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| Strengthening Newborn Screening in the Middle East and North Africa November 13-15, 2006 Agenda Monday, 13 November
Tuesday, 14 November
Wednesday, 15 November Please note that, to conserve space, abbreviations and acronyms are not spelled out in the agenda below. You can visit the abbreviations and acronyms page for a full listing.
Monday, 13 November Morning Moderator:
Abdelaziz Sefiani, Morocco | 8:30–9:30 | Welcoming Remarks and Introductions
Mohamed Cheikh Biadillah, Minister of Health, Morocco
Duane Alexander Director, NICHD/NIH/DHHS, USA
Christian Brechot, Executive Director, INSERM, France | | 9:30–10:10 | Issues Unique to the Region | | 9:30–9:50 | Genetic Disorders in Arabs
Ghazi Omar Tadmouri, Centre for Arab Genomic Studies, UAE | | 9:50–10:10 | Consanguineous Marriages and Pubic Health in Morocco (PDF 143 kb)
Naima Lamdouar Bouazzaoui, CHU Ibn Sina–Rabat, Morocco | | 10:10–10:40 | Break | | 10:40–11:10 | Issues Unique to the Region (Continued) | | 10:40–10:55 | Ethical and Cultural Issues Relating to Genetic Research and Newborn Screening (PDF 184 kb)
Iqtidar Khan and Zulfiqar A. Bhutta, Department of Paediatrics, Aga Khan University, Karachi, Pakistan | | 10:55–11:10 | Newborn Screening and Genomics Research in the Muslim World
Aida Al-Aqeel, Department of Paediatrics, Riyadh Armed Forces Hospital/KFSH&RC, Riyadh, Saudi Arabia | | 11:10–12:10 | Pillars of a Newborn Screening System: From Theory to Practice | | 11:10–11:30 | The Newborn Screening System: A Theoretical Framework (PDF 199 kb)
Michele Lloyd-Puryear, HRSA/DHHS, USA | | 11:30–11:50 | A Newborn Screening System in Practice
Jean-Pierre Farriaux, past-President AFPDHE, France | | 11:50–12:10 | Initiating Newborn Screening in a Developing Countries: Challenges and Opportunities (PDF 37 kb)
Carmencita Padilla, NIH Philippines, Philippines | | 12:10–13:30 | Lunch | Afternoon Moderator:
Bradford Therrell, National Newborn Screening and Genetics Resource Center, USA | | 13:30–16:00 | Newborn Screening in the Region: Country Reports | | 13:30–13:35 | Introduction (PDF 435 kb)
Bradford Therrell, National Newborn Screening and Genetics Resource Center, USA | | 13:35–13:45 | Algeria (PDF 207 kb)
Mohamed Tahar Hamlaoui, Réanimation Pédiatrique, CHU Hussein-Dey, Algiers | | 13:45–13:55 | Bahrain (PDF 15 kb)
Shaikha al Arrayed, Genetic Department, Salmaniya Medical Complex | | 13:55–14:05 | Egypt
Randa Kamal Raouf, Institute of Post-graduate Childhood Studies, Ain-Shams University | | 14:05–14:15 | Iran (PDF 192 kb)
Shahin Yarahmadi, Ministry of Health and Medical Education | | 14:15–14:25 | Jordan (PDF 89 kb)
Sana' Al Hait, Ministry of Health, Disease Control & Prevention | | 14:25–14:35 | Kuwait (PDF 228 kb)
Omar Sherif, Ministry of Health Center for Medical Genetics | | 14:35–15:10 | Questions to session presenters | | 15:10–15:30 | Break | | 15:30–18:20 | Newborn Screening in the Region - Country Reports (Continued) | | 15:30–15:40 | Lebanon (PDF 47 kb)
Khalid Yunis, Department of Pediatrics, American University of Beirut Medical Center | | 15:40–15:50 | Morocco
Naima Lamdouar Bouazzaoui, CHU Ibn Sina – Rabat, Morocco | | 15:50–16:00 | Oman (PDF 64 kb)
Surendra Nath Joshi, Child Health and Inborn Errors of Metabolism, Sultan Qaboos University Hospital | | 16:00–16:10 | Pakistan
Iqtidar Khan, Department of Paediatrics, Aga Khan University, Karachi | | 16:10–16:20 | Palestinian Authority (PDF 213 kb)
Moien Kanaan, Bethlehem University, Bethlehem, Palestinian Authority | | 16:20–16:30 | Qatar
Ghassan Mustafa Abdoh, Neonatal Intensive Care Unit, Hamad Medical Corporation | | 16:30–16:40 | Saudi Arabia (PDF 315 kb)
Mohamed Rashed, National Laboratory for Newborn Screening, King Faisal Specialist Hospital & Research Centre | | 16:40–16:50 | Syria
Adel Bakir, Atomic Energy Commission (AECS) | | 16:50–17:00 | Tunisia (PDF 65 kb)
Habiba Bouhamed Chaabouni, Service de Maladies Congénitales et Héréditaires Hôpital Charles Nicolle, Tunis | | 17:00–17:10 | UAE
Mohamed Salah El-Din, National Screening Program for Woman and Child Health, Central Department of Maternal and Child Health, MOH | | 17:10–17:20 | Yemen
Ahmed Alshehari, Medical College at Thamar University | | 17:20-18:00 | Questions to session presenters | | top | |
Tuesday, 14 November Morning Moderator:
Peter van Dyck, HRSA, DHHS, USA | 8:30–9:15 | Newborn Screening in Europe and the United States | | 8:30–8:40 | Netherlands (PDF 252 kb)
Gerard Loeber, ISNS & Natl. Inst Public Health, Bilthoven | | 8:40–8:50 | France
Paul Czernichow, Department of Endocrinology, Growth and Gynecology Necker Hospital, Paris | | 8:50–9:00 | United States
R. Rodney Howell, NICHD/NIH/DHHS | | 9:00–9:15 | Questions to session presenters | | 9:15–10:30 | Surveillance, Epidemiology, and Registries | | 9:15–9:30 | The Use of the Danish Newborn Screening Register and Biobank in Routine and Research (PDF 299 kb)
Bent Nørgaard-Pedersen, Serum Staatens Institute – Copenhagen, Denmark | | 9:30–9:45 | Global Lysosomal Storage Disorders Registry Program
Marc Nicolino, Division of Pediatric Endocrinology and Metabolism, University Hôpital Debrousse, Lyon, France | | 9:45–10:00 | National Congenital Abnormalities Registry in UAE (1999-2004)
Mohamed Salah El-Din, National Screening Program for Woman and Child Health, Central Department of Maternal and Child Health, MOH, UAE | | 10:00–10:15 | The Catalogue for Transmission Genetics in Arabs (CTGA)
Ghazi Omar Tadmouri, Centre for Arab Genomic Studies, Dubai, UAE | | 10:15–10:30 | Discussion | | 10:30–10:50 | Break | | 10:50–12:20 | Range of Newborn Screening Technologies | | 10:50–11:10 | Traditional Testing Techniques: bacterial inhibition, enzyme/fluorescence immunoassay, isoelectric focusing (PDF 265 kb)
Jean-Louis Dhondt, ISNS, AFPDHE, France | | 11:10–11:35 | Tandem Mass Spectrometry: Examining its capabilities; its variations & modifications (PDF 315 kb)
Mohamed Rashed, National Laboratory for Newborn Screening, King Faisal Specialist Hospital & Research Centre, Saudi Arabia | | 11:35–11:50 | Emerging Tests and Technologies in Newborn Screening
Michael Watson, American College of Medical Genetics, USA | | 11:50–12:20 | Discussion | | 12:20–14:00 | Lunch | Afternoon Moderator:
Mohammed Khattab, Pediatric Oncology, CHU Ibn Sina – Rabat, Morocco | | 14:00–15:00 | Issues around Quality Control and Quality Assurance | | 14:00–14:20 | Assuring Quality in the Newborn Screening System (PDF 519 kb)
Bradford Therrell, NNSGRC, USA | | 14:20–14:40 | Quality Assurance Program for Newborn Screening Laboratories Worldwide
Harry Hannon, CDC/DHHS, USA | | 14:40–15:00 | Discussion | | 15:00–15:30 | Break | | 15:30–16:10 | Model Programs for Newborn Screening of Prevalent Conditions in the Region | | 15:30–15:45 | Newborn Screening for Congenital Hypothyroidism in Egypt: A Model Program for Developing Countries (PDF 992 kb)
Ibrahim El-Nekhily, Children With Special Needs Department, Ministry of Health & Population, Egypt | | 15:45–16:00 | Hemoglobinopathies (Sickle Cell Disease and the Thalasemias) (PDF 19 kb)
Shaikha Salim Al-Arrayed, Genetic department, Salmaniya Medical Complex, Kingdom of Bahrain | | 16:00–16:10 | Cost Effectiveness of G6PD newborn screening in Lebanese Males
Issam Khneisser, Newborn Screening Laboratory Medical Genetic Unit, Faculty of Medicine, Saint Joseph University, Lebanon | | 16:10–17:25 | Newborn Screening for Other Conditions in the Region | | 16:10–16:25 | Metabolic Conditions: PKU (PDF 125 kb)
Layachi Chabraoui, CHU Ibn Sina –Rabat, Morocco | | 16:25–16:40 | Challenges to Treatment of Inherited Metabolic Disorders: The Saudi Experience
Zuhair Al-Hassnan, Dept. of Medical Genetics, King Faisal Specialist Hospital & Research Center, Riyadh, Saudi Arabia | | 16:40–16:55 | Congenital Adrenal Hyperplasia, a Missed Diagnosis in Egypt (PDF 570 kb)
Nermin Salah El Din, Children Hospital ,Cairo University, Egypt | | 16:55–17:10 | The Genetics of Hearing Loss in the Palestinian Population (PDF 571 kb)
Moien Kanaan, Bethlehem University, Bethlehem, Palestinian Authority | | 17:10–17:25 | Sensory Disorders: Initiating a Hearing Screening Program in Morocco (PDF 35 kb)
Razika Bencheikh, CHU Ibn Sina- Rabat, Morocco | | 17:25–17:45 | Discussion | | 17:45–18:55 | Education and Outreach to Health Care Providers, Patients & Families
Moderator: James Hanson, NICHD/NIH/DHHS, USA | | 17:45–18:00 | Initiation to Newborn Screening: Our experience of sickle disease (PDF 78 kb)
Mohamed Tahar Hamlaoui, Réanimiation Pédiatrique CHU Hussein-Dey Alegiers, Algeria | | 18:00–18:15 | Education and Outreach to Health Care Providers, Patients & Families: The French Experience
Gérard Bréart, INSERM, France | | 18:15–18:30 | Education Role of Genetic Centres: Moroccan experience
Abdelaziz Sefiani, Department of Medical Genetics, NIH Rabat Morocco | | 18:30–18:45 | A Bilateral Approach to Outreach and Advocacy in Genetics (PDF 313 kb)
Hanaa Rifaey, Genetic Alliance, USA | | 18:45–18:55 | Discussion | | top |
Wednesday, 15 November Morning Moderator:
Layachi Chabraoui, CHU Ibn Sina –Rabat, Morocco ma | 8:00–8:30 | Financing Developing Newborn Screening Systems | | 8:00–8:10 | Financing Developing Newborn Screening Systems: A Saudi Experience
Nasser Al-Hamdan, Ministry of Health, Saudi Arabia | | 8:10–8:20 | Financing Developing Newborn Screening Systems (PDF 101 kb)
Kenneth Pass, Laboratory of Newborn Screening Technology Wadsworth Center, New York State Department of Health, USA | | 8:20–8:30 | Financing Developing Newborn Screening Systems: A Philippine Experience
(PDF 92 kb)
Carmencita Padilla, NIH Philippines, Philippines | | 8:30–9:15 | Recent Advances Relevant to Newborn Screening of Conditions Prevalent in the Region | | 8:30–8:45 | Muscular Dystrophies in Arab Countries (PDF 828 kb)
Fayçal Hentati, Institut National de Neurologie, Tunisia | | 8:45–9:00 | Recent Advances Relevant to Screening of Congenital Cardiomyopathy in Lebanon
Fadi Bitar, Pediatric Cardiology Program, American University of Beirut Medical Center, Lebanon | | 9:00 – 9:30 | Questions to morning session presenters | | 9:30 - 10:30 | Panel: Research and Infrastructure Needs to Strengthen Newborn Screening in the Region
Moderator: Faycal Hentati, Institut National de Neurologie, Tunisia
Hatem el Shanti, Division of Medical Genetics, University of Iowa Hospital & Clinics, USA
Moien Kanaan, Bethlehem University, Bethlehem, Palestinian Authority
Ahmad Teebi, Cornell Medical College, Qatar & University of Toronto, Toronto, Canada
Khalid Yunis, Department of Pediatrics, American University of Medical Center | | 10:30-11:00 | Break | | 11:00-12:20 | Opportunities for Research Collaboration and Research Training | | 11:00–11:10 | Fogarty International Center Research and Research Training Programs
Judy Levin, FIC/NIH/DHHS, USA | | 11:10–11:20 | Opportunities for Research Collaboration in Newborn Screening at the National Institute of Child Health and Human Development (PDF 347 kb)
Danuta Krotoski, NICHD/NIH/DHHS, USA | | 11:20–11:30 | Opportunities for Research Collaboration and Research Training in France
(PDF 348 kb)
Arnold Munnich, Necker Hospital, INSERM, France | | 11:30–11:40 | Opportunities for Research Collaboration and Research Training by the European Commission (PDF 103 kb)
Albrecht Jahn, Directorate General for Research, European Commission | | 11:40–11:50 | Research Collaboration and Research Training in Europe (PDF 34 kb)
Jim R. Bonham, ERNDIM/EUGT, United Kingdom | | 11:50–12:00 | Opportunities for Research Collaboration and Research Training (PDF 316 kb)
Kenneth Pass, Laboratory of Newborn Screening Technology
Wadsworth Center, New York State Department of Health, USA | | 12:00–12:20 | Discussion | | 12:20–13:45 | Lunch | Afternoon Moderator:
Stéphane Roy, International Relations Department, INSERM, France | | 13:45–15:15 | Opportunities for Training in Newborn Screening | | 13:45–14:00 | An International Training and Support Program for Neonatal Screening in Developing Countries (PDF 105 kb)
Masaru Fukushi, Health Science Section, Sapporo City Institute of Public Health, Health & Welfare Bureau, City of Sapporo, Japan | | 14:00–14:15 | Egypt Training Program for Primary Health Care Team on Neonatal Screening
(PDF 845 kb)
Safa'a Abdel Fattah, Healthy Mother / Healthy Child Project, Ministry of Health & Population, Cairo, Egypt | | 14:15–14:30 | French and European Training Opportunities (PDF 348 kb)
Arnold Munnich, Necker Hospital, INSERM, France | | 14:30–14:45 | Newborn Screening Training in the USA (PDF 520 kb)
Jelili Ojodu, Association of Public Health Laboratories, USA & Bradford Therrell, National Newborn Screening and Genetics Resource Center, USA | | 14:45–15:00 | Genetics Training in the USA
Michael Watson, American College of Medical Genetics, USA | | 15:00–15:15 | Discussion | | 15:15–15:45 | Break | | 15:45–16:45 | Summary of Meeting, Priorities and Next Steps (PDF 218 kb)
Brad Therrell and Session Moderators | | 16:45–17:00 | Closing Remarks
Rajaa El Aouad, INH, Morocco | | Top |
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