Hidradenitis suppurativa, familial
Please note that the links contained on this search results page may take you
to sites outside of the NIH. (See Disclaimer under Site Policies for details.)
Hidradenitis suppurativa (HS) is thought to be a common, though underreported, skin disease affecting inverse areas or skin folds (e.g., armpits, groin, and breasts) and where apocrine glands (a form of sweat gland) and hair follicles are found. It is not contagious, but it is recurrent. It typically manifests as a single boil-like, pus-filled abscess or hard sebaceous lumps (lumps composed of sebum, or oil, which is excreted by the sebacous glands associated with hair follicles) and may progress to painful, deep-seated, inflamed clusters of lesions with chronic seepage involving significant scarring [1][2].
For more information about Hidradenitis suppurativa, familial click on the boxes below:
Click arrows to expand or collapse a Resource Section.
Show All Resources
Hide All Resources
- More Detailed Information (Found: 7 Resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates
- General
-
The American College of Osteopathic Dermatology (ACOD) has developed an information page on hidradenitis suppurativa. Click on the ACOD link to learn more.
-
MedlinePlus, a Web site designed by the National Library of Medicine Web site to help you research your health questions, provides more information about this topic. Click on the link to view this information.
-
The National Organization for Rare Disorders (NORD) is a federation of more than 130 nonprofit voluntary health organizations serving people with rare disorders. Click on the link to view information on this topic.
-
The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) offers an information packet on hidradenitis and sweating disorders in general. We recommend calling the toll-free number below to request a copy of this information.
National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
National Institutes of Health
1 AMS Circle
Bethesda, Maryland 20892-3675
Toll free: 877-22-NIAMS
Telephone: 301-495-4484
TTY: 301-565-2966
Fax: 301-718-6366
E-mail: niamsinfo@mail.nih.gov
Web site: http://www.niams.nih.gov/hi/index.htm
-
The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Hidradenitis suppurativa, familial. Click on the link to go to OMIM and review these resources.
-
PubMed is a searchable database of medical literature and lists journal articles that discuss Hidradenitis suppurativa, familial. Click on the link to view a sample search on this topic.
- Selected Full-Text Journal Articles
-
eMedicine Journal provides articles online on hidradenitis suppurativa. Visit the eMedicine Journal link to read these articles. You may need to register to view the articles, but registration is free.
- Support Groups (Found: 6 Resources)
Groups providing a wide range of services, supportive resources, and information
- Umbrella Organizations
- Disease-Specific Organizations
- Live Chat
-
The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
-
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
- NLM Gateway
A tool to search across multiple resources offered on the National Library of Medicine's Website
-
The NLM Gateway allows users to search across multiple resources offered on the National Library of Medicine's Web site. Some of these resources may be duplicated in the list of links above. Click on the link to go to the NLM Gateway, and search by condition name.