Zellweger syndrome
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For more information about Zellweger syndrome click on the boxes below:
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- More Detailed Information (Found: 3 Resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates
- General
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The National Institute of Neurological Disorders and Stroke (NINDS) collects and disseminates research information related to neurological disorders. Click on the link to view information on this topic.
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The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Zellweger syndrome. Click on the link to go to OMIM and review these resources.
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PubMed is a searchable database of medical literature and lists journal articles that discuss Zellweger syndrome. Click on the link to view a sample search on this topic.
- Support Groups (Found: 4 Resources)
Groups providing a wide range of services, supportive resources, and information
- Umbrella Organizations
- Live Chat
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The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
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RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
- Clinical Trials & Research (Found: 1 Resource)
Resources where you may find research studies and clinical trials
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ClinicalTrials.gov lists trials that are studying or have studied Zellweger syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- Scientific Conferences (Found: 1 Resource)
Completed and upcoming scientific conferences and programs that have been sponsored by the National Institutes of Health
- Past Conferences
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Brain Fatty Acid Uptake, Utilization and Relevance to Peroxisomal Biogenesis Diseases (PBDs), March 2, 2000 - March 4, 2000
Location: Bethesda Marriott, Bethesda, MD
Description: The objectives of this conference were to discuss the mechanisms by which fatty acids enter the brain, are taken up by cells of the nervous system, and are then utilized by these cells. Discussants at this workshop presented the most recent data, discussed the importance of these findings, identified areas of weakness, and provided recommendations for future research.
- NLM Gateway
A tool to search across multiple resources offered on the National Library of Medicine's Website
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The NLM Gateway allows users to search across multiple resources offered on the National Library of Medicine's Web site. Some of these resources may be duplicated in the list of links above. Click on the link to go to the NLM Gateway, and search by condition name.