Muscular Dystrophy Coordinating Committee Agenda

8:30 - 9:00 Light Refreshments

9:00 - 9:15
I. Welcome and Introductions - Dr. Stephen Katz, MDCC Chair

9:15 - 10:00
II. Status of Implementation of MD Research Plan - Dr. Katz
- Update on activities and new initiatives from NIH - Dr. Glen Nuckolls, NIAMS and Dr. John Porter, NINDS

10:00 - 10:15
III. Plans for Burden of Muscle Disease Conference - January 26-27, 2005 - Dr. Richard Lymn, NIAMS

10:15 - 10:30 Break

10:30 - 11:30
IV. Presentations from CDC:
- Update on CDC MD activities - Dr. Aileen Kenneson, CDC
- CDC's MD STARNet Program - Dr. Chris Cuniff, University of Arizona

11:30 - 12:00 Discussion

12:00 - 1:00 Lunch

1:00- 1:45
V. Presentation from DoD:
- Update on DOD's recent activities in MD and recent DoD funding of MD-related research - Col. Kenneth Bertram

1:45 - 2:00
VI. North American Clinical Research Network - Dr. Sharon Hesterlee, MDA

2:00 - 2:15 Break

2:15 - 3:30
VII. Next Steps / Strategies for Implementation