Coffin-Lowry Syndrome Foundation675 Kalmia Pl NW
Issaquah,
WA
98027
Tel: 425-427-0939
(M-F after 6pm PST)
EMail:
CoffinLowry@Gmail.comhttp://clsf.infoDescription: Clearinghouse for information on CLS. Provides a general forum for exchanging experiences, advice, and information with other
CLS families. Works to facilitate referrals of newly diagnosed individuals and to encourage medical and behavioral research
in order to improve methods of social integration of CLS individuals.
Organizations such as this one may focus on information, research, fundraising, advocacy and awareness programs, rehabilitation,
or patient support. They are not part of the Federal Government and they may not be tax-exempt.