Slide Presentation from the AHRQ 2007 Annual Conference

Privacy and confidentiality are central

• Participants:
  • are allowed the use of the data for designated purpose of treatment and diagnosis only.
  • signed a Registration Agreement that designates them as a Data Provider and/or a Data Recipient.
  • signed a Data Sharing Agreement.
  • have a vote on the policy committee known as the Operations Committee
• Patients :
  • are notified that their clinical data could be shared with the MidSouth eHealth Alliance..
  • have the right to "Opt Out" of the system. It is assumed they are in the system until they "Opt Out".

Documents: http://www.volunteer-ehealth.org