HSR News | About HSR Info Central | Suggest a Link

HSR Information Central
Data Tools and Statistics
Literature and Guidelines
Disparities
Evidence-Based Practice and Health Technology Assessment
Grants and Funding
Health Economics and Health Policy
Informatics
Key Organizations
Legislation
Meetings and Conferences
Rural Health
State Resources
Training and Education
Discussion and E-mail Lists
Alphabetic List - All Web sites in alphabetic order

Data Tools and Statistics


Data Repositories/Data Sets

General Data Repositories/Data Sets

  • AgingStats - (Administration on Aging (AOA) U.S.)  - Federal Interagency Forum on Aging-related statistics. Provides links to Excel charts, reports, presentations and papers.
  • AHRQ Kids' Inpatient Database - (Agency for Healthcare Research and Quality (AHRQ))  - The Kid's Inpatient Database (KID)is produced every 3 years and is a unique and powerful nationwide database of hospital stays for children. It is a sample of pediatric discharges (age 20 or younger at admission) from community, non-rehabilitation hospitals from States participating in HCUP. The KID is the only dataset on hospital use, outcomes, and charges designed to study children's use of hospital services in the United States.
  • Cancer Research Network (CRN) - (National Cancer Institute, NIH (NCI))  - The CRN consists of research programs, enrolled populations, and data systems of 12 health maintenance organizations nationwide. The goal of the CRN is to conduct research on cancer prevention, early detection, treatment, long-term care and surveillance.
  • CMS Chart Series - (Centers for Medicare and Medicaid Services (CMS))  - Data on spending, operations, and quality of care.
  • Comprehensive Epidemiologic Data Resource - (Department of Energy (DOE) U.S.)  - CEDR is a public-use repository of data from occupational and environmental health studies of workers at DOE facilities and nearby community residents.
  • Health and Medicine Surveys - (American Association of Health Plans)  - A look at topics and trends compiled from America's Health Insurance Plans surveys of health plans. Data, facts, and analyses presented in easy-to-read formats.
  • Health Economics Resource Center - (Health Services Research and Development Service, Veterans Administration (HSR&D))  - Provides aggregate data and findings about veterans. This site includes socio-economic data, the demographic characteristics of veterans, the geographical distribution of the veteran population, and other statistical data and information by veteran program.
  • National Healthcare Safety Network (NHSN) - (Centers for Disease Control and Prevention (CDC))  - NHSN is a secure, internet-based surveillance system that integrates patient and healthcare personnel safety surveillance systems. The Patient Safety Component of NHSN allows entry of event and denominator data for both device-associated and procedure-associated events as well as data entry for microbiology susceptibility and antimicrobial use. The data analysis features of NHSN range from rate tables and graphs to statistical analysis that compares the healthcare facility's rates with national performance measures.
  • Nationwide Inpatient Sample (NIS) - (Agency for Healthcare Research and Quality (AHRQ))  - The HCUP Nationwide Inpatient Sample (NIS) is a set of longitudinal hospital inpatient databases included in the HCUP family. These databases are created by AHRQ through a Federal-State-Industry partnership.
  • NIMH Limited Access Data Sets - (National Institute of Mental Health, NIH (NIMH))  - Web page provides information on limited access data sets and how to gain access to them.
  • Scientific Data, Surveillance, & Injury Statistics - (National Center for Injury Prevention and Control, CDC)  - Descriptions and links to interactive statistics and mapping systems including WISQUARS ((Web-based Injury Statistics Query and Reporting System) the interactive, online database that provides customized injury-related mortality data and nonfatal injury data and Injury Maps an interactive mapping system.
  • SEER-Medicare Linked Database - (National Cancer Institute, NIH (NCI))  - SEER-Medicare data reflect the linkage of two large population-based sources of data that provide detailed information about elderly persons with cancer. The data can be used for an array of epidemiological and health services research.
  • Social Science Data Archive at Yale - (Social Science Libraries and Information Services, Yale University)  - SSDA contains public opinion surveys, surveys of economic behavior, surveys of electoral behavior, census data, health data, and economic and social indicators
  • Social Security Administration Data - The Office of Research, Evaluation, and Statistics under the Deputy Commissioner of Retirement and Disability Policy is the agency's source for statistics on the impact and operations of the Old-Age, Survivors, and Disability Insurance and Supplemental Security Income programs and on the earnings of the working and beneficiary populations.
  • VA Health Care Atlas - (Health Services Research and Development Service, Veterans Administration (HSR&D))  - (Health Services Research and Development Service, Veterans Administration). Enhances knowledge of VA's enrolled patient population and their health care utilization; provides background information that will improve the formulation of specific research questions to address those needs.
  • Women's Health USA 2005 - (Health Resources and Services Administration (HRSA))  - The data book was developed by HRSA to provide readers with an easy-to-use collection of current and historical data on some of the most pressing health challenges facing women, their families, and their communities.

State Data Repositories/Data Sets

  • Massachusetts Emergency Department Database - (Massachusetts Health Data Consortium (MHDA))  - The Commonwealth of Massachusetts first required the collection of data from the state's seventy-seven hospital emergency departments in 2000. The Emergency Department database includes data elements that parallel those available for the Inpatient Database, such as demographic and diagnosis elements.
  • Massachusetts Inpatient Database - (Massachusetts Health Data Consortium (MHDA))  - Starting from data obtained from the Massachusetts Division of Healthcare Finance and Policy, the Consortium enhances Massachusetts hospital inpatient data into a population-based file ensuring 100% resident-based provider-specific information.
  • Massachusetts Outpatient Observation Stays - (Massachusetts Health Data Consortium (MHDA))  - The Massachusetts Outpatient Observation Database includes stays for patients who are monitored for a short period at a hospital but not officially admitted.
  • State Cancer Legislative Database (SCLD) Program - A specialized database produced by the National Cancer Institute, which provides synthesized information relating to developments in state cancer prevention and control legislation and related policy activities.
  • State Cancer Profiles - (National Cancer Institute, NIH (NCI))  - Descriptive cancer statistics to help prioritize cancer control efforts. The focus is on cancer sites for which there are known, preventable risk factors or screening tests for early detection and effective treatment options.
  • State Data Centers - (Bureau of the Census U.S.)  - The State Data Centers (SDCs) are official sources of demographic, economic, and social statistics produced by the Census Bureau. The SDC program between the states and the Census Bureau was created to make data available locally to the public through a network of state agencies, universities, libraries, and regional and local governments.
  • State Data Resources - (Department of Health and Human Services (HHS) U.S.)  - Links to individual state health data sources.
  • State Inpatient Databases (SID) - (Agency for Healthcare Research and Quality (AHRQ))  - Contains the universe of the inpatient discharge abstracts in participating States, translated into a uniform format to facilitate multi-State comparisons and analyses.
  • Virginia Health Information (VHI) - (Virginia Health Information (VHI) USA)  - A nonprofit that provides Virginia-centered health information. Qualifying organizations can license data files (e.g., Virginia hospital discharge data, Annual Licensure Survey Data from hospitals, nursing facilities and ambulatory surgical centers) for research-specific projects or for general public use.

Health Statistics

  • Breast Cancer Surveillance Consortium (BCSC): Data & Statistics - (National Cancer Institute, NIH (NCI))  - Provides information on the variables of major interest to the BCSC, such as demographic data and health history of women who come to participating radiology facilities for mammograms. Also provided are statistics that provide an overview of the data collected.
  • Cancer statistics - (National Cancer Institute, NIH (NCI))  - Provides cancer statistics on incidence and survival data from 14 population-based cancer registries and three supplemental registries covering approximately 26 percent of the US population.
  • Green Book, 2004 - (U.S. House of Representatives)  - The House Ways and Means Committee Green Book, WMCP:108-6, provides program descriptions and historical data on a wide variety of social and economic topics, including Social Security, employment, earnings, welfare, child support, health insurance, the elderly, families with children, poverty and taxation. Links to past Green Books can be found here as well.
  • Information for State Health Policy Program - (Robert Wood Johnson Foundation (RWJF))  - Site is intended to help interested parties (inclusive of health care policy makers, state officials, health care employees, health providers, insurers, consumers, etc.) locate Model Reports and Standards for health statistical information, experience electronic Query submittal, and locate related health information resources.
  • Medical Cost Reference Guide icon - The Blue Cross and Blue Shield Association fourth annual Medical Cost Reference Guide: Facts and Trends to Support Knowledge-Driven Solutions. The guide provides information on trends in the healthcare industry from nationally recognized data sources.
  • Medical Outcomes Trust - Is a not for profit organization dedicated to improving health and health care by promoting the science of outcomes measurement, and the development, evaluation and distribution of standardized, high quality instruments that measure health and the outcomes of medical care.
  • NCI Cancer Mortality Maps & Graphs - (National Cancer Institute, NIH (NCI))  - Provides interactive maps, graphs (accessible to the blind and visually-impaired), text, tables and figures showing geographic patterns and time trends of cancer death rates for the time period 1950-1994 for more than 40 cancers
  • Profiles of America - (United States Department of Agriculture (USDA))  - This Internet-based information system allows one to manipulate various socioeconomic data series used in many Economic Resource Service (ERS) products. Use the interactive tools to create and manipulate charts, maps, and tables—including multidimensional tables, such as poverty rates by metro/nonmetro status.
  • Prostate Cancer Outcomes Study (PCOS) - (National Cancer Institute, NIH (NCI))  - PCOS is the first population-based evaluation of health-related quality-of-life issues for prostate cancer patients conducted on a multi-regional scale. Information about the patient population, data collection, and related research projects and publications is included.
  • Quick Health Data Online - (Office on Women's Health, HHS (OWH))  - National, regional, state and county data are available by gender, race, ethnicity, and age. You can make your own custom tables, graphs, and maps.
  • Social Security Statistical Tables - (Office of the Chief Actuary, U.S. Social Security Administration)  - Links to statistical tables, i.e., old-age and survivors insurance trust fund.
  • Substance Abuse and Mental Health Statistics - (Substance Abuse & Mental Health Services Administration (SAMHSA))  - The latest national data on alcohol, tobacco, illicit drug use and dependence, and State treatment planning areas. Also included are data on mental health topics including depression, serious psychological distress, and suicidal thoughts and attempts.
  • Youth Risk Behavior Surveillance System (YRBSS) - (Centers for Disease Control and Prevention (CDC))  - The Youth Risk Behavior Surveillance System (YRBSS) monitors priority health-risk behaviors and the prevalence of obesity and asthma among youth and young adults.

International

  • Canadian Statistics - (Statistics Canada)  - Summary tables are organized by Subject including Health, Population and Demography and Social Conditions.
  • Get Data, United Nations - (United Nations)  - Each year the Human Development Report (HDR) presents a wealth of statistical information on different aspects of human development. Data are available for download in multiple ways.
  • GlobalHealthFacts.org - (Henry J. Kaiser Family Foundation (KFF))  - Global data on HIV/AIDS, malaria, TB and other key health and socio-economic indicators. The data are displayed in tables, charts, and color-coded maps and can be downloaded for custom analyses.
  • Human Development Report (United Nations) - (United Nations)  - The Human Development Report (HDR) presents a wealth of statistical information on different aspects of human development. Links to other background materials, data resources and on-going debates and discussions on human development statistics.
  • Manitoba Centre for Health Policy - The Manitoba Centre for Health Policy(MCHP) is a research unit within the Department of Community Health Sciences, Faculty of Medicine, University of Manitoba (Canada) MCHP researchers benefit from collaboration with peers across Canada, the United States and Europe.
  • Social Science Data Archives - Europe - (Council of European Social Science Data Archives (CESSDA))  - List of data archives in Europe. Provides access to 25,000 data collections, delivering over 70,000 data collections per annum and acquiring a further 1,000 data collections each year.
  • United Nations Statistics Division (UN Data) - UN Data compiles and disseminates global statistical information, develops standards and norms for statistical activities, and supports countries' efforts to strengthen their national statistical systems.
  • WHOSIS Statistical Information System - (World Health Organization (WHO))  - An interactive database bringing together core health statistics for the 193 WHO Member States. It comprises more than 70 indicators, which can be accessed by way of a quick search, by major categories, or through user-defined tables.

Search for Tools

  • Access Tools - (Bureau of the Census U.S.)  - U.S. Census Bureau — Links to data access tools from the U.S. Census Bureau (e.g., American Fact Finder, Data Ferrett, Censtats, etc.)
  • American Fact Finder - (U.S. Census Bureau)  - An interactive database that is searchable for data from multiple data sources
  • CDC Wonder - (Centers for Disease Control and Prevention (CDC))  - Wide-ranging Online Data for Epidemiologic Research. Access statistical research data published by CDC; Public-use data sets about deaths, cancer incidence, HIV and AIDS, tuberculosis, vaccinations, births, census data and many other topics are available for query.
  • Data Locator - (Massachusetts Health Data Consortium (MHDA))  - Provides a categorized collection of mostly free or inexpensive resources that will answer specific data, i.e. numerical, questions.
  • FedStats - Provides links to Federal data access tools as well as statistics from more than 100 agencies.
  • Gateway to Data and Statistics - (HHS Data Council, Department of Health and Human Services)  - This web-based tool brings together key health and human services data and statistics
  • Geographic Information Systems - (National Cancer Institute, NIH (NCI))  - Serves as a central source of information about GIS and related resources. It consists primarily of links to other relevant sites.
  • NHDRnet Online Query System - (Agency for Healthcare Research and Quality (AHRQ))  - Access national data for quality of health care, access to health care, or for priority populations (race, ethnicity, income, or education) derived from the National Healthcare Disparities Report (NHDR).
  • NHQRnet Online Query System - (Agency for Healthcare Research and Quality (AHRQ))  - Access national data on the quality of and access to health care from scientifically credible measures and data sources derived from the National Healthcare Quality Report (NHQR).
  • QOLID - Quality of Life Instruments Database - (Mapi Research Institute)  - Provides limited free access to information on Quality of Life (QOL) and Patient Reported Outcomes (PRO) instruments. In-depth information is available on a paid subscription basis.
  • ResDAC (Research Data Assistance Center) - Consortium from Universities of Minnesota, Boston and Dartmouth College. Provides free assistance to academic, government and non-profit researchers interested in using Medicare and/or Medicaid data for their research.
  • VA Information Resource Center - (Health Services Research and Development Service, Veterans Administration (HSR&D))  - VIReC develops and disseminates knowledge about databases of interest to VA researchers; provides service to researchers who require information about data resources specific to their research; and represents interests of researchers regarding VA databases and information systems.

Surveys and Tools

General Surveys and Tools

  • Basis-32 - (Medical Outcomes Trust)  - This instrument is a 32-item self-administered questionnaire.
  • Bureau of the Census (U.S.), Health Insurance - The Census Bureau collects health insurance data from two national surveys:(1) The Annual Social and Economic Supplement (ASEC) to the Current Population Survey (CPS)and (2) Survey of Income and Program Participation (SIPP).
  • CAHPS® Hospital Survey (H-CAHPS) - (Agency for Healthcare Research and Quality (AHRQ))  - Public-private initiative to develop standardized surveys of patients' experiences with ambulatory and facility-level care.
  • Child Health Toolbox - (Agency for Healthcare Research and Quality (AHRQ))  - An online resource that helps measure the quality of child health care programs and offers tips and tools for evaluating health care service programs for children.
  • Data Methods Toolkit - (Urban Institute (UI))  - Provides information on qualitative methods which are most often used in implementation research and quantitative methods most often used in impact evaluation
  • EBRI/Commonwealth Fund Consumerism in Health Care Survey - (Employee Benefit Research Institute (EBRI))  - The first EBRI/Commonwealth Fund Consumerism in Health Care Survey was conducted to provide reliable national data on the growth of high deductible plans and their impact on the behavior and attitudes of health care consumers.
  • GovTrack - An independent tool to help the public research and track the activities in the U.S. Congress.
  • HCUPnet - (Agency for Healthcare Research and Quality (AHRQ))  - A free, on-line query system based on Healthcare Cost and Utilization Project (HCUP) data - provides access to health statistics and information on hospital stays at the National, regional, and State level.
  • Health and Retirement Study (HRS) - (National Institute on Aging (NIA))  - The University of Michigan HRS surveys more than 22,000 Americans over the age of 50 every two years. A Longitudinal Study of Health, Retirement, and Aging, sponsored by the National Institute on Aging.
  • Health Services & Economics Survey Instruments - (National Cancer Institute, NIH (NCI))  - Provides access to several survey instruments for studies related to health services and economics, as well as links to the National Health Interview Survey (NHIS) and the California Health Interview Survey (CHIS).
  • HRET Disparities Toolkit - (Health Research and Educational Trust (HRET))  - Web-based tool that provides hospitals, health systems, clinics, and health plans information and resources for systematically collecting race, ethnicity, and primary language data from patients.
  • Medical Expenditure Panel Survey (MEPS) - (Agency for Healthcare Research and Quality (AHRQ))  - A series of national probability surveys conducted by AHRQ on the financing and utilization of medical care in the United States.
  • MEPSnet Query Tools - (Agency for Healthcare Research and Quality (AHRQ))  - Provides easy access to Medical Expenditure Survey Panel statistics on health care use, expenditures, sources of payment, and insurance coverage.
  • National Surgical Quality Improvement Program (NSQIP) - (American College of Surgeons (ACS))  - Six years of private sector experience has demonstrated the effectiveness of the NSQIP as a quality improvement tool and as a source of new clinical knowledge for hospitals outside the VA system. The ACS NSQIP is available to all private sector hospitals that meet the minimum participation requirements, complete a hospital agreement, and pay an annual fee of $35,000.
  • ProClarity Software - (Health Services Research and Development Service, Veterans Administration (HSR&D))  - A brief description of using ProClarity software for accessing the Veterans Health Administration Financial and Clinical Data Mart (FCDM).
  • RAND COMPARE - COMPARE is a transparent, evidence-based approach to providing information and tools to help policymakers, the media, and other interested parties understand, design, and evaluate health policies.
  • SF 36 Health Survey - The SF-36 is a multi-purpose, short-form health survey with only 36 questions. It yields an 8-scale profile of functional health and well-being scores as well as psychometrically-based physical and mental health summary measures and a preference-based health utility index. It is a generic measure, as opposed to one that targets a specific age, disease, or treatment group.
  • Surveillance, Epidemiology, and End Results Program (SEER) - (National Cancer Institute, NIH (NCI))  - The SEER Program is a source of information on cancer incidence and survival in the United States. It also includes a section on Cancer Rates and Risk Factors, and information on statistics, databases, data collection tools, and recent reports.

State Surveys and Tools

  • California Health Interview Survey (CHIS) - (National Cancer Institute, NIH (NCI))  - Provides public health information for California's diverse population. Results on a variety of health topics are produced for the entire state and most counties.
  • Florida HealthFinder - (State of Florida USA)  - A web-based tool which allows easy access to comprehensive Florida health care information.
  • Medication Error Quality Initiative - (Cecil G. Sheps Center for Health Services Research)  - Mandatory annual reporting of all medication errors observed in nursing homes in the State of North Carolina.
  • Patient Safety Toolbox for States - (National Academy for State Health Policy USA)  - This electronic toolbox is intended to provide states with tools they can use or modify as they develop or improve adverse event reporting systems. The toolbox includes information (policies, practices, forms, reports, methods, and contracts) related to states' reporting systems, links to other Web resources, and fast facts and issues related to patient safety.
  • State Health Access Data Assistance Center (SHADAC) - (University of Minnesota)  - provides a focal point for coordination of state survey activities on the uninsured (funded by Robert Wood Johnson Foundation and administered by the University of Minnesota School of Public Health).

Metadata | Permanence level: Permanence Not Guaranteed
Copyright | Privacy | Accessibility
U.S. National Library of Medicine , 8600 Rockville Pike, Bethesda, MD 20894
National Institutes of Health, Health & Human Services 		Page Last Updated: 16-APR-2009