Moyamoya disease 1
Please note that the links contained on this search results page may take you
to sites outside of the NIH. (See Disclaimer under Site Policies for details.)
Moyamoya disease is a rare condition in which the walls of the internal carotid arteries - which supply blood to important areas of the brain - become thickened. The thickened arteries slow blood flow to the brain and increase the likelihood of blood clot formation, both of which can lead to strokes and transient ischemic attacks (TIA). A tangle of tiny blood vessels form at the base of the brain that are possibly trying to supply oxygen to the areas of the brain that were once served by the narrowed arteries. These tiny blood vessels - seen on an cerebral angiogram - look like a "puff of smoke"; or in Japanese, a "moyamoya". The arteries in this tangle are fragile and can break and bleed into the brain, causing hemorrhages. There are several types of revascularization surgery that can restore blood flow to the brain by opening narrowed blood vessels or by bypassing blocked arteries. Many individuals are stroke free after surgery. Prompt diagnosis and management is crucial to improve the long term outcome. About 15% of patients with Moyamoya disease have a familial form.
For more information about Moyamoya disease 1 click on the boxes below:
Click arrows to expand or collapse a Resource Section.
Show All Resources
Hide All Resources
- More Detailed Information (Found: 2 Resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates
- General
-
The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Moyamoya disease 1. Click on the link to go to OMIM and review these resources.
-
PubMed is a searchable database of medical literature and lists journal articles that discuss Moyamoya disease 1. Click on the link to view a sample search on this topic.
- Support Groups (Found: 4 Resources)
Groups providing a wide range of services, supportive resources, and information
- Umbrella Organizations
- Live Chat
-
The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
-
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
- NLM Gateway
A tool to search across multiple resources offered on the National Library of Medicine's Website
-
The NLM Gateway allows users to search across multiple resources offered on the National Library of Medicine's Web site. Some of these resources may be duplicated in the list of links above. Click on the link to go to the NLM Gateway, and search by condition name.