Hunter's Hope Foundation
[A Leukodystrophy Resource]P.O. Box 643
Orchard Park,
NY
14127
Tel: 716-667-1200
877-984-HOPE (-4673)
Fax: 716-667-1212
EMail:
info@huntershope.orghttp://www.huntershope.orgDescription: Fosters awareness about Krabbe disease and other leukodystrophies, works to promote early detection and treatment, provides
information and service linkages to families, and funds research efforts to identify new treatments and therapies, and ultimately,
a cure.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and
their families. They may offer patient and professional information and education materials, sponsor meetings and scientific
workshops, fund research, and provide referrals to chapters and support groups.