NHLBI-Related Public Interest Organizations

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Focus of Organization: Cardiovascular Diseases | Lung Diseases | Blood Diseases and Resources | Sleep Disorders | Other Public Interest Organizations

Organizations Focusing on Cardiovascular Diseases
Adult Congenital Heart Association	American Heart Association
Cardiac Arrhythmias Research and Education (C.A.R.E.) Foundation, Inc.	CFC International (cardio-facio-cutaneous syndrome)
Children's Cardiomyopathy Foundation	Children's Heart Foundation
Churg Strauss Syndrome Association	Congenital Heart Information Network (C.H.I.N.)
HELLP Syndrome Society, Inc.	It's My Heart
Kawasaki Disease Foundation	Mended Hearts, Inc.
National Stroke Association	Parent Heart Watch
Preeclampsia Foundation	Sudden Cardiac Arrest Association
Vascular Disease Foundation	WomenHeart: the National Coalition for Women with Heart Disease

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Organizations Focusing on Lung Diseases
Allergy and Asthma Network - Mothers of Asthmatics, Inc.	Alpha 1 Advocacy Alliance
Alpha 1 Association	Alpha 1 Foundation
American Association for Respiratory Care (AARC) Consumer Roundtable	American Lung Association
ARDS Foundation (acute respiratory distress syndrome)	Asthma and Allergy Foundation of America
Central Indiana Sarcoidosis Support Group	Children's Interstitial Lung Disease (ChILD) Foundation
Coalition for Pulmonary Fibrosis	COPD Foundation (chronic obstructive pulmonary disease)
COPD International (chronic obstructive pulmonary disease)	COPD-Alert (chronic obstructive pulmonary disease)
Cystic Fibrosis Foundation	Emphysema Foundation for our Right to Survive (EFFORTS)
Foundation for Sarcoidosis Research	LAM Foundation (lymphangioleiomyomatosis)
LAM Treatment Alliance (lymphangioleiomyomatosis)	Let's Breath Sarcoidosis Support
National Emphysema/COPD Association (NECA)	National Sarcoidosis Networking Society
National Sarcoidosis Resource Center	PCD Foundation (primary ciliary dyskinesia)
Pulmonary Fibrosis Foundation	Pulmonary Hypertension Association, Inc.
Sarcoid Networking Association	Sarcoidosis Awareness Network
Sarcoidosis Network Foundation, Inc.	Sarcoidosis of the Midlands of South Carolina
Sarcoidosis Research Institute	Sarcoidosis Research Support Group

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Organizations Focusing on Blood Diseases and Resources
Aplastic Anemia and MDS International Foundation, Inc. (bone marrow diseases)	Cooley's Anemia Foundation, Inc. (thalassemia)
Daniella Maria Arturi Foundation (Diamond-Blackfan anemia)	Familial TTP Foundation (thrombotic thrombocytopenic purpura)
Fanconi Anemia Research Fund, Inc.	Hemophilia Federation of America
HHT Foundation International, Inc. (hereditary hemorrhagic telangiectasia, Osler Weber Rendu syndrome)	Histiocytosis Association of America
Iron Disorders Institute	National Alliance for Thrombosis and Thrombophilia (NATT)
National Anemia Action Council	National Hemophilia Foundation
Neutropenia Support Association, Inc.	Platelet Disorder Support Association
Sickle Cell Disease Association of America, Inc.

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Organizations Focusing on Sleep Disorders
American Sleep Apnea Association	First Candle/SIDS Alliance
Narcolepsy Network, Inc.	National Sleep Foundation
Restless Legs Syndrome Foundation

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Other Public Interest Organizations
American Autoimmune Related Diseases Association	Barth Syndrome Foundation, Inc.
Caring Voice Coalition, Inc.	CFIDS Association of America, Inc. (chronic fatigue and immune dysfunction syndrome)
Hermansky-Pudlak Syndrome Network, Inc.	Klippel-Trenaunay Support Group
Lymphatic Research Foundation, Inc.	Malignant Hyperthermia Association of the United States (MHAUS)
National Foundation for Transplants	National Lymphedema Network, Inc.
National Marfan Foundation	Noonan Syndrome Support Group, Inc.
Nontuberculous Mycobacteria Information and Research, Inc.	Parent Project Muscular Dystrophy
Pediatric/Adolescent Gastroesophageal Reflux Association (PAGER)	Progeria Research Foundation, Inc.
PXE International, Inc. (pseudoxanthoma elasticum)	Scleroderma Foundation
TOPS Club, Inc. (Take Off Pounds Sensibly)	Tuberous Sclerosis Alliance
Vasculitis Foundation

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Last modified: 3/24/09
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