MDCC Roster

Alexander, Duane F., M.D.
Director
National Institute of Child Health and Human Development
National Institutes of Health

Decker, Donavon R.
Patient Advocate

Furlong, Patricia A.
President, Parent Project Muscular Dystrophy
Patient Advocate

Hesterlee, Sharon E., Ph.D.
Director, Research Development
Muscular Dystrophy Association
Patient/Professional Advocate

Kaime, Captain E. Melissa, M.D.
Deputy Director
Congressionally Directed Medical Research Programs
US  Army Research and Materiel Comman
Department of Defense

Katz, Stephen I., M.D., Ph.D.
Director
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health

Landis, Story C., Ph.D., Chair, MDCC
Director
National Institute of Neurological Disorders and Stroke
National Institutes of Health

Lloyd-Puryear, Michele A., M.D., Ph.D.
Chief, Genetic Services Branch
Division of Services for Children with Special Health Needs
Maternal and Child Health Bureau
Health Resources and Services Administration
Department of Health and Human Services

Morrissey, Patricia A., Ph.D.
Commissioner
Administration on Developmental Disabilities
Administration for Children and Families
Department of Health and Human Services

Perez, Daniel P.
President and Chief Executive Officer
Facioscapulohumeral Society, Inc.
Patient Advocate

San Agustin, M. Theresa B., M.D.
Rehabilitation Program Specialist
National Institute on Disability and Rehabilitation Research
Department of Education

Sheridan , Philip H. , M.D.
Senior Medical Reviewer
Center  for Drug Evaluation and Research
Office of Drug Evaluation I
Food and Drug Administration

Shurin, Susan Blakely, M.D.
Deputy Director
National Heart, Lung and Blood Institute
National Institutes of Health

Stephenson, Bradley R., J.D.
Patient Advocate

Trevathan, Edwin, M.D., M.P.H.
Director
National Center for Birth Defects and Developmental Disabilities
Centers for Disease Control and Prevention

Porter, John D., Ph.D.
Executive Secretary, MDCC
Program Director, Neuromuscular Disease
National Institute of Neurological Disorders and Stroke
National Institutes of Health