Fibrous dysplasia
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Fibrous dysplasia is a noncancerous, chronic, slowly progressive bone disorder.[1] It is characterized by the replacement of normal bone with fibrous tissue and woven bone. It can occur alone or as part of a syndrome such as McCune-Albright syndrome.[1][2][3] It may involve one bone (monostotic) or multiple bones (polyostotic).[1]
References
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Merchant SN, Nadol JB Jr. Otolaryngology: Head & Neck Surgery, 4th ed. In: . Otologic manifestations of systemic disease. Philadelphia, PA:Mosby, Inc; 2005:
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Rosenberg AE. Pathologic Basis of Disease, 7th ed. In: . Bones, joints, and soft tissue tumors. Philadelphia PA:Saunders; 2005:
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Feske SK, Cochrane TI. Textbook of Clinical Neurology, 3rd ed. In: . Degernative and compressive structural disorders. Philadelphia PA:Sunders; 2007:
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- More Detailed Information (Found: 11 Resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates
- General
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The Children's Hospital Boston's Web site has an information page on this topic. Click on the link above to view this information page.
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eMedicine provides information on this topic. Click on the link to view this information. You may need to register to view the medical textbook, but registration is free
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The MayoClinic.com Web site has an information page on fibrous dysplasia. Click on MayoClinic.com to view the information page.
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MedlinePlus, a Web site designed by the National Library of Medicine Web site to help you research your health questions, provides more information about this topic. Click on the link to view this information.
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The Merck Manuals Online Medical Library provides information on this condition. Click on the link to view the information.
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MeSH® (Medical Subject Headings) is a terminology tool used by the National Library of Medicine. Click on the link to view information on this topic.
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The National Organization for Rare Disorders (NORD) is a federation of more than 130 nonprofit voluntary health organizations serving people with rare disorders. Click on the link to view information on this topic.
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Orphanet is a database dedicated to information on rare diseases and orphan drugs. Access to this database is free of charge. Click on the link to read information on this topic.
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The Osteoporosis and Related Bone Diseases ~ National Resource Center provides patients, health professionals, and the public with an important link to resources and information on metabolic bone diseases, including osteoporosis, Paget's disease of the bone, osteogenesis imperfecta, and hyperparathyroidism. Contact them directly by calling toll-free at 800-624-2663 or by e-mail at NIAMSBoneInfo@mail.nih.gov
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PubMed is a searchable database of medical literature and lists journal articles that discuss Fibrous dysplasia. Click on the link to view a sample search on this topic.
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The University of Virginia Health System Web site has an information page on fibrous dysplasia. Click on the link above to view this information page.
- Support Groups (Found: 6 Resources)
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The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
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RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
- Clinical Trials & Research (Found: 2 Resources)
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ClinicalTrials.gov lists trials that are studying or have studied Fibrous dysplasia. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
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Orphanet lists clinical trials, research studies, and patient registries enrolling people with this condition. Click on Orphanet to view the list.
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The NLM Gateway allows users to search across multiple resources offered on the National Library of Medicine's Web site. Some of these resources may be duplicated in the list of links above. Click on the link to go to the NLM Gateway, and search by condition name.