Lipid Storage Diseases Organizations

Fabry Support & Information Group 108 NE 2nd Street, Ste. C P.O. Box 510 Concordia, MO   64020-0510 info@fabry.org http://www.fabry.org Tel: 660-463-1355 Fax: 660-463-1356	National Gaucher Foundation 2227 Idlewood Road, Suite 12 Tucker, GA   30084 ngf@gaucherdisease.org http://www.gaucherdisease.org Tel: 800-504-3189 Fax: 770-934-2911
Children's Gaucher Research Fund P.O. Box 2123 Granite Bay, CA   95746-2123 research@childrensgaucher.org http://www.childrensgaucher.org Tel: 916-797-3700 Fax: 916-797-3707	United Leukodystrophy Foundation 2304 Highland Drive Sycamore, IL   60178 office@ulf.org http://www.ulf.org Tel: 815-895-3211 800-728-5483 Fax: 815-895-2432
National Niemann-Pick Disease Foundation, Inc. P.O. Box 49 Ft. Atkinson, WI   53538 nnpdf@idcnet.com http://www.nnpdf.org Tel: 920-563-0930 877-CURE-NPC (287-3672) Fax: 920-563-0931	Ara Parseghian Medical Research Foundation [For Niemann-Pick Type C Disease] 3530 East Campo Abierto Suite 105 Tucson, AZ   85718-3327 victory@parseghian.org http://www.parseghian.org Tel: 520-577-5106 Fax: 520-577-5212
National Tay-Sachs and Allied Diseases Association 2001 Beacon Street Suite 204 Brighton, MA   02135 info@ntsad.org http://www.ntsad.org Tel: 617-277-4463 800-90-NTSAD (906-8723) Fax: 617-277-0134	March of Dimes Foundation 1275 Mamaroneck Avenue White Plains, NY   10605 askus@marchofdimes.com http://www.marchofdimes.com Tel: 914-428-7100 888-MODIMES (663-4637) Fax: 914-428-8203
National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT   06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291	Hide and Seek Foundation for Lysosomal Storage Disease Research 4123 Lankershim Boulevard Suite 302 No. Hollywood, CA   91602-2828 info@hideandseek.org http://www.hideandseek.org Tel: 818-762-8621 Fax: 818-762-2502
ISMRD-International Advocate For Glycoprotein Storage Diseases P.O. Box 328 Dexter, MI   48130 info@ismrd.org http://www.ismrd.org Tel: 734-449-1190 Fax: 734-449-9038