Prader-Willi Syndrome Association5700 Midnight Pass Road
Suite #6
Sarasota,
FL
34242-3000
Tel: 941-312-0400
800-926-4797
Fax: 941-312-0142
EMail:
national@pwsausa.orghttp://www.pwsausa.orgDescription: Serves as an international vehicle of communication about Prader-Willi syndrome (PWS), a genetically based developmental disability.
Provides to parents and professionals a national and international network of information, support services, and research
endeavors to meet the needs of affected children and adults and their families.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and
their families. They may offer patient and professional information and education materials, sponsor meetings and scientific
workshops, fund research, and provide referrals to chapters and support groups.