiovascular, pulmonary and hematologic disease. Annals of Internal Medicine 1995;122(12):940–950.

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Brucato A, et al. Fourth international workshop on neonatal lupus syndromes and the Ro/SSA-La/SSB system. Clinical and Experimental Rheumatology 1999;17(1):130–136.

Buyon JP, et al. Autoimmune-associated congenital heart block: Demographics, mortality, morbidity and recurrence rates obtained from a national neonatal lupus registry. Journal of the American College of Cardiology 1998;31(7):1658–1666.

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Other National Institutes of Health Sponsors

National Center for Minority Health and Health Disparities
National Institute of Nursing Research
Office of Research on Women's Health