Rock drummer Emily Schaller has participated in
multiple clinical trials for cystic fibrosis. Watch the
video to find out why she volunteers.
Learn. Ask. Join.
To help promising drugs move swiftly from the research and testing phase to the people who need them, more people with cystic fibrosis are needed to participate in clinical trials.
Testing the usefulness of drugs is a necessary phase that can only take place with the help of people with CF.
In addition, the staff at CF Foundation-accredited care centers can help you find a clinical study or trial that is a good fit for you or a family member.
Care centers are a great source for news about current CF research and have information about new studies that are opening.
If you decide to join, the research team at the care center will work closely with you throughout the entire process.
Why do people participate in clinical trials and studies?
Participating in a clinical trial or study can be a very satisfying and worthwhile experience. Here are just a few of the potential reasons why people participate:
People who participate in clinical trials may get access to investigational drugs before they become available to the public;
They take a more active role in their own health care;
They have the chance to help those newly diagnosed with CF;
They help researchers get closer to finding a cure; and
They help to find new therapies and drugs to improve the quality of life for everyone with CF.
Hear Their Stories
College student Emily Perry talks about her positive experience with a cystic fibrosis clinical trial.
8-year-old Quinn feels good about being in a clinical trial for cystic fibrosis and encourages other kids to join one, too.
Tracy enrolled her 8-year-old daughter, Quinn, in a clinical trial for cystic fibrosis.
Dr. Orenstein, a pediatric pulmonologist and CF doctor at Children's Hospital in Pittsburgh, emphasizes the need for people with CF to participate in clinical trials.
