1991 Longitudinal Followup to the 1988 National
Maternal and Infant Health Survey Public-Use Data Files
Survey description
Data file description
List of data file
variables at a glance
Data file technical characteristics
Geographic coverage
Data availability
Ordering information
Documentation contents
Related reports
Contact
Survey
description
The 1991 Longitudinal Follow-up (LF) to the 1988 National Maternal and Infant Health Survey
(NMIHS) reinterviewed women who were respondents to the NMIHS to provide information on a
number of areas related to child health and development. The 1991 LF consists of three
parts: the live birth survey, the child medical provider survey, and the fetal and infant
death survey. The 1991 LF live birth survey is a nationally representative study that
examines the children of women initially interviewed for the live birth cohort of the
1988 NMIHS. Its primary purpose is to obtain data on national health issues affecting children,
such as child development, effects of low-birthweight, child injury, child care, pediatric
care, health insurance coverage, child safety, and acute and chronic illnesses. The
response rate for this survey is 89 percent. There were 8,285 completed interviews.
For the
child medical provider survey, each woman was asked to provide the names of all medical
providers and hospitals where her child was diagnosed, treated, and/or admitted. Each
health care provider was asked to supply information on its organization, the child's
health status and history, and information on each visit or hospitalization. The response
rate for this survey was 89 percent for hospitals and 74 percent for pediatric care
providers. Information was obtained from more than 9,000 pediatric care providers and more
than 3,500 hospitals.
The fetal and infant death survey was
composed of a subsample of women from the fetal death and infant death cohorts in the 1988
NMIHS. A sample of 1,000 women each from the fetal death and infant death cohorts were
contacted for this survey. Its purpose was to gather information about the health of the
respondents and any pregnancies experienced since their loss in 1988. The response rate
for this survey was 82 percent.
To protect
confidentiality of respondents, the 1991 LF can
only be linked with the 1988 NMIHS
in the NCHS Research Data
Center.
Data file
description
The LF consists of three public-use files. The first file contains information on the live
birth survey; the second file contains information on the medical provider survey; and the
third file contains information on the fetal and infant death survey.
List of data file
variables at a glance (Live Birth Survey, Medical
Provider Survey, and Fetal and Infant Death Survey
Questionnaires)
Live Birth Survey
Questionnaire
Composition of household
Whether child was still living
The Denver Developmental scale
A list of possible behavioral problems
Books in the home
Maternal assessment of child's health status
Use of apnea monitors
Medically-attended injuries
Number of injuries
Cause of injuries
Chronic illnesses
Hearing, sight, or speech
difficulties
Allergies
Asthma
Other respiratory
difficulties
Heart condition
Sickle cell anemia
Spina bifida
Cerebral palsy
Epilepsy
Orthopedic
difficulties
Chronic ear infections
Immunizations
Polio
Measles, mumps, and rubella
Diphtheria, tetanus, and
pertussis
Recent acute illnesses
Stomach flu
Diarrhea
Ear infections
Cold or runny nose
Sore throat and fever
Cough and fever
Skin infection
Food allergy
Head lice
Parasites
Health-seeking behavior of the mother
Over-the-counter medication use
Vitamin or mineral supplement use
Use of the Supplementary Food Programs for Women,
Infants, and Children
Length of use
Information received
Subsequent fertility
Frequency and type of car seat use
Smoke detectors in home
Electric outlets covered
Child care
Type of child care
arrangements
Number of hours in care
Whether child care is
subsidized
Who cares for the child
Pediatric care utilization
Received home care
Usual sources of care
Number of visits
Advice received from
provider
Number of hospitalizations
Barriers to care
Maternal health
Self-assessment of health
Smoking status
Smokers in household
Use of alcohol
Use of illegal drugs
Tested for HIV
Knowledge
of HIV
Center for Epidemiologic
Studies Depression Scale
Family characteristics
Maternal education
Marital status
Household income by person
Use of Supplemental
Security Income program
Use of Aid for Dependent
Children program
Use of Food Stamp program
Maternal employment
Paternal employment
Health insurance
Type of coverage
Use of Medicaid
Any gaps in coverage
Medical
Provider Survey Questionnaire
Type of provider
Assessment of child's health
Use of medical devices
apnea monitor
parenteral nutrition
oxygen support
tracheostomy tube
renal dialysis
urinary catheter
glasses
braces
orthopedic shoes
allergy shots
Use of early and periodic screening, diagnosis, and
treatment program
For each pediatric visit or hospitalization:
Type of service
Height, weight, and head
circumference
If visit was a well-child
checkup
If ill, diagnoses with
ICD-9-CM codes
Any operative procedures
performed
HIV testing done
Results of lab tests
Lead screening
TB/Tine
test
Hgb/Hct
Throat culture
Blood culture
X-rays
Immunizations given
Any developmental screening
Any medications prescribed
NOTES: ICD-9-CM is International Classification
of Diseases, Ninth Revision, Clinical Modification. HIV is human immunodeficiency virus.
TB is tuberculosis. Hgb is hemoglobin. Hct is hematocrit.
Fetal and
Infant Death Survey Questionnaire
Whether woman received counseling because of loss
Sources of counseling
Subsequent fertility
Number of pregnancies
Circumstances and outcomes
of the pregnancies
Health habits during
pregnancies
Use of the Supplemental
Food Program for Women,
![](https://webarchive.library.unt.edu/eot2008/20090506152724im_/http://www.cdc.gov/nchs/images/indent.gif) Infants, and Children
Health of any live born
children
Adoptions and foster care
Type of adoption that was
sought
Type of foster care that
was sought
Maternal health
Self-assessment of health
Tested for HIV
Knowledge of HIV
Center for Epidemiologic
Studies Depression Scale
Family characteristics
Maternal education
Marital status
Household income by person
Use of Supplemental
Security Income program
Use of Aid to Families with
Dependent Children
![](https://webarchive.library.unt.edu/eot2008/20090506152724im_/http://www.cdc.gov/nchs/images/indent.gif) program
Use of food stamp program
Maternal employment
Paternal employment
NOTE: HIV is human
immunodeficiency virus.
Data file
technical characteristics
The following list describes specific characteristics of each file. The CD-ROM format comes with the Statistical
Export and Tabulation System (SETS)
retrieval software.
File
Name
|
Number of
records |
Live Birth Survey file |
8,285 |
Medical Provider Survey file |
99,117 |
Fetal and Infant Death Survey file |
1,637 |
Geographic coverage
The 1991 LF to the 1988 NMIHS covers the entire United States.
Data
availability
Data for the LF to the 1988 NMIHS were collected throughout calendar year 1991 and are
available on CD-ROM.
The data can be linked only in the NCHS
Research Data Center to the 1988 NMIHS to
provide a nationally representative longitudinal data base to cover the first 3 years of a
child's life or, alternatively, to examine the long-term follow-up to the loss of a fetus
or infant.
Ordering
information
The 1991 LF to the 1988 NMIHS data can be obtained from
NCHS directly (see below) .
Documentation contents
There is a book of documentation for each survey. Each documentation book includes a
description of the survey, tape layout, response rates, sample design, methodological
notes, information on how to link to the other data files and the NMIHS, weighting
information, the survey form, the univariate frequencies for each variable, and sample SAS
programs. (Note: although it is recommended that complex sample survey designs be analyzed
using the Survey Data Analysis software, these SAS programs are provided because it was
assumed that most users would have SAS available.) Documentation is available
electronically on the CD-ROM.
Contact
Reproductive Statistics Branch
Division of Vital Statistics
National Center for Health Statistics
Centers for Disease Control and Prevention
3311 Toledo Road, Room 7318
Hyattsville, Maryland 20782
(301) 458-4547
This page
last reviewed
September 09, 2008
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