Life in Motion
Coalition Members
 
American Academy of Cerebral Palsy & Developmental Medicine

The American Academy for Cerebral Palsy and Developmental Medicine is a multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.

 
American Academy of Neurology

The American Academy of Neurology (AAN), established in 1948, is an international professional association of more than 18,000 neurologists and neuroscience professionals dedicated to providing the best possible care for patients with neurological disorders.

 
American Academy of Physical Medicine and Rehabilitation

As the premier medical society for the specialty of physical medicine and rehabilitation, AAPM&R is the only organization exclusively serving the needs of practicing PM&R physicians. With more than 7,000 members, the Academy represents more than 87 percent of U.S. physiatrists and international colleagues from 37 countries.

 
American Association of Neurological Surgeons

The American Association of Neurological Surgeons is dedicated to advancing the specialty of neurological surgery and serving as the spokesorganization for all practitioners of the specialty of neurosurgery, in order to provide the highest quality of care to our patients.

 
American Association of Neuroscience Nurses

The American Association of Neuroscience Nurses (AANN) is committed to the advancement of neuroscience nursing as a specialty through the development and support of nurses to promote excellence in patient care.

 
American Geriatrics Society

The American Geriatrics Society is a nationwide, not-for-profit association of geriatrics health care professionals dedicated to improving the health, independence, and quality of life of all older people.

 
American Occupational Therapy Association, Inc.

The American Occupational Therapy Association (AOTA) is the national professional association representing the interests of more than 100,000 occupational therapists, occupational therapy assistants and students of occupational therapy.

 
American Parkinson's Disease Association

The American Parkinson Disease Association, Inc. was founded in 1961 to "ease the burden and find a cure" for Parkinson's disease. The organization focuses its energies on research, patient support, education and raising public awareness of the disease.

 
American Physical Therapy Association

The American Physical Therapy Association (APTA) is a national professional organization representing more than 66,000 members. Its goal is to foster advancements in physical therapy practice, research, and education.

 
American Society of Consultant Pharmacists

The American Society of Consultant Pharmacists (ASCP) Foundation exists to improve the health and well-being of older persons through appropriate, effective, and safe medication use.

 
American Stroke Association

The American Stroke Association is the division of the American Heart Association thatÝfocuses on reducing disability and death from stroke through research, education, fund raising and advocacy.

 
Bachmann-Strauss Dystonia and Parkinson Foundation, Inc.

The BSDPF supports patients, family members, researchers, clinicians and volunteers working in partnership to find better medical treatments and a cure for dystonia and Parkinson's disease.

 
Benign Essential Blepharospasm Research Foundation, Inc.

The BEBRF was granted its charter in 1981 with the purpose "...to undertake, promote, develop and carry on the search for the cause and a cure for benign essential blepharospasm and other related disorders and infirmities of the facial musculature..."

 
Care4Dystonia, Inc.

Care4Dystonia, Inc. is a nationwide (U.S.) community-based voluntary health organization dedicated to patient care, awareness, collaboration, and education in the dystonia community.

 
Child Neurology Foundation

The Child Neurology Foundation's mission is to be an advocate for children and adolescents with neurologic and developmental disorders through the advancement of child neurology.

 
Child Neurology Society

The Child Neurology Society is a non-profit professional association of pediatric neurologists in the United States, Canada, and worldwide devoted to fostering the discipline of child neurology and promoting the optimal care and welfare of children with neurological and neurodevelopmental disorders.

 
Dystonia Medical Research Foundation

The mission of the Dystonia Medical Research Foundation is to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well being of affected individuals and families.

 
Easter Seals

Easter Seals has been helping individuals with disabilities and special needs, and their families, live better lives for more than 80 years. From child development centers to physical rehabilitation and job training for people with disabilities, Easter Seals offers a variety of services to help people with disabilities address life's challenges and achieve personal goals.

 
Huntington's Disease Society of America

The Huntington's Disease Society of America (HDSA) is a national non-profit voluntary health agency dedicated to finding a cure for Huntington's Disease (HD).

 
Huntington Study Group

The Huntington Study Group (HSG) is a non-profit group of physicians and other health care providers from medical centers in the U.S., Canada, Europe and Australia, experienced in the care of Huntington patients and dedicated to clinical research of Huntington's disease.

 
International Dystonia On-Line Support Group

The International Dystonia On-Line Support Group has contacted over 7,000 people with all types of dystonia from all around the world.

 
International Essential Tremor Foundation

The International Essential Tremor Foundation (IETF) was created to provide information, services and support to individuals and families affected by essential tremor (ET). The organization encourages and promotes research in an effort to determine the causes, treatment and ultimately the cure for ET.

 
International Rett Syndrome Association

The IRSA aims to support and stimulate biomedical research that will determine the cause and find treatments and cures for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children with Rett syndrome.

 
Movement Disorder Society

The Movement Disorder Society (MDS) is an international professional society of clinicians, scientists, and other healthcare professionals, who are interested in Parkinson's disease, related neurodegenerative and neurodevelopmental disorders, hyperkinetic Movement Disorders, and abnormalities in muscle tone and motor control.

 
Musicians with Dystonia

The Dystonia Medical Research Foundation (DMRF) sponsors "Musicians with Dystonia" to encourage musicians with dystonia - particularly those who do not have access to a "in person" support group - to share their experiences and frustrations.

 
National Alliance for Caregiving

The National Alliance for Caregiving is a non-profit coalition of more than 40 national organizations. The Alliance improves the quality of life of family caregivers and their care recipients through public awareness, research, advocacy, coalition building, policy analysis, education, and international alliances.

 
National Ataxia Foundation

The National Ataxia Foundation is a nonprofit, membership-supported organization established in 1957 to help ataxia families. The Foundation is dedicated to improving the lives of persons affected by ataxia through support, education, and research.

 
National Family Caregivers Association

The National Family Caregivers Association empowers family caregivers to act on behalf of themselves and their loved ones, and to remove barriers to health and well being. The web site offers education, resources, support and an opportunity to connect and share experiences. Membership is free to family caregivers.

 
National Multiple Sclerosis Society

Founded in 1946, the National Multiple Sclerosis Society supports MS research, offers services for people with MS, provides professional education programs, and furthers MS advocacy efforts.

 
National Organization for Rare Disorders, Inc.

NORD is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

 
National Parkinson Foundation, Inc.

The National Parkinson Foundation is the largest organization serving persons affected by Parkinson disease throughout the world. The Foundation supports research for a cure and programs dedicated to improving care and quality of life.

 
National Spasmodic Dysphonia Association & Internet Group

The National Spasmodic Dysphonia Association provides support to SD patients through formal support groups, on-line activities, and periodic newsletters. NSDA is dedicated to research, awareness, and support.

 
National Spasmodic Torticollis Association

The National Spasmodic Torticollis Association is a non-profit organization dedicated to providing information and support to ST patients, educating the public and medical community about ST, advocating for the rights of those with ST, andromoting research on ST.

 
National Spinal Cord Injury Association

Founded in 1948, the National Spinal Cord Injury Association is the nation's oldest and largest civilian organization dedicated to improving the quality of life for hundreds of thousands of Americans and their families living with the results of spinal cord injury and disease (SCI/D).

 
National Stroke Association

NSA is a non-profit organization in the United States providing education, services and community-based activities in prevention, treatment, rehabilitation and recovery of stroke.

 
North American Brain Injury Society

NABIS is the North American chapter of the International Brain Injury Association (IBIA), created specifically to address the needs of professionals dedicated to brain injury - providing education programs, scientific updates and a platform for professional exchange.

 
Northwest Parkinson's Foundation

The Northwest Parkinson's Foundation (NWPF) is a Washington state non-profit charity, established to make the United States Northwest a leading world center of movement disorders knowledge and treatment.

 
Parents of Infants and Children with Kernicterus

PICK was developed in late 2000, by a group of mothers of children with severe cerebral palsy resulting from kernicterus, a condition caused by excessive bilirubin levels in newborns.

 
Parkinson's Action Network

PAN is a unified education and advocacy voice of the Parkinson's community. Through education and interaction with the Parkinson's community, scientists, lawmakers, opinion leaders, and the public, PAN increases awareness about Parkinson's disease and seeks federal support for Parkinson's research.

 
The Parkinson Alliance

The Parkinson Alliance mission is raising money for pilot study programs that allow researchers to qualify for major funding from the National Institutes of Health.

 
Parkinson Association of the Carolinas

PAC provides support, edcuation and referrals to Parkinson patients and their families in North and South Carolina. Until there is a cure with Parkinosn's, the ultimate goal of the Association is to help patients manage the disease, so they may live a quality life.

 
Parkinson Association of the Rockies

PAR provides direct services for patients and families, and provides education and awareness to the community and healthcare industry to ensure a better quality of life for patients and families.

 
Parkinson's Disease Foundation

The Parkinson's Disease Foundation (PDF) is a national non-profit organization devoted to education, advocacy, and the funding of research.

 
Parkinson Foundation of the Heartland

The Parkinson Foundation of the Heartland aims to improve quality of life for patients, caregivers, and families through services including support groups, exercise and speech classes, educational programs, quarterly newsletter, and annual symposium.

 
Parkinson Pipeline Project

The goal of the Pipeline Project is to accelerate the evaluation and approval of safe, effective, and timely new treatments for Parkinson's disease.

 
Parkinson Study Group

The Parkinson Study Group (PSG) is a non-profit group of physicians and other health care providers from medical centers in the United States and Canada, experienced in the care of Parkinson patients and dedicated to clinical research of Parkinson's disease.

 
Pediatric Neurotransmitter Disease Association

The PND Association is a non-profit, voluntary organization, dedicated to helping children and families who are affected by a disease of neurotransmitter metabolism.

 
People Living With Parkinson's

PLWP is an international, Internet based-organization with 99% of membership consisting of people who have been diagnosed with Parkinson's.

 
Restless Legs Syndrome Foundation

Dedicated to improving the lives of men, women, and children who live with this often devastating disease, the organization's goals are to increase awareness of RLS, to improve treatments, and through research find a cure.

 
Rett Syndrome Research Foundation

RSRF's mission is to fund, promote and accelerate biomedical research for the treatment and cure of Rett Syndrome. RSRF organizes the only annual scientific meeting devoted to Rett Syndrome.

 
Society for Progressive Supranuclear Palsy, Inc.

The Society for PSP is dedicated to increasing awareness of this under-recognized disease, advancing research toward a cure, and providing hope, support and education for persons with PSP, their families and healthcare professionals.

 
Spasmodic Torticollis/Dystonia, Inc.

ST/Dystonia, Inc. helps people find a faster diagnosis and more effective treatment; thus empowering them to achieve a higher quality of life.

 
Spastic Paraplegia Foundation, Inc.

The Spastic Paraplegia Foundation is a volunteer-managed and operated organization devoted to finding the causes and cures for neurodegenerative disorders called Primary Lateral Sclerosis (PLS) and Hereditary Spastic Paraplegia (HSP).

 
Tourette Syndrome Association, Inc.

TSA's mission is to identify the cause of TS, find the cure for TS, and control the effects of TS. TSA offers resources and referrals to help people and their families cope with the problems that occur with TS.

 
Tremor Action Network

TAN is a volunteer nonprofit organization created by people diagnosed with essential tremor that aims to spread awareness of essential tremor by advocating for a cure through research.

 
United Cerebral Palsy Research and Educational Foundation

UCP is a national organization that provides information and services related to cerebral palsy and is an advocate for the rights of persons with any disability.

 
United Mitochondrial Disease Foundation

The United Mitochondrial Disease Foundation (UMDF), established in 1996, is a national non-profit voluntary health agency dedicated to promoting research and education for the diagnosis, treatment and cure of mitochondrial disorders and to providing support to affected individuals and families.

 
WE MOVE

WE MOVE educates patients, professionals and the public about the latest clinical advances, management and treatment options for neurologic movement disorders. The WE MOVE Web site is a comprehensive resource for in-depth, timely information on specific movement disorders, including details on diagnosis and new treatment options.

 
Well Spouse Association

The Well Spouse Association (WSA) is a national, not for profit membership organization which gives support to wives, husbands, and partners of the chronically ill and/or disabled. This support in turn helps well spouses to better support and care for their ill spouses. WSA has support groups that meet monthly, a quarterly newsletter, regional respite events and a national conference, a mentor program, and an online forum.

 
Wilson's Disease Association

The Wilson's Disease Association (WDA) is an international, all-volunteer organization serving patients, families, and friends.

 
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