Cystic Fibrosis Foundation - Click here for homepage
 | Stay Informed  |  Volunteer  |  Clinical Trials
ABOUT CYSTIC FIBROSIS ABOUT THE CYSTIC FIBROSIS FOUNDATION LIVING WITH CYSTIC FIBROSIS TREATMENTS RESEARCH OVERVIEW GET INVOLVED!
In This Section
Staying Healthy
Care Center Network
Quality Improvement
Insurance
Patient Assistance Programs
CF In the Workplace
At School
CF Legal Hotline
Scholarships
Healthy Web Surfing
CF Education Web Casts
In the Spotlight
Quick Links
Find A Chapter
Great Strides
Volunteer
Employment Opportunities
Become an Advocate
Find A Clinical Trial
Care Center Network
Drug Development Pipeline
CF Services Pharmacy
Make a Donation
Find a Chapter
Get Connected

Hear Lewis Black rant and rave about GREAT STRIDES. Click to watch the video.
Lewis Black is ranting about
GREAT STRIDES.



Join us on YouTube at www.youtube/CysticFibrosisUSA Join us on YouTube





Join us on Facebook at www.facebook.com/pages/Cystic-Fibrosis-Foundation/55160732111 Join us on Facebook





Display a Printer Friendly Version This Page

Healthy Web Surfing

Ways to Evaluate the Quality of Health Information on Web Sites



Be a cyberskeptic - Quackery is everywhere on the Web. Anyone can put up a Web page and make claims.
  • Beware of claims that one remedy will cure a variety of illnesses, that it is a “breakthrough,” promises quick, dramatic results, or that it relies on a “secret ingredient.” Does it sound too good to be true?
  • Use caution if the site uses a sensational writing style (lots of exclamation points, for example).
  • A health Web site for patients and families should use simple language, not technical words.
  • Get a second opinion! Check more than one site. Is this the only site making these claims?

back to top

Consider the source - Look for recognized authorities and know who is responsible for the content.

  • Look for an “about us” page. Who runs the site? Is it a branch of the federal government, a nonprofit institution, a professional organization, a health system, a commercial organization or an individual?
  • Web sites should have a way to contact the group or Web master. Be careful if the page does not have any contact information, or if you cannot easily find out who runs the site.

back to top

Focus on the quality of the information - Who looks at the information before it is put on the Web page?

  • Is there an editorial board? This information may be on the “about us” page, under the organization’s mission statement.
  • Are the board members experts in the area? For example, a site on CF whose medical advisory board is made up of lawyers and accountants would not be a good source of medical information.
  • How is information approved? Look for “editorial policy” or “selection policy” or “review policy.”
  • Look for sections called “about our writers” or “about our authors” to find out about the writers.

back to top

Look for the evidence  - Rely on medical research, not opinion or anonymous testimonials.

  • Who wrote the information? Is the name of either an individual or an organization listed? Good examples are “Written by Jane Smith, R.N.,” or “Copyright 2003, Cystic Fibrosis Foundation.”
  • If case histories or testimonials are on the Web site, look for contact information: an e-mail address or telephone number. If testimonials are unidentified or hard to find (“Jane from Iowa”), use caution.

back to top

Check the date  - Look for the latest information – is the information on the site current?

  • Look for dates on documents. An article on dealing with the loss of a loved one does not need to be current, but a document on the latest way to treat AIDS needs to be current.
  • Click on a few links on the site. If there are a lot of broken links, the site may not be kept up-to-date.

back to top

Beware of bias - What is the purpose of the Web site? Who is paying for or funding the site?

  • Check to see if the site is supported by public funds, donations or by commercial advertising.
  • Advertisements should be labeled. They should say “Advertisement” or “From our Sponsor.”
  • Look at the information on the page to see where it is coming from. For example, if the company that makes the medicine provides information about a way to treat depression using only a drug they make, you should consult other sources to see what they say about the same drug.

back to top

Protect your privacy  - Health information should be confidential.

  • There should be a link saying “Privacy” or “Privacy Policy.” Read this to see if your privacy is really being protected. For example, if the site says “We share information with companies that can provide you with useful products,” then your information is not private.

Talk to your CF Center Team  - the best care decisions are those that are made together.

 
© Copyright Cystic Fibrosis Foundation 2005
CFF Education Logo 
Make a donation to the Cystic Fibrosis Foundation.
Sign up to get the latest news and information.
It's time to take GREAT STRIDES! Sign up today!
Help discover and develop potential new treatments for CF by enrolling in a clinical trial.
Cystic Fibrosis Services Pharmacy
Become a Volunteer and help add tomorrows every day for people with cystic fibrosis.
The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.   The Cystic Fibrosis Foundation has a 4-star rating from Charity Navigator, America's largest independent evaluator of charities.