Lowe Syndrome Association18919 Voss Road
Dallas,
TX
75287
Tel: 972-733-1338
EMail:
info@lowesyndrome.orghttp://www.lowesyndrome.orgDescription: Provides information, fosters communication among families, and supports medical research on Lowe syndrome. Activities include
conferences, a research grant program, a newsletter and other publications.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and
their families. They may offer patient and professional information and education materials, sponsor meetings and scientific
workshops, fund research, and provide referrals to chapters and support groups.