National MPS Society, Inc.PO Box 14686
Durham,
NC
27709-4686
Tel: 877-MPS-1001
919-806-0101
Fax: 919-806-2055
EMail:
info@mpssociety.orghttp://www.mpssociety.orgDescription: Dedicated to finding cures for mucopolysaccharidosis (MPS) and related diseases. Provides hope and support for affected individuals
and their families by sponsoring research, advocacy, and awareness programs.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and
their families. They may offer patient and professional information and education materials, sponsor meetings and scientific
workshops, fund research, and provide referrals to chapters and support groups.