International Rett Syndrome Foundation

International Rett Syndrome Foundation
4600 Devitt Drive
Cincinnati,  OH  45246
Tel: 513-874-3020
EMail: admin@rettsyndrome.org
http://www.rettsyndrome.org

Description: The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.

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National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.