Campaign Launch Event

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• About
• Agenda
• Collaborating Partners
• Additional Resources

About

View the event live online: http://videocast.nih.gov/summary.asp?live=7517

HHS-OWH and the Advertising Council are pleased to launch the first ever National Lupus Awareness campaign. This campaign is dedicated to increasing awareness of lupus to improve early diagnosis and treatment among those who are at increased risk for the disease. The campaign is targeted toward young minority women, who are most impacted by lupus and will provide them and their family members with information to help them to take action if they have symptoms. The campaign includes TV and radio PSAs, a website, bulletin boards and other media tools. The campaign will also generate long overdue public attention for lupus and raise recognition of the disease as a significant national public health problem.

Agenda

Collaborating Partners

See the full list of National Lupus Awareness Campaign federal and non-federal collaborating partners.

Additional Resources

Publications

1.   Eliminate Disparities in Lupus — This resource talks about the different types of lupus. It also discusses the higher rate of lupus in minority women. Although African American women have the highest risk, other minorities are also at risk. This resource also has links to additional information on lupus.

   http://www.cdc.gov/omhd/AMH/factsheets/lupus.htm

2.   Frequently Asked Questions — Lupus — This publication provides information on lupus, a disease that affects your immune system, causing it to attack healthy cells. It explains who lupus affects, the different types of lupus, its signs, symptoms, causes, and how it is diagnosed and treated. It also provides information on how to cope with the pain and stress of having lupus and whom to contact for more information.

   http://www.womenshealth.gov/faq/lupus.htm

3.   Lupus Guide — These patient information sheets are excerpts from Lupus: A Patient Guide for Nurses and Other Health Professionals. The patient information sheets in this chapter cover a range of topics about lupus and lupus medications and can help with this aspect of patient care. It includes a total of 20 patient information sheets.

   http://www.niams.nih.gov/hi/topics/lupus/lupusguide/chp7.htm

4. Lupus: Basics for Better Living (Copyright © LFA) — Although there is no "cure" for lupus, you can make lifestyle adjustments that help fight the disease and give you an improved sense of well-being. Many of these don't require spending money. They are things like diet, exercise, reducing your exposure to the sun, and not smoking. Working with your health provider is very important, but you also have the power to help yourself. Learn more about how you can live better with lupus.

   http://www.lupus.org/education/brochures/better03.html

5. Lupus: Pregnancy and Family Planning (Copyright © S.L.E. Lupus Foundation) — Women living with lupus need to plan early if they are thinking of becoming pregnant. Complications can arise during pregnancy. This publication provides questions and answers for women who have lupus and are thinking about becoming pregnant.

   http://www.lupusny.org/showtopics.php?pregnancy#

Organizations

1.   National Institute of Arthritis and Musculoskeletal and Skin Diseases, NIH, HHS
2.   National Institute of Neurological Disorders and Stroke, NIH, HHS
3. Alliance for Lupus Research
4. Lupus Foundation of America, Inc.
5. S.L.E. Lupus Foundation
6. The Lupus Support Network

= Indicates Federal Resources

Content last updated March 30, 2009.