Alexander, Duane F., M.D.
Director
National Institute of Child Health and Human Development
National Institutes of Health
Decker, Donavon R.
Patient Advocate
Furlong, Patricia A.
President, Parent Project Muscular Dystrophy
Patient Advocate
Hesterlee, Sharon E., Ph.D.
Director, Research Development
Muscular Dystrophy Association
Patient/Professional Advocate
Kaime, Captain E. Melissa, M.D.
Deputy Director
Congressionally Directed Medical Research Programs
Department of Defense
Katz, Stephen I., M.D., Ph.D.
Director
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
Landis, Story C., Ph.D., Chair, MDCC
Director
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Lloyd-Puryear, Michele A., M.D., Ph.D.
Chief, Genetic Services Branch
Division of Services for Children with Special Health Needs
Maternal and Child Health Bureau
Health Resources and Services Administration
Department of Health and Human Services
Morrissey, Patricia A., Ph.D.
Commissioner
Administration on Developmental Disabilities
Administration for Children and Families
Department of Health and Human Services
Perez, Daniel P.
President and Chief Executive Officer
Facioscapulohumeral Society, Inc.
Patient Advocate
San Agustin, M. Theresa B., M.D.
Rehabilitation Program Specialist
National Institute on Disability and Rehabilitation Research
Department of Education
Office of Drug Evaluation I
Food and Drug Administration
Shurin, Susan Blakely, M.D.
Deputy Director
National Heart, Lung and Blood Institute
National Institutes of Health
Stephenson, Bradley R., J.D.
Patient Advocate
Trevathan, Edwin, M.D., M.P.H.
Director
National Center for Birth Defects and Developmental Disabilities
Centers for Disease Control and Prevention
Porter, John D., Ph.D.
Executive Secretary, MDCC
Program Director, Neuromuscular Disease
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Last updated July 01, 2008