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Sickle Cell Clinics, Contacts, and Resources

Instructions: Click on a heading or location. You may scroll down the page to see all of the contacts - Georgia Centers, National Organizations, NIH Sickle Cell Centers, Bone Marrow Transplant Centers

Clinics and Centers by State and Country: AL, AR, AZ, CA, CO, CT,DC, FL, GA, HI, IL, IN,  KS, KY, LA, MD, MA, MI, MN, MS, MO, NE, NJ,   NM,  NY, NC, OH, OK, OR, PA, RH, SC, TN, TX, VA, WA,  Canada, UK, Jamaica, Germany, Guyana, Nigeria, Brazil, India West Indies , West, Africa  North Africa, Zambia

Clinical Services in Georgia - Comprehensive Centers

[Bullet] The Comprehensive Sickle Cell Center at Grady Health System in Atlanta - The worlds first 24 acute care clinic dedicated to patients with sickle syndromes. Health maintenance clinics for children and adults. 80 Butler Street, S.E. P.O. Box 109 Atlanta, GA 30335 phone 404-616-3572 Fax 404-616-5998 James R. Eckman, M.D., Director

[Bullet] The Medical College of Georgia - Sickle Cell Clinic and Outreach Clinics in Augusta- Heath maintenance clinics for adults and children website http://www.mcg.edu/centers/sicklecell/Index.htm

Augusta Sickle Cell Center Adult Sickle Cell Center
Medical College of Georgia 1521 Pope Avenue
Augusta, GA 30912 Dr. Abdullah Kutlar, Telephone: (706) 721-2171 FAX: (706) 721-2171

Pediatric Sickle Cell Service Children's Medical Center HF1007 Augusta, GA 30912-3730 Dr. K. M. McKie,Dr. Virgil McKie Telephone: (706) 721-0175 FAX: (706) 721-2643

[Bullet] Children's Healthcare of Atlanta (CHOA) Sickle Cell Disease Program http://www.choa.org/default.aspx?id=2365  Bone Marrow transplantation for sickle cell disease in Atlanta http://www.choa.org/default.aspx?id=739

[Bullet] Medical College of Georgia Stroke Prevention Program STOP study - This is the headquarters of the stroke prevention study that demonstrated a new method - Trans-cranial doppler ultrasound , to detect sickle cell children at risk for strokes. Links and contacts for all the participating centers are available.

 

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National Organizations

National Center for Education in Maternal and Child Health 2000 15th Street, North, Suite 701 Arlington, VA 22201-2617 phone 703-524-7802

National Heart, Lung, and Blood Institute (NHLBI), a part of the Federal Government's National Institutes of Health.  at http://www.nhlbi.nih.gov/ Sickle Cell Disease Scientific Research Group 6701 Rockledge Drive, MSC 7950
Bethesda, MD 20892-7950

(for overnight couriers -> FED EX, UPS, etc.)
Sickle Cell Disease Scientific Research Group
Rockledge Two Center, 10th Floor, Room 10042 D
6701 Rockledge Drive
Bethesda, MD 20817

phone numbers are: 301-435-0055 (voice) and 301-480-0868 (fax).

This site list all of the Federally funded centers with email addresses and locations http://www.rhofed.org/rhofed_cscc/

 

Sickle Cell Disease Association of America 16 S. Calvert St., Suite 600
Baltimore, MD 21202 phone 1- 800-421-8453 , 310-216-6363 FAX 310-215-3722 .A state by state listing of member chapters where you can obtain sickle cell information and local referrals is located on their website at: http://www.sicklecelldisease.org

Genetic Disease Resource Center California State Department of Health Services Genetic Disease Resource Center 2151 Berkeley Way, Annex 4 Berkeley, CA 94704 phone 510-540-2534

The National Newborn Screening and Genetics Resource Center (NSGRC) is sponsoring a hemoglobinopathy referral laboratory at Children's Hospital and Research Institute at Oakland (CHORI Hb Lab) to assist in second tier analysis and confirmatory testing related to newborn screening hemoglobinopathy results. 

This contract is intended to assist states in confirming the presence of suspected hemoglobin variants on the initial filter paper specimen. The CHORI Hemoglobinopathy referral laboratory can also provide analytical information on whole blood samples in order to identify hemoglobin variants not previously observed or needing additional testing  for confirmation. 

A primary objective of this contract is to determine if such reference services are needed by the screening laboratories, as this service was previously provided by the CDC, but discontinued over 10 years ago.  Please consider using this contracted service to help us determine if the need exists and to assist you in your screening efforts.  There is no charge for the service at the present time. 

Please contact Dr. Carolyn Hoppe at the address  below if you would like additional information. 

Carolyn Hoppe, MD
Medical Director
Hemoglobinopathy Referral Laboratory
Children's Hospital Oakland
747 52nd Street
Oakland, CA 94609
(510) 428-3193
e-mail: choppe@mail.cho.org

STOP STUDY - Stroke Prevention Centers  at http://www.neuro.mcg.edu/cvhp/STOP/centers.html in the US are listed on the MCG website - These center can perform Trans-Cranial Doppler Ultrasound to detect those children at high risk of having a stroke

Council of Regional [Genetics] Networks (CORN)  http://www.kumc.edu/gec/prof/corn.html

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N.I.H. Sickle Cell Centers as of June 2003

These are the 10 sickle cell centers and clinics sponsored by National Heart, Lung, and Blood Institute (NHLBI), a part of the Federal Government's National Institutes of Health, Sickle Cell Disease Branch, Contact information and researh projects underway in these centers can be found at the NIH Sickle Cell Cell Center's Website at http://www.rhofed.com/sickle/

Southwestern Comprehensive Sickle Cell Center The University of Texas Southwestern Medical Center at Dallas Pediatrics Department 5323 Harry Hines Boulevard Dallas, TX 75390-9063 Voice: (214) – 648-8594 Fax: (214) – 648-3122 George Buchanan, M.D. Director, Email: George.Buchanan@UTSouthwestern.edu 

The University of Texas at Dallas Sickle Cell Disease Research Center (SCDRC)  http://www.utdallas.edu/research/sickle-cell/index.html -The Sickle Cell Disease Research Center’s mission is to actively and aggressively participate in the substantive development of basic research and training efforts to improve treatment options or cure sickle cell disease.

Comprehensive Sickle Cell Centers Statistics & Data Management Center Rho Federal Systems Div., Inc. 100 Eastowne Drive Chapel Hill NC 27514 Ronald W. Helms, Ph.D .Director Voice: (919) 408-8000 Ext. 222 Fax: (919) 408-0999 Email: helms@rhoworld.com  http://www.fpg.unc.edu/~sickle/index.htm

University of Southern California Comprehensive Sickle Cell Center Department of Medicine  Cage S. Johnson, M.D. Director, RMR 304 2025 Zonal Avenue Los Angeles CA 90033 Voice: (323) 442-1259 Fax: (323) 442-1255 Email: cagejohn@hsc.usc.edu

Cincinnati Comprehensive Sickle Cell Center Children’s Hospital Medical Center Division of Hematology/Oncology Clinton H. Joiner, M.D., Ph.D. Director, 3333 Burnet Avenue Division of Hematology/Oncology Cincinnati OH 45229-3039 Voice: (513) 636-4541 Fax: (513) 636-5562 Email: clint.joiner@chmcc.org

Bronx Comprehensive Sickle Cell Center Ronald L. Nagel, M.D. Director,  Albert Einstein College of Medicine Division of Hematology Ullman Building, Room 921 1300 Morris Park Avenue Bronx NY 10461 Voice: (718) 430-2088 Fax: (718) 824-3153 Email: nagel@aecom.yu.edu

Children’s Hospital of Philadelphia Comprehensive Sickle Cell Center, Kwaku Ohene-Frempong, M.D. Director,  34th Street & Civic Center Blvd. Philadelphia PA 19104 Voice: (215) 590-3423 Fax: (215) 590-2499 Email: ohene-frempong@email.chop.edu  Website: Sickle Cell Center The Children’s Hospital of Philadelphia

Boston Comprehensive Sickle Cell Center  Martin Steinberg, M.D. Director,  One Boston Medical Center Place, FGH-2 Boston MA 02118 Voice: (617) 414-1020 (Steinberg) Fax: (617) 414-1021 (Steinberg) Email: msteinberg@medicine.bumc.bu.edu Web http://www.bu.edu/sicklecell/

Marian Anderson Comprehensive Sickle Cell Center
Lewis Hsu, MD, PhD, Interim Director,   St. Christopher's Hospital for Children, Drexel University College of Medicine, Nelson Pavilion Suite 2130, 3601 A Street, Philadelphia PA 19134 Appointments: (215) 427-5096 Fax: (215) 427-6884 Email: Lewis.Hsu@drexelmed.edu

Marian Anderson Sickle Cell Anemia Care and Research Center Marie J. Stuart, M.D. Director,  Thomas Jefferson University Hematology Division, Pediatrics Dept.  College Bldg., Suite 727 1025 Walnut Street Philadelphia PA 19107 Voice: (215) 955-9820 Fax: (215) 955-8011 Beeper: (215) 314-1887 Email: marie.stuart@mail.tju.edu

 Northern California Comprehensive Sickle Cell Center- Elliott Vichinsky, M.D. Director,  Children’s Hospital & Research at Oakland Dept. of Hematology / Oncology 747 – 52nd Street Oakland, CA 94609 Voice: (510) 428-3651 Fax: (510) 450-5647 Email: evichinsky@mail.cho.org

St. Jude Children’s Research  Hospital Comprehensive Sickle Cell Center Winfred Wang, M.D. Director,  St. Jude Children’s Research Hospital Department of Hematology/Oncology 332 North Lauderdale Bldg R-6010 Mail Stop Code 763 Memphis, TN 38105 Voice: (901) 495-3497 Fax: (901) 495-2952 Email: Winfred.Wang@stjude.org

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US Day Hospitals by City

Atlanta GA - 24 hour Center The Georgia Comprehensive Sickle Cell Center at Grady Health System http://scinfo.org/serv01.htm

Hollywood FL - Memorial Healthcare System's Sickle Cell Day Hospital http://www.memorialregional.com/sicklecell.aspx

Ft Lauderdale FL - The Sickle Cell Day Treatment and Wellness Center at Chris Evert Children’s Hospital http://www.browardhealth.org/?id=705&sid=6

Philadelphia PA - The Children's Hospital in Philadelphia (CHOP) initiated the Hematology Acute Care Unit (HACU) http://www.chop.edu/consumer/jsp/division/generic.jsp?id=81670

Boston MA - Patkin Sickle Cell Day Hospital http://www.bu.edu/sicklecell/

Houston, TX - Baylor College of Medicine, Pediatrics, Texas Children's Cancer Center, Houston, Texas, USA http://www.txccc.org/content.cfm?content_id=935

New Orleans LA - Tulane University Health Science Center’s Sickle Cell Day Hospital http://tulane.edu/som/departments/pediatrics/hemonc.cfm

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Other Sickle Cell Clinics By State

Alabama

Sickle Cell Center,College of Medicine; University of South Alabama , 3007 University Boulevard, CSAB 224; Mobile, AL 36688; 334-460-7334 FAX (334) 460-6604 Steven R. Goodman, Ph.D., Director http://www.southalabama.edu/usahealthsystem/sicklecell/

Comprehensive Sickle Cell Center, University of Alabama - Birmingham, UAB Station THT-5 ZSH Birmingham, Alabama 35294-0006, (205) 934-2721, (205) 934-1910 (FAX) Josef T. Prchal, M.D.,Director

Children's Hospital Hematology Clinic Birmingham, AL 35233 Dr. Roger Berkow, Dr. Thomas Howard, Dr. P. Amamoo,Bonita Williams Telephone: (205) 939-9285

Alabama Support and Foundations

ALABAMA STATE SICKLE CELL DISEASE ASSN
PO BOX 3151
TUSCALOOSA AL 35403
(205) 758-1761 OFC
(205) 758-1781 FAX
E-MAIL: alabama@sicklecelldisease.org    WEBSITE: www.sicklecelldisease.org/alabamastate.htm

NORTH ALABAMA SICKLE CELL FOUNDATION 
1805 UNIVERSITY DR
HUNTSVILLE AL 35804
PO BOX 813 (MAILING ADDRESS)
HUNTSVILLE AL 35810
(256) 536-2723 OFC
(256) 536-2714 FAX
(800) 636-2723 GENERAL PUBLIC
E-MAIL: gbatts@sicklecellna.org WEBSITE: www.sicklecellna.org 

GLORIA P. BATTS, EXECUTIVE DIRECTOR

NORTH CENTRAL ALABAMA SICKLE CELL FOUNDATION 
3813 AVE "I" ENSLEY
BIRMINGHAM AL 35218
(205) 780-2355 OFC
(205) 780-2368 FAX
(800) 735-0405 GENERAL PUBLIC
E-MAIL: ncasf@aol.com
SHARON B. LEWIS, EXECUTIVE DIRECTOR


SICKLE CELL FOUNDATION OF GREATER MONTGOMERY 
PO BOX 9278 (MAILING ADDRESS)
MONTGOMERY AL 36108
3180 U.S. HWY 80 WEST
MONTGOMERY AL 36108
(334) 286-9122 OFC
(334) 286-4804 FAX
(800) 742-5534 GENERAL PUBLIC
E-MAIL: sickle2@aol.com
WILLIE T. OWENS, EXECUTIVE DIRECTOR


SCDAA – MOBILE 
PO BOX 40696 (MAILING ADDRESS)
MOBILE AL 36640
1453 SPRINGHILL AVE
MOBILE AL 36604
(334) 432-0301 OFC
(334) 432-2347 FAX
(800) 742-5520 GENERAL PUBLIC
E-MAIL: sickle@acan.net
LINDA JONES, EXECUTIVE DIRECTOR

TRI-COUNTY SICKLE CELL DISEASE ASSOCIATION 
PO BOX 1162 (MAILING ADDRESS)
SELMA AL 36702
2820 CITIZEN'S PARKWAY SUITE 13 
SELMA AL 36702
(334) 872-9362 - (334) 872-9369 OFC
(334) 872-9383 FAX
(800) 704-9068 GENERAL PUBLIC
E-MAIL: tcscda@Zebra.net
MARGARET P. BOLLING, EXECUTIVE DIRECTOR


SCDAA – WEST ALABAMA 
PO BOX 3151 (MAILING ADDRESS)
TUSCALOOSA AL 35401
3011 FIFTH STREET
NORTHPORT, AL 35476
(205) 758-1761 OFC
(205) 758-1781 FAX
E-MAIL: westalabama@sicklecelldisease.org WEBSITE: www.sicklecelldisease.org/tuscaloosa.htm
B.L. WINSTON, ED.D. EXECUTIVE DIRECTOR

SOUTHEAST ALABAMA SICKLE CELL ASSOCIATION 
PO BOX 1079 (MAILING ADDRESS)
TUSKEGEE INSTITUTE AL 36087-1079
4201 M.L.K. HIGHWAY
TUSKEGEE INSTITUTE AL 36083
(334) 727-6120 OFC
(334) 727-9390 FAX
(800) 854-1367 GENERAL PUBLIC
ROSA STORRS, EXECUTIVE DIRECTOR
Arizona 

SCDAA – PHOENIX ARIZONA CHAPTER 
1818 S 16TH ST
PHOENIX AZ 85034
(602) 254-5048 OFC
(602) 254-0630 FAX
(800) 872-4871 GENERAL PUBLIC
E-MAIL: phoenix@sicklecelldisease.org  WEBSITE: www.sicklecelldisease.org/phoenix.htm GLORIA PAYNE, EXECUTIVE DIRECTOR

Arkansas

Adult Sickle Cell Clinic Mainline Clinic, (the old Dermott Hospital) 
604 S. Pecan  Dermott, Arkansas 71538 phone (501) 538-5296 
Dr. Maurzio Zangari, Attending Physician  Last Thursday each month 
8 am until noon  Contact person: Marilyn Smith 

 Arkansas Sickle Cell Project  http://www.uams.edu/UAP/sickle.htm


Arkansas Children's Hospital, Center for Cancer and Blood Diseases
800 Marshall Street, Little Rock, AR 72202-3591
501-364-4331, Contact: Angela B. Mull, RNP mullangelab@uams.edu

Sickle Cell Clinic is held every Friday from 8 AM until noon. You may
contact Angela Mull, RNP to request education materials, make appointments,
or to receive further information on sickle cell disease or the clinic.
Physicians: Carolyn Suzanne Saccente, MD, David L. Becton, MD and the Chief of Hematology-Oncology at ACH

Arkansas foundation for sickle cell support contact  lperry@afscs.org  Website http://www.afscs.org/

California

Sickle Cell Disease Foundation of California at http://www.scdfc.org
6133 Bristol Parkway, Suite 240, Culver City, CA 90230
Telephone (310) 693-0247 Fax (310) 693-0266
Toll Free (866) 288-2783

Comprehensive Sickle Cell Center, University of Southern California; Department of Medicine, RNfR 304; 2025 Zonal Avenue; Los Angeles, California 90033 (213) 342-1259 (213) 342-1255 (FAX); Cage S. Johnson, M.D.,Director

Director Comprehensive Sickle Cell Center,University of California, San Francisco General Hospital, 1001 Potrero Avenue, Room 6J-5 San Francisco. California 94110 (415) 206-5 169 (415) 206-3686 (FAX), William C. Mernzer, M.D., Director

Alta Bates,Adult Sickle Cell Disease Center,3001 Colby St. Berkeley, California 94705 Phone: (510) 204-1609 Services for: adults

Children's Hospital of Los Angeles, Sickle Cell Disease Center, 4650 Sunset Blvd. P.O. Box 54700 Los Angeles, California 90054 Phone: (213) 669-5656 Services for: children

Children's Hospital of Oakland Sickle Cell Disease Center, 747 52nd St. Oakland, California 94609 Phone: (510) 428-3000 Elliott Vichinsky, M.D ,Ekua Hackney Services for: children

Children's Hospital of Orange County Sickle Cell Disease Center, 455 S. Main St. P.O. Box 5700 Orange, California 92668 Phone: (714) 532-8636 Services for: children

Harbor-UCLA Medical Center Sickle Cell Disease Center 1124 W. Carson St. Torrance, California 90509 Phone: (310) 222-4158 Services for: children

Highland Hospital Sickle Cell Disease Center, 1411 E. 31st St. Oakland, California 94602 Phone: (510) 437-4251 Services for: adults

Kaiser Permanente Sickle Cell Disease Center 280 West MacArthur Blvd. Oakland, California 94611-5693 Phone: (510) 596-7474 Services for: children

LAC/USC Women's & Children's Hospital Sickle Cell Disease Center 1240 Mission Rd., Rm. 911 Los Angeles, California 90033 Phone: (213) 226-3652 Services for: children

LAC/USC Women's & Children's Hospital Sickle Cell Disease Center 1240 N. State St. Los Angeles, California 90033 Phone: (213) 342-1259 Services for: adults

Loma Linda University Medical Ctr. Sickle Cell Disease Center 11379 Anderson St. Ste. B100 Loma Linda, California 92354 Phone: (714) 799-5283 Services for: children

Miller Children's Hospital Sickle Cell Disease Center P.O. Box 1428 Long Beach, California 90801 Phone: (310) 492-1062 Services for: children

Permanente Medical Group Sickle Cell Disease Center 6041 Cadillac Dr. Los Angeles, California 90034 Phone: (800) 734-5155 Services for: adults

San Francisco General Hospital Sickle Cell Disease Center 1001 Potrero Ave. Bldg. 100 Rm. 263 San Francisco, California 94110 Phone: (415) 206-8573 Services for: adults and children

Stanford Children's Hospital Sickle Cell Disease Center 735 Welch Rd. Palo Alto, California 94303 Phone: (415) 497-8238 Services for: children and adults

U.C. Davis Medical Center Sickle Cell Disease Center 2315 Stockton Blvd. Sacramento, California 95827 Phone:  (916) 734-5959 Services for: children and adults

U.C. Irvine Medical Center Sickle Cell Disease Center 101 City Drive South Bldg. 29A, Rt. 81 Orange, California 92668 Phone: (714) 456-6615 Services for: children and adults

U.C. Los Angeles Dept. of Pediatrics/Sickle Cell Disease Center Center for Health Sciences 10833 Le Conte Ave. Los Angeles, California 90024-1752 Phone: (310) 825-5050 Services for: children

U.C. San Diego University Hospital Sickle Cell Disease Center 200 W. Arbor Dr. San Diego, California 92103 Phone: (619) 294-3893 Services for: children

U.C. San Francisco No. Calif. Comprehensive Sickle Cell Ctr. San Francisco General Hospital1001 Potrero Ave., Bldg. 100, Rm.331 San Francisco, California 94110 Phone: (415) 206-5169 Fax: (415) 206-3071 Services for: children & adults

Oakland - THE CLARA FELIX SICKLE CELL CLINIC  Alternative medicine treatments including nutritional supplements and nutritional counseling, acupuncture, massage, and heat therapy. - 5720 Shattuck Ave.  Oakland, CA 94609  TEL: 510-382-1450 • FAX: 510-382-1460 • CELL: 510-390-0631 Web http://www.clarafelixclinic.org/index.html

SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA 
6133 BRISTOL PARKWAY, SUITE 240
CULVER CITY, CA 90230
(310) 693-0247 OFC
(310) 693-0266 FAX
E-MAIL: info@scdfc.org WEBSITE : www.scdfc.org/
MARY BROWN, PRESIDENT/CEO

SCDAA – SAN DIEGO
636 BROADWAY STE 315
SAN DIEGO CA 92101
(619) 234-1140 OFC
(619) 233-3557 FAX
E-MAIL: scda@home.com WEBSITE: www.scdaa-sd.org/  DON EARLY, PRESIDENT


SICKLE CELL ORG OF THE INLAND COUNTIES
2060 UNIVERSITY AVE, RM 206
RIVERSIDE CA 92507
(909) 684-0420 OFC
(909) 684-0340 FAX
(800) 992-6722 GENERAL PUBLIC
E-MAIL: sco2060@aol.com WEBSITE: www.member.aol.com/ghrsd/sco.html LEORA NASH, EXECUTIVE DIRECTOR

Colorado

Denver - Colorado Sickle Cell Treatment and Research Center, University of Health Sciences Center, 4200 E. 9th Ave., Box C222, Denver, CO 80262
303-372-9070 Phone 303-372-9161 Fax Shannon Gillette, Administrator
http://www.uchsc.edu/sicklecell

SCDAA – COLORADO
4280 HALE PARKWAY
DENVER CO 80220
(303) 333-2606 OFC
(303) 399-3411 FAX
E-MAIL: sickle4co@aol.com WEBSITE: www.coloradosicklecell.org/

Connecticut

The Hemoglobin Disorders Treatment Center, Connecticut Children's Medical Center
282 Washinton Street Hartford, CT 06106 Phone-860-545-9630, fax: 860-545-9622
Director: Nathan Hagstrom, MD  Phone 860-545-9615
Social Work: Nancy Caperino, MSW, 860-545-9374

Yale University School of Medicine 333 Cedar Street New Haven, CT 06520 Department of Pediatric Hematology Director: Howard Pearson, MD  Phone: 203-785-4640 Fax: 203-737-2461 Outreach Sites: Bridgeport, Norwalk

The citizens for Quality Sickle cell Care, Inc, New Britain, Ct. http://cqscc.org/ Our organization is made up of volunteers from Northern Connecticut. Our group is diverse and made up of parents, families and friends of people living with Sickle Cell Disease, educators, and members of the clergy who are interested in providing quality care and support for children and adults with Sickle Cell Disease and related disorders.
Services We Offer: * Educational materials * In-service and Training * Advocacy
* Referrals * Counseling * Individual/Group Support email citizensforquality@sbcglobal.net

SOUTHERN REGIONAL SICKLE CELL ASSOCIATION
177 STATE ST 3RD FL
BRIDGEPORT CT 06604
(203) 366-8710 OFC
(203) 335-2714 FAX
E-MAIL ADD: srsca@sicklecelldisease.org
WEBSITE: www.sicklecelldisease.org/bridgeport.htm
DELORES WILLIAMS-EDWARDS, EXECUTIVE DIRECTOR


SCDAA – CONNECTICUT
GENGRAS AMBULATORY CENTER
114 WOODLAND ST STE 2101
HARTFORD CT 06105-1299
(860) 714-5540 OFC
(860) 714-8007 FAX
(800) 379-0119 GENERAL PUBLIC
E-MAIL: scdaa@iconn.net
WEBSITE: www.sicklecellct.org
GAREY E. COLEMAN, EXECUTIVE DIRECTOR


SATELLITE OFFICEs:
NEW HAVEN REGIONAL OFFICE
226 DIXWELL AVE, 2ND FL
NEW HAVEN CT 06511
(203) 498-4051 OFC
(203) 498-4054 FAX
R.JACKIE PULLEN-DANIELS, PROGRAM COORDINATOR
E-MAIL: scdaanh@iconn.net


NEW LONDON REGIONAL OFFICE
219 BANK ST., 2ND FL
NEW LONDON, CT 06320
(860) 447-9921 OFC
(860) 447-9509 FAX
MARGARET L. JACKSON, PROGRAM COORDINATOR
E-MAIL: scdaanl@iconn.net

Florida

University of Miami Miller School of Medicine/Jackson Memorial Hospital 
Sickle Cell Center Adults - Wisvline Labrousse, ARNP, PhD. 305 243 6872Director of Adult Sickle Cell Program - Thomas Harrington, M.D. 305 243 6872 or 305 243 6626 tharrington@med.miami.edu <mailto:tharrington@med.miami.edu> 

Pediatric Sickle Cell Program-Tally Hustace, ARNP; Mary Donovan, RN 305 243 6924
Director of Pediatric Sickle Cell Program- Ofelia Alvarez, M.D. 305 585 5635, oalvarez2@med.miami.edu <mailto:oalvarez2@med.miami.edu> 
1611 NW 12th Avenue, Room 514, Miami, FL 33136

Dade County Sickle Cell Foundation/Miami Sickle Cell Center 794 NW 18th Street Miami, FL 33136 (305) 243-6924 contact amack@med.miami.edu Services: Screening, genetic counseling, research projects, Boggy Creek Gang Camp
Web http://www.sicklecellmiami.org

Hollywood, Florida - The Sickle Cell Day Hospital is located at Memorial Regional Hospital, 5th Floor East, at 3501 Johnson Street, Hollywood. The hours are 9am to 5pm, Monday through Friday. For more information or to speak to a staff member, please call the Memorial Sickle Cell Disease Information Line at (954) 985-6945.See Immediate treatment and pain management (typically within four hours) 24 hour phone contact with nurse,Comprehensive care fro patients 16 and older, including behavioral health, Chronic pain support group, Disease management program, Pneumonia vaccination, Lab work, Blood transfusions Web site http://www.mhs.net/articles/editions/47/memorialsicklecelldayhospital.aspx

 Jacksonville, Florida - Shands Comprehensive Pediatric Sickle Cell Center opened on Tuesday, April 22. The center, which is located at 555 West 11th Street on the Shands Jacksonville campus, will provide a wide variety of services to individuals and families living with sickle cell disease all in one location. The Shands Jacksonville clinic is open Monday through Friday from 7:30 a.m. to 5 p.m. A support group for parents and family members meets at 6 p.m. on the second Monday of every other month. Contact (904) 244-3057 http://www.shandsjacksonville.org/

All Children's Hospital 801 Sixth Street South St. Petersburg, FL 33701 Dr. Jerry L. Barbosa, Helen Smith Ramsey, RN, Sickle Cell Nurse Telephone: (813) 892-4176 daytime Telephone: (813) 892-7451 after hours

Pediatric Hematology/Oncology Center, The Children's Hospital of Southwest Florida of Lee Memorial Health System 9981 S. Healthpark Dr. Suite 156 Ft. Myers, FL 33912 Phone 239-432-3333 Dr. Emad Salman, Medical Director. Laura Ortiz RN, BSN, CPON Director Pediatric Hematology/Oncology  (941)432-3650

Orlando Cancer Center 85 West Miller Orlando, FL 32806-2093 Dr. Vincent Giusti , Leslie Oygar, RN Sickle Cell Nurse Telephone: (407) 237-6320 daytime Telephone: (407) 648-3800 after hours

Orlando - Nemours  Sickle Cell Clinic and  Arnold  Palmer Hospital is the inpatient part of it 83 West Miller, Orlando, 32806. phone fax is 407 650 7233. Phone is 407 650- 7230.Dr. Vincent Giusti email vgiusti@nemours.org

Sacred Heart Children's Hospital 5151 North Ninth Avenue Pensacola, FL 32504 Dr. Thomas G. Jenkins, Colleen Gurene, RN,BSN Sickle Cell Nurse(904) 478-1100 24 hours Telephone: (904) 474-7712

University Medical Center 655 West Eighth Street Jacksonville, FL 32209 Marcia McCrary, Sickle Cell Nurse Telephone: (904) 549-4472 (904) 549-5000 (daytime) (904) 549-5000 (after hours)

Gainesville - University of Florida Box 100296 Gainesville, FL 32610 Dr. Amos Kedar, Caroline Adams, RN,BSN,MA Sickle Cell Coordinator beeper number is
1-877-206-7674 and direct telephone number 1-352-265-0680(88239), Clinic  (352) 392-5633 daytime Telephone: (352) 392-5633 (352) 395-0111 after hours Website: www.med.ufl.edu/hem-onc

Gainesville - Sickle Cell Disease Association of Florida, North Central Florida Chapter P.O. Box 1262 Gainesville, FL 32602 
(352) 334-0741 office  (352) 334-1476 fax 
President, Ta-Tanisha Davis 
Executive Director, Gloria Washington 
Treasurer, Mary Lewis 
Secretary, Vanessa Williams

Tampa - University of South Florida Pediatric Hematology, Janifer Judisch, M.D., Chief of Service, Shelley Coleman, R.N., Sickle Cell Nurse Coordinator
12901 Bruce B. Downs Blvd. MDC 37 Tampa, FL 33612 (813) 974-0415 Office (813) 974-8027 FAX

Miami Childrens Hospital at http://mch.com/clinical/hematology_oncology/index.html 
3100 S.W. 62nd Avenue Miami, Florida 33155 (305) 666-6511 Ask for the Sickle Cell Clinic Toll-free numbers:1-800-432-6837 or 930-4KIDS or (305) 930-4KIDS in Miami-Dade 

Dade County Sickle Cell Foundation/Miami Comprehensive Sickle Cell Center 794 NW 18th Street Miami, FL 33136 (305) 243-6924 contact amack@med.miami.edu Services: Screening, genetic counseling, research projects, Boggy Creek Gang Camp: 

Tallahassee, Sickle cell Foundation at http://hometown.aol.com/SCFLeon/sickle.htm

SCDAA – FLORIDA STATE
PO BOX 11982 (MAILING ADDRESS)
TAMPA FL 33660-1982
3402 N 22ND ST STE 164
TAMPA FL 33065
(813) 248-2888 OFC
(813) 247-1543 FAX
FRANK REDDICK, COO


SCDAA – VOLUSIA COUNTY
PO BOX 9083 (MAILING ADDRESS)
DAYTONA BEACH FL 32120
111 BETHUNE VILLAGE
DAYTONA BEACH FL 32114
(904) 258-5605 OFC
(904) 258-158 FAX
E-MAIL: SCDAAVC@Bellsouth.net
LILLIAN WILLIAMS, PRESIDENT/DIRECTOR


SCDAA – BROWARD COUNTY 
PO BOX 8535
FT LAUDERDALE FL 32114
(954) 524-4920 OFC
(954) 524-4774 FAX
E-MAIL: scdbrowardcounty@aol.com
CYNTHIA COLLINS, EXECUTIVE DIRECTOR


SCDAA – NORTHEAST FLORIDA
PO BOX 4011 (MAILING ADDRESS)
JACKSONVILLE FL 32201
1133 IONIA ST
JACKSONVILLE FL 32201
(904) 353-5959 OFC
(904) 353-6211 FAX
E-MAIL: SICKLEJAX@aol.com
L. JEROME SPATES, PRESIDENT


SCDAA - DADE COUNTY
MIAMI COMPREHENSIVE SICKLE CELL CENTER
794 NW 18TH ST
MIAMI FL 33136
(305) 243-6924 OFC
(305) 324-6785 FAX
E-MAIL: amack@mednet.med.miami.edu
ASTRID MACK, PH.D, EXECUTIVE DIRECTOR

SCDAA – ESCAMBIA
PO BOX 9132
PENSACOLA FL 32513 - 9132
(850) 434-6092 OFC

SCDAA – ST PETERSBURG
PO BOX 14141
ST PETERSBURG FL 33733
(727) 896-2355 OFC
(727) 893-7288 FAX – c/o ENOCH DAVIS CENTER
WEBSITE: www.sicklecelldisease.org/stpetersburg.htm
E-MAIL: sicklecell1@excite.com
MARY MURPH, PRESIDENT

SCA OF HILLSBOROUGH COUNTY
PO BOX 310364 (MAILING ADDRESS)
TAMPA FL 33680
(813) 247-5999 OFC
(813) 247-1543 FAX
E-MAIL: far9155@aol.com
FRANK REDDICK, PRESIDENT


SCDAA – PALM BEACH COUNTY FLORIDA CHAPTER
1600 N AUSTRALIAN AVE
WEST PALM BEACH FL 33407-5621
(561) 833-3113 OFC
(561) 659-4505 FAX
YVETTE L. COURSEY, DPA., EXECUTIVE DIRECTOR

Georgia

The Georgia Comprehensive Sickle Cell Center Grady Health System, Grady Hospital
80 Butler Street, S.E. P.O. Box 109 Atlanta, GA 30335 phone 404-616-3572 Fax 404-616-5998 James R. Eckman, M.D., Director

Childrens Health Care of Atlanta - CHOA Website for Sickle Cell at http://www.choa.org/default.aspx?id=2365 
- Atlanta Support, clinical care, and patient stories.General Information, appointments, referrals, and consultations: 404-315-3151 
Children’s at Scottish Rite  General Information and Appointments 404-257-3240 
Referral and Consultation 404-202-2860 

Augusta Sickle Cell Center Adult Sickle Cell Clinic Medical College of Georgia - Dr. Abdullah Kutlar,  Telephone: (706) 721-2171 FF-100 FAX: (706) 721-2171 Augusta, GA 30912-3600 http://www.mcg.edu/centers/sicklecell/

Pediatric Sickle Cell Service Children's Medical Center HF1007 Augusta, GA 30912-3730 Dr. K. M. McKie,Dr. Virgil McKie Telephone: (706) 721-0175FAX: (706) 721-2643 http://www.mcg.edu/centers/sicklecell/

Savannah - Backus Children's Hospital of Memorial Health University Medical Center.  Lead Hematologist Dr. Trib Vat. The Sickle Cell nurse's name is Sandra McDowell-912-350-3396. Web http://www.memorialhealth.com/backus/specialty_hematology.html

Albany Sickle Cell Clinic Mattie Hill Phoebe Putney Hospital P.O. Box 1828 Albany, GA 31703 Telephone: (912) 430-4595

Memorial Medical Center Dr. Martin Greenberg 4700 Waters Avenue Savannah, GA 31404 Dr. Richard Shore Pediatric Hematologist/Oncologist Telephone: (912) 350-8191 Telephone: (912) 350-8015

Public Health Department Pearl Spaulding Sickle Cell Information 1602 Drayton Street Savannah, GA 31401 Telephone: (912) 651-2583

Public Health Dept. Connie Barefield, RN Sickle Cell Clinic 1720 Reynolds Street Waycross, GA 31502 Telephone: (912) 285-6304

Public Health Dept. Debbie Williamson ,Sickle Cell Clinic 1609 Newcastle Street Brunswick, GA 31521 Telephone: (912) 264-3907 FAX: (912) 262-2315

Public Health Dept. Lisa Thomas P.O. Box 5147 Valdosta, GA 31603 Telephone: (912) 245-4310

SICKLE CELL FOUNDATION OF GEORGIA
2391 BENJAMIN E MAYS DR SW
ATLANTA GA 30311
(404) 755-1641 OFC
(404) 755-7955 FAX
(800) 326-5287 GENERAL PUBLIC
E-MAIL: geninfo@sicklecellatlaga.org
WEBSITE: www.sicklecellatlaga.org
D. JEAN BRANNAN, PRESIDENT/CEO

Hawaii

Tripler Army Medical Center Sickle Cell Disease Center Honolulu, Hawaii 96859-5000 Phone: (808) 433-6661 Services for: adults

Illinois

Chicago - Ronald Huffman MD Chief Hematology-Oncology Univ. of Illinois College of Medicine 900 South Ashland Ave Chicago, IL 60607

Chicago - Division of Hematology/Oncology Children's Memorial Hospital
2300 Children's Plaza, #30 Chicago, IL 60614-3394 Phone 773.880.4562. Web http://www.childrensmemorial.org/depts/cancer/specialty_programs.asp#sickle

Sickle Cell Disease Association Of Illinois 
200 N MICHIGAN AVE STE 605
CHICAGO IL 60601-5980
(312) 345-1100 OFC
(312) 325-1103 FAX
E-MAIL: sickle@sicklecelldisease-il.org
WEBSITE: www.sicklecelldisease-il.org
HOWARD D ANDERSON, PRESIDENT

Chicago - Sickle Cell Center Univ. of Illinois at Chicago Medical Center, Sickle Cell Center - Oncology Care Center  1801 W. Taylor, 1E (Adult) 1801 W. Taylor, 2E (Pediatrics) Chicago, Illinois 60612  Mail: 840 South Wood St. M-C787 Chicago, IL 60612 (312)-996-5680 -  Web  http://www.uillinoismedcenter.org

 Indiana

The Indiana Hemophilia & Thrombosis Center, Inc. 8402 Harcourt Road, Suite 420 Indianapolis, IN 46260 317-871.0011  Fax: 317-871-0010 http://www.ihtc.org/

NORTHWEST INDIANA SICKLE CELL FOUNDATION
4801 W FIFTH AVE
GARY IN 46406
(219) 949-5310 OFC
(219) 949-2151 FAX
BEATCHRE STRONG, EXECUTIVE DIRECTOR

Kansas

SCDAA – URIEL OWENS
PO BOX 171371
KANSAS CITY KS 66117
650 MINNESOTA AVE - 2nd FLOOR
KANSAS CITY KS 66101
(913) 621-1713 OFC
(913) 371-8522 FAX
E-MAIL: kirkwood@coop.crn.org
WEBSITE: www.crn.org/sicklecwy
NOAH KIRKWOOD, PRESIDENT

Kentucky

Dr Bertalone’s Practice Pediatric Oncology Associates: Dr. Raj, Diane Burnett, PNP 601 South Floyd Street Suite 403 Louisville, KY. 40203 (502) 629-7750 (502) 629-7751 (502) 629-7755 Nurse’s Line Fax (502) 629-7784 Dr. Bertalone Office: 511 Kosair Pediatric Charities Suite 445 Louisville, KY. 40202

Jesse Harris, Chairperson Labor and Community United for Gospel Music For Sickle Cell Disease  3330 Pinecroft Drive Louisville, Ky. 40219-3055phone  (502) 741-7842  (1-800-443-5191)       Fax (502) 582-5291  E-mail: jharris@ufcw227.org

 Kenneth Bates: President - Christian County Sickle Cell Foundation-Christian County Sickle Cell Foundation, P.O. Box 1079, 604 E. 2nd Street
Hopkinsville, KY 42240-1079 phone (270) 885-0870 (270) 839-2950 E-mail: drbates@bellsouth.net E-mail: Slblood@bellsouth.net

University of Kentucky Pediatric Hematology/Oncology -  740 Limestone Street (Room J457)Lexington, KY. 40536 phone (859) 323-5694 (859) 323-8611

 Dr. Vivek Sharma (Adult Sickle Cell Patients) Medical Oncology James Graham Brown Cancer Center 529 South Jackson Street Louisville, KY. 40202 Phone (502) 562-4370

Sickle Cell Association of Kentuckiana (SCAK)- Located on 201 East Jefferson Street Ste. 120 Louisville, KY 40202. (502) 569-2070. Email address: thescak@yahoo.com  Website: http://thescak.org  Provides patient services,outreach, support, education and awareness, medical collaboration. Provides monthly committee meetings and bi-monthly activities for sickle cell patients. (Chair- Tyra Saddler, Vice-chair-Daphne Matthews-Johnson, Treasurer- Phil Hobbs, Secretary- Denise Matthews, Financial Secretary- Da-net Jarmon)

SCASG- Sickle Cell Anemia Support Group- Monthly support group meetings held at St. Stephen's Church on 15th and Kentucky Street within the Family Life Center 3rd Floor. Meetings are every 3rd Saturday of the month from 1- 2:30pm. Please RSVP to meetings by emailing dmatthe23@yahoo.com or leave a message (502) 386-6008.
President-Daphne Matthews-Johnson, Vice-President- Danet Jarmon, Secretary- Denise Matthews

Louisiana

Sickle Cell Center of Southern Louisiana Tulane Univ. School of Med. 1430 Tulane Avenue New Orleans, LA 70112 Dr. Charles Scher, Jeanne Johnson Telephone: (504) 588-5413

LSU New Orleans Sickle Cell Clinic at Med. Center of Louisiana at NOLA (Adult) LSU School of Medicine 1542 Tulane Avenue, Room 604-K New Orleans, LA 70112 Telephone: (504) 568-5843 Telephone: (504) 568-4561; 568-3181 Dr. R. P. Warrier,Dr. Renee Gardner, Dr. Robert Veith

Children's Hospital Sickle Cell Clinic 200 Henry Clay Avenue New Orleans, LA 70118 Telephone: (504) 896-9740Dr. R. P. Warrier, Dr. David Ode

Moss Regional Hospital 1000 Walters Street Lake Charles, LA 70605 Telephone: (318) 475-8100 Dr. R. P. Warrier, Dr. David Ode

E. K. Long Sickle Cell Clinic Earl K. Long Medical Center 5825 Airline Highway Baton Rouge, LA 70805 Dr. Sheila Moore Telephone: (504) 358-1065

Sickle Cell Center of Northern Louisiana LSU Medical School P.O. Box 33932 Shreveport, LA 71130-3932 Dr. Majed Jerordi Telephone: (318) 675-7267

Satellite Clinics: Alexandria CSHS Office (318) 487-5266 Monroe CSHS Office (318) 362-5211

UMC Sickle Cell Clinic Univeristy Medical Center P.O Box 4016C Lafayette, LA 70502 Dr. Richard Howe Telephone: (318) 261-6179

BATON ROUGE SICKLE CELL ANEMIA FOUNDATION
2301 NORTH BLVD
BATON ROUGE LA 70806
(504) 346-8434 OFC
(504) 334-0628 FAX
LEONARD BLACK, EXECUTIVE DIRECTOR

NORTHWEST LOUISIANA SICKLE CELL ANEMIA
TECHNICAL RESOURCE FOUNDATION
PO BOX 1165 (MAILING ADDRESS)
MONROE LA 71210
1604 WINNSBORO RD
MONROE LA 71202
(318) 322-0896 OFC
(318) 387-4740 FAX
E MAIL: sickle@bayou.com
WEBSITE: www.nesicklecell.com
VIVIAN R. HESTER, EXECUTIVE DIRECTOR

SCDAA – NORTHWEST LOUISIANA
2200 MILAM ST, RM 9
SHREVEPORT LA 71103
(318) 226-8975 OFC
(318) 226-8050 FAX
LILLIE BRADFORD, EDUCATIONAL COORDINATOR

SICKLE CELL ANEMIA RESEARCH FOUNDATION
PO BOX 206 (MAILING ADDRESS)
ALEXANDRIA LA 71309
2625 THIRD ST
ALEXANDRIA LA 71302
(318) 487-8019 OFC
(318) 487-9990 FAX
(800) 742-5957 GENERAL PUBLIC
E-MAIL ADD: scarf@sicklecelldisease.org
WEBSITE: www.sicklecelldisease.org/alexandria.htm
ROSIA G. METOYER, EXECUTIVE DIRECTOR


Maryland

Baltimore, MD - Johns Hopkins Hospital 600 North Wolfe St. Room CMSC-2-116 Baltimore MD 21287, George Dover, MD Chauirman Dept of Pediatrics. 410-955-5976 for Adults: http://www.sicklecellcenter.org/index.html 410-955-3142

Massachusetts

Comprehensive Sickle cell center, Boston City Hospital, 818 Harrison Avenue, FGH-2, Boston, Massachusetts 02118, (617) 5345727, (617) 534-5739 (FAX), Lillian EC. McMahon, M.D., Director

Sickle Cell Program, Children's Hospital Boston, 300 Longwood Avenue,
Boston, MA 02115. Clinic Appointments 617-355-8246, Fax 617-730-0641;
Matthew Heeney M.D. Sickle Cell Program Director (617) 355-7700;
Susan Kurth, P.N.P., Sickle Cell Nurse Practitioner (617)355-8304.
Boston Medical Center, Pediatric Hematology Program
For sickle cell patients up to age 21 years
Phone is 617-414-5725 (after-hours 617-730-3010)
Boston Comprehensive Sickle Cell Center Martin Steinberg, M.D. Director, One Boston Medical Center Place, FGH-2 Boston MA 02118 Voice: (617) 414-1020 (Steinberg) Fax: (617) 414-1021 (Steinberg) Email: msteinberg@medicine.bumc.bu.edu Web http://www.bu.edu/sicklecell/


Adult Sickle Cell Program, Brigham and Women's Hospital, Division of Hematology, 75 Francis Street, Boston MA 02115. Appointments 617-732-6089, Fax 617-732-5706; to contact either Maureen Okam MD, Sickle Cell Program Director or Elyse Mandell, APRN, BC, Nurse Practitioner please call 617-732-5190

Children's Hospital Boston, Sickle Cell Program 300 Longwood Avenue, Boston, MA 02115.  Clinic Appointments 617-355-8246, Fax 617-730-0641;
Matthew Heeney M.D. Sickle Cell Program Director (617) 355-7700.
http://www.childrenshospital.org/clinicalservices/Site1973/mainpageS1973P0.html

 New England Pediatric Sickle Cell Consortium Website http://www.nepscc.org/ This has links to all the New England Pediatric Sickle Centers.

Michigan

Sickle Cell Center, Wayne State University School of Medicine Children's Hospital of Michigan 3901 Beaubien Boulevard, Detroit, MI 48201 phone313-577-1546 Charles F. Whitten, M.D., Director

Pediatric Sickle Cell Clinic,   Hurley Medical Center, One Hurley Plaza Flint, MI 48503 Phone 810-424-4970 fax 810-762-7240

Sickle Cell Clinic - Children's Hospital 3901 Beaubien Blvd Detroit, MI ,Sandy Bond PNP

C.S. Mott Children's Hospital 1500 E. Medical Center Drive Ann Arbor, Michigan 48109-0286  734-936-4000   http://www.med.umich.edu/sicklecell/

http://www.med.umich.edu/mott/news/newsletter/spring04/p10.html

Comprehensive Pediatric Sickle Cell Clinic in Kalamazoo Dr. Len Mattano, Director, The Children's Hospital @ Bronson 601 John Street, Suite E-300 Kalamazoo, Michigan 49007  Phone:  616-341-6350 http://www.kcms.msu.edu/patients/clinics/pedshemonc/sicklecell.html

SCDAA – MICHIGAN
18516 JAMES COUZENS HWY
DETROIT MI 48235
(313) 864-4406 OFC
(313) 864-6669 FAX
(800) 842-0973 GENERAL PUBLIC
JETOHN THOMAS, EXECUTIVE DIRECTOR

Minnesota

Minneapolis - Robert Hebbel, MD Department of Internal Medicine/Hematology 
 University of Minnesota Box 480-UMHC Harvard Street at E. River Road, Minneapolis, MN 55455 phone 612-624-6104 Phone 612-624-0123 
Jeanne Harkness, RN (Hematology Nurse Clinician)Fax 612-625-6919  http://www.dept.med.umn.edu/medicine/Clinical_services/Sickle_Cell_Disease_Program/body_sickle_cell_disease_program.html

Minneapolis - Children's Hospitals and Clinics-Minneapolis, Pediatric Hematology/Oncology Clinic, 2525 Chicago Avenue South, Suite 4150
Minneapolis, MN 55404 phone 612-813-5940, Stephen Nelson, MD

St. Paul - Children's Hospitals and Clinics- St. Paul Pediatric Hematology/Oncology Clinic, 345 North Smith Avenue,  St. Paul, MN 55102
Phone: 651-220-6732, David Slomiany, MD

Mississippi

University of Mississippi Medical Center 2500 North State Street,
Jackson, MS 39216, Carolyn Bigelow, MD, Associate Professor of
Medicine, Arleen Anderson, RN (601)984-5615 or
(601)984-5548, after hours or weekends call (601)984-1000 and ask for
the hematologist on call

University of Mississippi Medical Center Pediatric Sickle Cell Clinic
2500 North State Street, Jackson, MS 39216 Rathi V. Iyer, MD,
Professor of Pediatrics, Teresa Walker, RN, Cindy Kendig, RN, Carole
Ward, RN, (601)984-5225 or (601984-5223, after hours or weekends call 
(601)984-1000 and ask for the hematologist on call

Jackson County Association for Sickle Cell Disease
(Mailing Address)P.O. Box 2517
Pascagoula, MS 39569-2517
3207 Magnolia Street
  Suite 309
Pascagoula, MS 39567
Sharon B. Haynes, Executive Director
   ssickle1@aol.com 

228.769.6516 - Office
228.769.1015 - Fax
Hrs:  8:00am – 5:00pm

Missouri

University of Missouri, Children’s Hospital, Department of Child Health, Pediatric Hematology/Oncology, 1 Hospital Drive, Columbia, MO 65212, LaJuan Chambers, MD-Medical Director for pediatrics. Adults is Michael Perry, MD at Ellis Fischel and his phone number is 573-882-8552 . Nurse is now Elizabeth Nelson, RN Nurse Clinician. Phone 573)882-7967 Fax 573)884-4277

The Children’s Mercy Hospital, 2401 Gillham Road, Kansas City, MO 64108 Gerald M. Woods, MD, Medical Director, Section of Hematology/Oncology Julie Routhieaux, RN (Nurse Specialist) Phone: 816-234-3265 Fax: 816-855-1700

Washington University School of Medicine, St. Louis Children’s Hospital, One Children’s Place, St. Louis, MO 63110 Michael R. DeBaun, MD, Medical Director, Assistant Professor Pediatrics, Division of Hematology/Oncology, and Biostatistics, Terianne Lindsey, RN (Clinical Nurse Specialist) Phone: 314-286-1165 Fax: 314-286-1188

Truman Medical Center, Comprehensive Adult Center, 2301 Holmes, Kansas City, MO 64108 Linda Johnson, MD, Medical Director, Rachel Rill, RN (Nurse Clinician) Phone: 816-235-1914 Fax: 816-235-5538 

Truman Medical Center Sickle Cell Disease Clinic Kansas City MO

contact us at 816-404-4290. Web: http://www.trumed.org/sections/content.aspx?SID=+161

Washington University School of Medicine, Barnes Hospital, Adult Comprehensive Center, Morey Blinder, MD, Medical Director, Kim Williams, RN (Nurse Clinician) Phone: 314-362-8808 Fax: 314-362-8813

SCDAA

Kansas City
1734 East 63rd Street

Suite 600E
Kansas City, MO 64110
Jim Collier, Executive Director

SCDAAKC@aol.com

816.444.5600 - Office
816.444.7907 - Fax
800.455.6409 - Toll Free
Hrs:  9:00am – 3:00pm

www.kcsicklecell.org


Nevada

UNSOM Sickle Cell Disease Center Dept. of Pediatrics/Genetics 2040 W. Charleston Blvd., #402 Las Vegas, Nevada 89102 Phone: (702) 671-2231 Fax: (702) 385-7719 Services for: adults

New Jersey

Tomorrow's Children's Institute at http://www.tcikids.org Hackensack University Medical Center offering sickle cell services,TCD screening, bone marrow transplant and support groups. For information 201-996-5437 FAX 201-487-7340, email: info@tcikids.com

State list of clinics at http://www.state.nj.us/health/fhs/sicklecell/treatment.htm

Children's Hospital at St. Joseph's Hospital and Medical Center Dept. of Pediatric Hematology, 703 Main Street. Xavier 700, Patterson, NJ, 07503-2691, phone 973-754-3230 contact: Jane Watson LSW or Dana Furman, Child Life Specialist. This center offers sickle cell services and a patient support group.

Robert Wood Johnson University Hospital One RWJ Place,
P.O. Box 19 Medical Education Building, Room 376
New Brunswick, NJ 08903-0019 USA Joseph E. Eid, MD 
Assistant Professor, Associate Director of the
Hematology/Oncology Fellowship Program UMDNJ-RWJMS
Medicine, Division of Hematology <eidje@umdnj.edu>
Fax: 732-235-7115 Work: 732-235-7619 web http://umg.umdnj.edu/public/directory/medicine/hemat/rcscc.asp

Children's Hospital of New Jersey at Newark Beth Israel Medical Center
Valerie Fund Children's Center 201 Lyons Avenue L5
Newark, NJ 07112-2094 (973) 926-7161 

Children's Hospital of Philadelphia  New Jersey Section of Hematology/Oncology
Specialty Care Center 1012 Laurel Oak Road
Voorhees, NJ 08043 (856) 435-7502 

The Children's Hospital at  St. Joseph's Hospital & Medical Center
Department of Pediatric Hematology/Oncology 703 Main Street, Xavier 700
Paterson, NJ 07503-2691 (973) 977-2000 

Hackensack University Medical Center Tomorrow's Children's Institute
WFAN Building, First Floor 30 Prospect Avenue
Hackensack, NJ 07601  (201) 996-5437 

Jersey City Medical Center Division of Pediatric Hematology/Oncology
50 Baldwin Avenue, Clinic Building  Jersey City, NJ 07304-3199
(201) 915-2462 

Jersey Shore Medical Center Pediatric Hematology/Oncology
1945 Corlies Avenue Neptune, NJ 07753-4896
(732) 776-4860 

Monmouth Medical Center The Valerie Fund Children's Center 
Affiliated with the Children's Hospital of  New Jersey at Newark Beth
Israel Medical Center 300 Second Avenue Long Branch, NJ 07740 
(732) 923-7455 

St. Barnabas Medical Center Valerie Fund Children's Center
94 Old Short Hills Road  East Wing, First Floor 
Livingston, NJ 07039 (973) 322-2800 

Saint Peter's University Hospital Division of Pediatric Hematology/Oncology
254 Easton Avenue New Brunswick, NJ 08901
(732) 745-6674 

UMDNJ/RWJ Medical School  The Institute for Children with Cancer 
and Blood Disorders The Cancer Institute of New Jersey
195 Little Albany Street New Brunswick, NJ 08901
(732) 235-7898  ** Satellites - Capital Health System @ Mercer
Trenton, NJ  (609) 394-4233  Plainfield Health Center (732) 235-7898 

UMDNJ/University Hospital Division of Pediatric Hematology/Oncology 
UHF 342, 150 Bergen Street, Newark, NJ 07103
(973) 972-1011

SCDAA – NEW JERSEY
PO BOX 3804 (MAILING ADDRESS)
JERSEY CITY NJ 07303
(201) 432-8459 OFC
(201) 435-9753 FAX

New Mexico

The Sickle Cell Council of New Mexico, Inc at http://www.sicklecellnm.org/ at Telephone 505 254-9550,  Fax 505 254-9642 Postal Address: 7800 Marble Ave, NE Suite 2, Albuquerque, NM 87110 Electronic Mail info@sicklecellnm.org

New York

Comprehensive Sickle Cell Center, Montefiore Hospital Medical Center - Rosenthal Main 111 East 210th Street, Bronx, New York 10467, (718) 430-2088 (718) 824-3153 (FAX), Ronald L. Nagel, M.D.,Director, Lennette Benjamin, MD , Clinical Director (718) 920-7373

Comprehensive Sickle Cell Center, College of Physicians & Surgeons, Columbia University, 630 West 168th Street; New York, New York 10032; (212) 305-6531, (212) 305-5848 (FAX), Sergio Piomelli, M.D., Director

Comprehensive Sickle Cell Center Harlem Hospital , Columbia University 506 Lenox Ave Suite 6146 New York, NY 10037 Jeanne A. Smith MD 212-939-1701

Brooklyn, NY - The Interfaith Medical Center Sickle Cell Program is unique, in that comprehensive care is provided to both pediatric and adult patients in the same facility, by a caring and dedicated patient care team in an intimate setting.  Interfaith Medical Center is located at 1545 Atlantic Ave, Brooklyn, NY., 11213

Mailing Address :
The Bishop Orris G. Walker, Jr. Health Care Center
528 Prospect Place
Brooklyn, NY 11238

For Appointments: (718) 613-6875 Fax: (718) 613-6984
Website: http://www.sctpn.org/  Email: mblackwood@interfaithmedical.com

Sickle Cell Services Department of Pediatric Haematology, Harkness Pavilion, 180 Fort Washington, FL 5 New York, NY 10032 212-305-2466 Brenda Martin, C.P.N.P.

Brooklyn, NY - Brookdale’s Comprehensive Pediatric Sickle cell Program  Community-Based Sickle Cell Project Brookdale University Hospital and Medical Center, Suite # 346, One Brookdale Plaza, Brooklyn, NY 11212 Tel: (718) 240-5904 e-mail: kviswana@brookdale.edu  or vdademuj@brookdale.edu

Provides follow up and genetic counseling of newborns with sickle cell trait and disease, Comprehensive care to children and adolescents, TCD screening, parent and teen support groups and workshops.  Community based project is HRSA funded and provides patient, professional and community education and outreach.  State funding for comprehensive care program.

STAFF: Kusum Viswanathan, MD, Director, Pediatric Hematology/Oncology, Donna Boruchov, MD, Pediatric Hematology/Oncology, Yana Pennant, LMSW- Care Coordinator Verna DuBerry Ademu-John,  Project Coordinator, Community-Based Sickle Cell  Project (HRSA Grant), Lynette Smith- Health Educator, Jennifer Lane- Data Coordinator, Victoria Martir- Office Manager

Brooklyn, New York, State University of New York Scott T. Miller, M.D. Kathy Rey Scott Miller, M.D. 450 Clarkston Ave Box 49, Brooklyn, NY 11203 Phone 718-270-1692 http://www.hscbklyn.edu/SUNY/Research/PSCP/smseelig.htm

Comprehensive Sickle Cell Program, St. Lukes Roosevelt Hospital Center, 111 Amsterdam Ave, New York, NY 10025, Doris Wethers, MD Director 212-523-5655

New York, New York, Columbia Presbyterian Medical Center Ann Hurlet-Jensen, M.D. Brenda Martin, Sam Trocio

Sickle Cell Program, New York Methodist Hospital 506 6th Street Brooklyn, NY 11215, Rita Bellevue, MD, Director

Comprehensive Sickle Cell Treatment Center at the Children's Hospital at 
Albany Medical Center, Pediatric Hematology/Oncology, MC-14, 43 New Scotland  Avenue, Albany, New York 12208. (518) 262-5513. Contact person: Richard  Sills, M.D., Kelly Clickner, R.N. 

Schneider Children's Hospital  - Division of Pediatric Hematology/Oncology and Stem Cell Transplant  269-01 76th Avenue, Room 255
New Hyde Park, NY 11040
Tel: 718-470-3460
Fax: 718-343-4642
website: http://www.schneiderchildrenshospital.org/sch_hema_sickle.html

Staff:  Banu Aygun, M.D.
Deepa Manwani, M.D.
Jane Moore, RN, CPNP,
Ellen Muir, CNS, Coordinator
Andrea Goldson, ACSW (Social Worker)
William A. Molette, BA (Genetic Counselor)

The Comprehensive Sickle Cell Clinic, Golisano Children's Hospital at Strong University of Rochester Rochester NY 14642 Norma Lerner M.D. is the medical director and Bridgit Platania R.N., is the nurse coordinator of the clinic. To make an appointment call (716)275-2981. web http://www.urmc.rochester.edu/genetics/SickleClinic.htm

Buffalo - Childrens Sickle Cell Clinic Children's Hospital of Buffalo web : http://www.chob.edu/Clinical_Services/sickle_cell.html Mauro Grossi, MD
(716) 878-7349 mgrossi@upa.chob.edu Laurie Valvo, PNP (716) 878-7116
Hematology/Oncology Division

SCDAA – BUFFALO & WESTERN NEW YORK
1048 KENSINGTON AVE.
BUFFALO NY 14215
(716) 832-3044 OFC
(716) 832-0619 FAX
AVIVA MERRITT, EXECUTIVE DIRECTOR


HARLEM HOSPITAL 
COMPREHENSIVE SICKLE CELL CENTER
506 LENNOX AVE
NEW YORK NY 10037-1802
(212) 939-1701 OFC
(212) 939-4015 FAX
TAMARA NEW, M.D., DIRECTOR

North Carolina

Statistical Support Center Biostatistics; University of North Carolina at Chapel Hill; Campus Box 7400 Chapel Hill, North Carolina 27599-7400 (919) 966-5484 (919) 962-5771 (FAX); Ronald W. Helms, Ph.D.,Director

Sickle Cell Disease Association of the Piedmont (SCDAP) PO Box 20964 Greensboro NC 27420 phone:(336) 274-1507 / FAX: 275-7984 E-Mail: SCDAP@aol.com
Website:
http://www.greensboro.com/sickle

Duke Univ./U.N.C. Sickle Cell Center, Box 3939 Duke University Medical Center,Durham, NC 27710 phone (Adults) 919-684-6464 Sickle Cell Clinic (for Children)  684-3401   Marilyn J. Telen, M.D., Director Web: http://www.duke.edu/deptdir/Comprehensive_Sickle_Cell_Center_(for_Adults).html and  http://cancer.duke.edu/pho/sicklecell.asp for Kids

Ashville - Mission St. Joseph Heath System - The Ruth and Billy Graham Children's Health Center - Sickle Cell Program 50 Doctors Drive, Suite 105 Ashville, NC 28801, Phone 828-213-1812, Fax 828-213-1803 Contact Susan Maultsby RN Program Coordinator susan.Maultsby@msj.org  Web http://www.msj.org/sickle_cell.html

Greenville, North Carolina, East Carolina University School of Medicine Beatrice A. Files-McConnell, M.D. Laura Hoey

Charlotte, NC - Presbyterian Hospital Pediatric Sickle Cell Program
Presbyterian Blume Pediatric Hematology/Oncology Clinic
1712 East 4th Street, Charlotte, NC 28233
(704) 384-1900
Dr. Mark Mogul, Dr. Richard Parmley, Barbara Mathis, NP

Charlotte, NC - Presbyterian Hospital Adult Sickle Cell Program
Presbyterian Medical Tower
1718 Randolph Road, Suite 105, Charlotte, NC 28233
(704) 384-4139 or (704) 384-7448
Dr. Walter Johnson

Dr. Christine Johnson, Debbie Boger, RN Telephone: (910) 716-4320 Department of Pediatrics Bowman Gray School of Medicine Winston-Salem, NC 27103 other phone (910) 716-4324

University of North Carolina Comprehensive Sickle Cell Program Dept. of Medical Hematology CB# 7035 UNC-Chapel Hill Chapel Hill, NC 27599-7035 Dr. Eugene Orringer Telephone: (919) 966-2467 http://verne.med.unc.edu/sickle/

Dr. Herbert Cooper, Cherie Peters, Program Admin/Coord. Pediatric Hematologist Telephone: Department of Pediatrics 1-800-476-6876 or (919) 966-2468
CB #7220, UNC, Chapel Hill, NC 27599-7220 Telephone: (919) 966-1178

Dr. Rupa Redding-Lalinger Telephone: (919) 966-1178 Pediatric Hematologist Department of Pediatrics CB# 7220, UNC Chapel Hill Chapel Hill, NC 27599-7220

Dr. Eugene Orringer Telephone: (919) 966-2467 Adult Hematologist General Clinical Research Center Room 3005 APCF CB #7035, UNC Hospitals Chapel Hill, NC 37599-7600 email epo@med.unc.edu 

Duke University Dr. Thomas Kinney Comprehensive Sickle Cell Center Durham, NC 27708 Telephone: (919) 684-6464 Telephone: (919) 684-3401 http://www.sicklecell.mc.duke.edu/

East Carolina University School of Medicine PCMH, Room 288W Department of Pediatrics Hematology/Oncology Greenville, NC 27858 Dr. C. W. Daeschner (Hematologist) Telephone: (919) 551-4676 mTelephone: (919) 816-5405

Carolinas Medical Center Department of Pediatrics P.O. Box 32861 Charlotte, NC 28232
Tammy Sherrod, RN,C (pediatric clients, newborn to 18)
Telephone: (704) 355-2709; (800) 275-6302; FAX: (704) 355-5800
Dr. Richard Parmley, Pediatric Hematologist
Telephone: (704) 355-2709; (800) 275-6302; FAX: (704) 355-5800
Mary Dewalt, RN, BSN (adult clients, 18 and older)
Telephone: (704) 355-3783; FAX: (704) 355-5429; EMAIL
<mailto:mdewalt@carolinas.org> mdewalt@carolinas.org
Dr. Charles H. Packman, Adult Hematologist
Telephone: (704) 355-3165; FAX: (704) 355-7626

Sickle Cell Regional Network, 821 Baxter Street (Suite 312) 
Charlotte, NC 28202-2713
(704) 332-4184
(704) 332-2246 fax
(800) 435-6004 (toll free)
Executive Director: Patricia A. Lambright

Contact James Rogers, Jr., Educator/Counselor for more information, patient networks and care coordination. 
He serves the Boone, Wikesboro, Mt. Airy, Concord, Thomasville, Monroe, Salisbury and Statesville
james.rogers@ncmail.net

Operation Sickle Cell, Inc.
2409 Murchison Road
Fayetteville, NC 28301
(910) 488-6118 Office
(910) 488-6810 Fax
E-mail Address: osc@nc.rr.com
Wesite Address: www.sicklecellnc.org

Mary E. McAllister, Executive Director

Sickle Cell Regional Network (SCDASP)
821 Baxter Street

Suite 312
Charlotte, NC 28202
Patricia Lambright, Executive Director

plambright@sc-cnc.org

704.332.4184 - Office
704.332.2246 - Fax
800.435.6004 - Toll Free
Hrs:  9:30am – 5:30pm

SCDAA

Eastern North Carolina Chapter
(Mailing Address)

P.O. Box 5253
Jacksonville, NC 28540

344 Center Street
Jacksonville, NC 28546
Marcia M. Wright, Executive Director
sickle@bizec.rr.com

mwright@bizec.rr.com

910.346.2510 - Office
910.346.2614 - Fax
800.826.1314 - Toll Free (NC Only)
Hrs:   9:00am – 5:00pm

Ohio

Comprehensive Sickle Cell Center, Division of Hematology/Oncology, Children’s Hospital Medical Center, 3333 Burnet Avenue, Cincinnati, Ohio 45229-3039; (513) 636-4541, (513) 636-5562 (FAX); Clinton H. Joiner, M.D., Ph.D., Director Website: http://www.cincinnatichildrens.com/programs_services/108/

The U C   Barrett Cancer Center Adult Sickle Cell Program, 234 Goodman Street Cincinnati, OH 45219 ML 0501  Rm2003, Dr. Richard Snyder (513) 584-6928 Doris Holton, Manager Barrett Cancer Center ML 0501 The University Hospital Telephone 513 584-3466 Fax 513 584-0588 Pager 513 577-0085 

Dayton  - West Central Ohio Comprehensive Sickle Cell Center, The Children's Medical Center, 1 Children's Plaza, Dayton, Ohio 45404-1815, Telephone (937) 641-3111 Fax (937) 641-5878. Medical Director: Mukund Dole, MD FAAP Nurse Coordinator, Cathy Sylvester, RN and Outreach Coordinator, Saundra Thurman, LSW www.childrensdayton.org

Akron, Ohio-Ohio Region VI Sickle Cell Program, Akron Children's Hospital,
Division of Pediatric Hematology/Oncology, One Perkins Square, Akron, Ohio
44308, Telephone: (330)-543-8580 or 1-800-262-0333 Ext. 8580, Fax (330)
543-3836.  Medical Director: Jeffrey D. Hord, M.D.,Nurse Clinician: Carol
Shaw R.N., Program Coordinator/Newborn Screen Counselor: LaTonya L. Lewis,
Outreach Educator: Judy Griggs.  www.akronchildrens.org

Forum Health Sickle Cell Program, Pediatric and Adult Sickle Cell Care, Pediatric Hematology/Oncology, 500 Gypsy Lane, Youngstown, OH 44501, Phone 330-740-3955, Fax 330-740-3861 Medical Director: Ayman Saleh, MD FAAP, Sickle Cell Coordinator: Carla Vadala, BSN, RN.

Comprehensive Pediatric Sickle Cell Center, Children's Hospital of Columbus, 700 Children's Drive, Columbus, Ohio 43205 phone 614/722-3250 Program Coordinator: Sandra M. Steiner, MSSW LISW

Cleveland, Ohio Rainbow Babies and Children's Hospital Mary DeBarr, Brian Berman, M.D. 11100 Euclid Ave. Mather D-341, Cleveland, OH 44106-6019 phone 216-844-3345

American Sickle Cell Anemia Association P.O. Box 1971 10300 Carnegie Ave Cleveland, OH 44106 Phone: (216) 229-8600 Contact: Ira Bragg Fax: (216) 229-4500 email:irabragg@ascaa.org  website: http://www.ascaa.org/

SICKLE CELL AWARENESS GROUP OF GREATER CINCINNATI 
3770 READING RD
CINCINNATI OH 45229
(513) 281-4450 OFC
(513) 872-8812 FAX
E-MAIL: sicklecell@fuse.net
JUANITA H. LANE, INTERIM EXECUTIVE DIRECTOR

OHIO SICKLE CELL HEALTH AND ASSOCIATION
380 S FIFTH AVE SUITE G3
COLUMBUS OH 43215
(614) 228-0157 OFC
(614) 228-8089 FAX
E-MAIL: oscha@sicklecelldisease.org
WEBSITE: www.sicklecelldisease.org/ohio.htm
WENDY BERRY-WEST, EXECUTIVE DIRECTOR

Oklahoma 


SCDAA – TULSA OKLAHOMA
PO BOX 1314 (MAILING ADDRESS)
TULSA OK 74101
2764 N CINCINNATI
TULSA OK 74106
(918) 428-1974 OFC
(918) 428-1982 FAX
(800) 259-9989 GENERAL PUBLIC
E-MAIL: scdaao@sicklecelldisease.org
WEBSITE: www.sicklecelldisease.org/oklahoma.htm
CHERYL FREEMAN, EXECUTIVE DIRECTOR

Oregon

PORTLAND SICKLE CELL ANEMIA FOUNDATION 
PO BOX 11124 (MAILING ADDRESS)
PORTLAND OR 97211
3133 NE PRESCOTT
PORTLAND OR 97211
(503) 249-1366 OFC
(503) 284-9960 FAX
MARCIA TAYLOR, EXECUTIVE DIRECTOR

Pennsylvania

Comprehensive Sickle Cell Center, The Children’s Hospital of Philadelphia; 34th Street & Civic Center Boulevard, Philadelphia, Pennsylvania 19104; (215) 590-3423, (215) 590-2499 (FAX), Kwaku Ohene-Frempoug, M.D. Director Website: http://www.chop.edu/consumer/jsp/division/service.jsp?id=26687

Marian Anderson Comprehensive Sickle Cell Center
Lewis Hsu, MD, PhD, Interim Director,   St. Christopher's Hospital for Children, Drexel University College of Medicine, Nelson Pavilion Suite 2130, 3601 A Street, Philadelphia PA 19134 Appointments: (215) 427-5096 Fax: (215) 427-6884 Email: Lewis.Hsu@drexelmed.edu

Marian Anderson Sickle Cell Anemia Care and Research Center Marie J. Stuart, M.D. Director,  Thomas Jefferson University Hematology Division, Pediatrics Dept.  College Bldg., Suite 727 1025 Walnut Street Philadelphia PA 19107 Voice: (215) 955-9820 Fax: (215) 955-8011 Beeper: (215) 314-1887 Email: marie.stuart@mail.tju.edu

Pittsburgh- Children's Hospital of Pittsburgh 3705 Fifth Ave.Pittsburgh, PA 15213 Phone 412-692-7192   412-692-7693 Fax
Lakshmanan Krishnamurti, MD lakshmanan.krishnamurti@chp.edu
Director, Comprehensive Hemoglobinopathy Program
Associate Professor Division of Pediatric Hematology/Oncology/BMT 
 Adult services -  Enrico M Novelli, MD Medical Director Comprehensive Adult Sickle Cell Program
Department of Medicine, Division of Hematology/Oncology UPMC Cancer Pavilion
5150 Centre Avenue, Rm 461 Pittsburgh, PA 15232
412-648-6575, Fax: 412-648-6579 novellie@upmc.edu 

Sickle Cell Society, Inc. 7643 Frankstown Avenue  Pittsburgh, PA 15208  
Attn: Willard E. Thrasher  Volunteer Development Chairperson

SCDAA – PHILADELPHIA / DELAWARE VALLEY 
4601 MARKET ST 2nd FL
PHILADELPHIA PA 19139
(215) 471-8686 OFC
(215) 471-7441 FAX
STANLEY A SIMPKINS, EXECUTIVE DIRECTOR

Rhode Island

Rhode Island Hospital/Hasbro Children's Hospital 593 Eddy Street Providence, RI 02903 Betty L. Leef  MSN Sickle Cell and Thalasemia Coordinator email BLeef@lifespan.org  phone 401-444-8391 (O) 401-444-5241 (Clinic)
Dr. Anjulika Chawla MD, Pediatric Hematologist  401-444-5171 (O)

South Carolina

Charleston, South Carolina, Medical University of South Carolina Miguel R. Abboud, M.D. Kathy Jacques, Pediatric Sickle Cell Center 
Medical University of South Carolina 
165 Ashley Ave P.O. Box 250911 
Charleston, SC 29425 
(843)792-2264Website: http://www.muschealth.com/pscc/index.htm

Children's Hospital at Richland Memorial Hospital Center for Cancer & Blood Disorders Seven Medical Park, #203 Columbia, SC 29203 Dr. Robert Ettinger, Dr. Kevin McRedmond, Telephone: (803) 765-6484

Palmetto Richland Memorial Hospital  Children's Center for Cancer and
Blood Disorders  7 Richland Medical Park Drive, Suite 203  Columbia, S.C. 29203, 803-434-3533 

Pediatric Hematology/ Oncology Center Greenville Medical Center 890 Ferris Road, Suite 510 Greenville, SC 29605 Dr. James Hayes, Dr. Cary Stroud, Telephone: (803) 242-8898

Greenville Hospital System  Pediatric Hematology/Oncology Center 
900 West Faris Road  Greenville, SC 29605  864-455-8898 

LOUVENIA D. BARKSDALE SICKLE CELL ANEMIA FOUNDATION
PO BOX 191 (MAILING ADDRESS)
SPARTANBURG SC 29304
192 HARRIS PL
SPARTANBURG SC 29304
(864) 587-0021 OFC
(864) 583-2120 FAX
ROSALIND BROWN, EXECUTIVE DIRECTOR

Tennessee

Meharry Comprehensive Sickle Cell Center,1005 D. B. Todd Blvd., Box A-10 Nashville, TN 37208 phone 615-327-6763 Kristy Woods  M.D., Director

Memphis, Tennessee, St. Jude Children’s Research  Hospital Comprehensive Sickle Cell Center Winfred Wang, M.D. Director,  St. Jude Children’s Research Hospital Department of Hematology/Oncology 332 North Lauderdale Bldg R-6010 Mail Stop Code 763 Memphis, TN 38105 Voice: (901) 495-3497 Fax: (901) 495-2952 Email: Winfred.Wang@stjude.org Pediatric Hematology Center of Memphis, St. Jude Children's Research Hospital, 777 Washington Ave, Suite 345, Memphis, TN 38105. 866-269-6536 or 901-495-5670. Web: http://www.stjude.org/phecom

The Diggs Kraus Sickle Cell Center at The MED in Memphis TN (901)
545-8535  http://www.the-med.org/sickle.html

University of Tennessee Developmental and Genetics Center Box U-102, 1924 Alcoa Highway Knoxville, TN 37920 Shaun Elliot Telephone: (615) 544-9030

T. C. Thompson Children's Hospital 910 Blackford Street Chattanooga, TN 37402 Telephone: (615) 778-6011 Dr. Mando Bhakta

Diggs Kraus Center for Sickle Cell Disease, Contact: Dr. Loretta Bobo-Mosley, Director Vickie Brown, Staff Nurse Phone: (901) 545-8535 Address: 880 Madison Memphis, TN 38103

UNIVERSITY OF TENNESSEE 
MID-SOUTH SICKLE CELL CENTER
1 CHILDREN’S PLAZA
MEMPHIS TN 38103
(901) 572-6713 OFC
(901) 572-5211 FAX
E-MAIL: msscc@mem.net
GLORIA BRUNSON, DIRECTOR COMMUNITY AFFAIRS

Texas

Dallas, Texas – Southwestern Comprehensive Sickle Cell Center Pediatric Sickle Cell Disease Program, Children's Medical Center of Dallas 1935 Motor Street, Dallas, TX 75235

Email: sicklecell@utsw.edu  Pediatric Sickle Cell Disease Program phone number is 214-456-6102. Southwestern Comprehensive Sickle Cell Center phone number is 214-456-8716. The Pediatric Hem/Onc Doctor on call can be reached outside of regular office hours at 214-456-7000.

The University of Texas at Dallas Sickle Cell Disease Research Center (SCDRC)  http://www.utdallas.edu/research/sickle-cell/index.html -The Sickle Cell Disease Research Center’s mission is to actively and aggressively participate in the substantive development of basic research and training efforts to improve treatment options or cure sickle cell disease.

 

Sickle Cell Disease Association of Texas-Gulf Coast -
Sickle Cell Association Texas Gulf Coast 2626 South Loop West, Suite 245 Houston, Texas, 77054-2649 (713) 666-0300
e-mail: scatgc@sicklecell-texas.org A list of Houston area clinics and physicians is found at http://www.sicklecell-texas.org/refer.htm

SICKLE CELL DISEASE ASSOCIATION 2914 E. Rosedale St. Fort Worth, TX 76105
Phone: 817-534-5997 Fax: 817-534-6792 Website: http://www.ntws.net/dmaster/kkda73/scaf.htm

Fort Worth - Sickle Cell Program at Cook Children's
Medical Center should be directed to Timothy C. Griffin, M.D., Associate
Medical Director, Hematology Services. His office number is (817)
885-4020. Requests for educational material and other questions
regarding the program can be directed to the Sickle Cell nurse
coordinators, Sandra Manning and Karen McMinn, at (817) 885-4008 http://www.cookchildrens.org/CCH_O/sickle_cell.html

Christus Santa Rosa Children’s Hospital, The Children’s Regional Sickle Cell Center, 333 North Santa Rosa Street, 8th floor Pediatric Hematology/Oncology, San Antonio, TX 78207-3198.  1-800-227-3618. Donna M. Doulton, R.N., B.Sc.N.
Project Coordinator, Children's Regional Sickle Cell Center
Phone: 210-704-3110
Fax: 210-704-2396
E-mail: doulton@uthscsa.edu

The Sickle Cell Anemia Association of Austin: P.O. Box 201092 Austin, TX 78720-1992 phone 512/ 335-2306 http://www.tdh.state.tx.us/newborn/austin_sc.htm

The Texas Department of Health Newborn Screening Sickle Cell Program at: http://www.tdh.state.tx.us/newborn/sickle.htm

New Sickle Cell Center Center at Baylor - Baylor College of Medicine, One Baylor Plaza, Houston, TX Dr. Josef T. Prchal, center co-director, Dr. David
G. Poplack, co-director Texas Children's Sickle Cell Center and adult patients at Ben Taub General Hospital, The Methodist Hospital and St. Luke's Episcopal Hospital. http://public.bcm.tmc.edu/pa/sicklecenter.htm


Sickle Cell Anemia Foundation of America
901 Clinic Drive Ste A114
Euless, Texas 76039
(817) 35-4LIFE (5433) Kecia Bass, Executive Director. kbass@sicklecellanemiafoundation.org

TEXAS STATE SICKLE CELL ASSOCIATION 
PO BOX 50426 (MAILING ADDRESS)
FORT WORTH TX 76105-0426
(888) 886-9178 TOLL FREE
(817) 534-5997 OFC
(817) 534-6792 FAX
E-MAIL ADD: texasstatescdaa@yahoo.com
PEARL JONES, PRESIDENT


SCDAA – DALLAS TEXAS 
401 WYNNEWOOD PROFESSIONAL BLDG SUITE 205
DALLAS TX 75224
(214) 942-1262 OFC
(214) 948-9517 FAX
E-MAIL ADD: scdaad1@aol.com
ARNOLD R HIDER, EXECUTIVE DIRECTOR


SCDAA – FT WORTH TEXAS
PO BOX 50427 (MAILING ADDRESS)
FT WORTH TX 76105
2914 E ROSEDALE
FT WORTH TX 76105
(817) 534-5997 OFC
(817) 534-6792 FAX
E-MAIL: sicklecellfw@mindspring.com
PEARL JONES, EXECUTIVE DIRECTOR

SCDAA – SAN ANTONIO 
1036 GIBBS ST
SAN ANTONIO TX 78202
(210) 475-0443 OFC
(210) 475-0448 FAX
BETTY TANNER, EXECUTIVE DIRECTOR

Virginia

Pediatric Comprehensive Sickle Cell Center , Children's Medical Center, Medical College of Virginia, Virginia Commonwealth University, MCV Station Box 121, Richmond, VA 32398-0121 804-828-9605, FAX 804-828-6455  Dr.
Joseph Laver, Chairman of the Department of Pediatrics, jhlaver@vcu.edu The Pediatric Sickle Cell nurse practitioner (whom patients should
contact first) is Tom Brunner. His email is tbrunner@hsc.vcu.edu

The Virginia Sickle Cell Awareness Program (VASCAP) administers the state funds to the four listed medical pediatric providers, and is located in the Virginia Department of Health, Virginia Sickle Cell Awareness Program, administered by Jene Radcliffe-Shipman. Her email address is Jene.Radcliffe-Shipman@vdh.virginia.gov 
Virginia Department of Health, Division of Women's and Infants' Health
109 Governor Street 8th Floor - 825E Richmond, Virginia 23219 
Phone: (804) 864-7769 Fax: (804) 864-7771

 VCU Adult Sickle Cell Program  -  We see over 200 active patients currently, have over 600 on our rolls, do case management, NIH-funded clinical research, pharmaceutical trials, and basic research,  Contact:  Wally R. Smith, MD Co-Director, Chairman, Division of Quality Health Care Virginia Commonwealth University
Box 980306  1200 E. Broad St. W10W-402 Richmond, Virginia 23298
804-828-6938 (ofc) 804-828-4862 (fax) email email wrsmith@vcu.edu 
Web: www.qhc.vcu.edu  The nurse practitioner is Virginia Smith, RN, FNP.
Her email address is vssmith@hsc.vcu.edu

Adult sickle cell program at Eastern Virginia Medical School, Norfolk General Hospital. Richard Snyder, MD is the director. His email address is snyderr@mednav.net Phone is 757-446-8910.

University of Virginia  Medical School  Department of Pediatrics Division of Hematology/Oncology P.O. Box 386 Charlottesville, VA 22908 Phone: 804-924-5105 FAX: 804-982-3850

Children's Hospital Of The Kings Daughters Department of Pediatrics Division of Hematology/Oncology 601 Children's Lane Norfolk, Virginia 23507 Phone:(804) 668-7810 FAX:(804) 668-7811

Northern Virginia Sickle  Cell Center INOVA Hospital for Children
3300 Gallows Road Falls Church, VA 22042 Phone:(703) 208-2004
FAX:(703) 208-2024

The Medical Center for Children Community Hospital of the Roanoke Valley
Department of Pediatrics Division of Hematology/Oncology  102 Highland Avenue, Suite 435 P.O. Box 12946 Roanoke, VA 24013
Phone:(540) 985-9800 FAX:(540) 224-4543

PENINSULA ASSOCIATION FOR SICKLE CELL ANEMIA
2021 CUNNINGHAM DR SUITE 102
HAMPTON VA 23666
(757) 838-4721 OFC
(757) 838-0836 FAX
DARLENE HILTON, EXECUTIVE DIRECTOR


SOCIETY FOR THE AID OF SICKLE CELL ANEMIA
870 N MILITARY HIGHWAY, SUITE 316
NORFOLK VA 23502
(757) 466-0332 OFC
(757) 466-0988 FAX
OUTREACH OFFICE:
PO BOX 4233 (MAILING ADDRESS)
125 TYNES ST
SUFFOLK VA 23434
(757) 934-2347 OFC
JUDY M ANDERSON, EXECUTIVE DIRECTOR

Washington D.C.

Howard University Comprehensive Sickle Cell Center, 2121 Georgia Ave. Washington, DC 20059 Oswaldo Castro, MD Director, phone 202-806-7930, 202-544-2294 Howard University Sickle Cell Center  web site at http://www.huhosp.org/sicklecell/index.htm

Sickle Cell Program, Children's Hospital Medical Center 111 Michigan Center NW Washington, DC 20010 Iola Williams RN, PNP Coordinator 202-884-4747

Washington State

Seattle -Children's Hospital & Regional Medical Center, located at Odessa Brown Children's Clinic, 2101 E. Yesler Way, Seattle, WA 98122; phone (206) 329-7870, Ext. 235, (206) 329-9764 FAX staffed by hematologist, Michael Bender, M.D., and Carol Flanagan, MSN, ARNP, 

WASHINGTON DEPARTMENT OF HEALTH 
NEWBORN HEMOGLOBINOPATHY SCREENING PROGRAM
1610 NE 150th ST K-17-8
SEATTLE WA 98155-7226
(206) 361-2890 ADMINISTRATION
(206) 368-4473 GENERAL PUBLIC
E-MAIL: mwg0303@hub.doh.wa.gov
WEBSITE: www.doh.wa.gov/phl/newborn/newborn.html
MICHAEL W. GLASS, DIRECTOR


AFRICAN AMERICAN COMMUNITY HEALTH NETWORK
300 19th AVE
SEATTLE WA 98122-0540
(206) 860-9883 OFC
(206) 860-9846 FAX
E-MAIL: lynnf@aachn.org
WEBSITE: www.aachn.org
LYNN D FRENCH, PRESIDENT/COO

Toronto, Canada
Toronto, Ontario, Canada The Hospital for Sick Children 555 University Ave. Toronto, Ontario M5G 1X8 phone 416-813-6823 Nancy Fern Olivieri, M.D. Director

The Canadian Sickle Cell Society  PO Box 116, 1801 Eglington Avenue, West
Toronto, L5J 3X9, Canada 

United Kingdom and Caribbean Area
Click here to link to the Sickle Cell Society in London, UK http://www.sicklecellsociety.org/index.htm  Clinic information- http://www.sicklecellsociety.org/directry.htm#anchor426364

Cayman Island - Joy Merren, Genetics Coordinator, Public Health Department Health Services Authority Grand Cayman
Cayman Islands Phone: 345-244-2630 Fax:345-945-2153 email joy.merren@hsa.ky

Jamaica The Jamaican Sickle Cell Unit and Medical Research Council at  http://www.mona.uwi.edu/ MRC Laboratories (Jamaica) University of West Indies, Mona Kingston 7, Jamaica, West Indies 

Nigeria: Gloria Okojie, Founder International Forum for Sicklers in the diaspora 
(INFORSID)7B Commercial Avenue G.R.A. Benin-City Edo-State Nigeria e-mail is INFORSID@yohoo.com

Sickle Cell Club of Nigeria  Department of Haematology & Blood Transfusion, Ahmadu Bello University, Zaira, Nigeria, West Africa 

Nigeria  - Temitayo Awosika Help Foundation (TAHF) is a non-governmental, non-profit making organization set up to advocate and cater for people with sickle cell disorders. The main mission of TAHF is to ensure healthy and productive lives for sickle cell disease patients in and to educate the youth about sickle cell disease. 
Contact Address is: No 29, Association Avenue, Ilupeju, Lagos; Phone no: 234-1 4742667
New Program on the 17th of February 2004  10 a. m Sheraton Hotel and Towers, Ikeja, Lagos. Relaunching Of TAHF (Temitayo Awosika Help Foundation) in Lagos – Nigeria, For Donation, registration and more information contact: Funke Akiyode or Segun Salako - tahfoundation@yahoo.com, or call 234-1-4742667.

ELEWURA SICKLE CELL CENTRE  

E.S.C.C is a non profit making and non governmental organisation, set up to assist Sickle Cell patients and their families. E.S.C.C was establish less than a year ago in Elewura community, Ibadan, Oyo State, Nigeria, E.S.C.C operate in Nigeria and U.K and after carefully studied your organisation activities in making live meaningful to people, I the executive director and the entire management board are pleased to work in partnership with your organisation in making life more meaningful for people living with Sickle Cell.

Engr Abduljelyl. Adekunle. Karheem, Executive Director E.S.C.C  

Zambia - NDOLA SICKLE CELL ORGANIZATION  - launched  officially on the 1st Nov.,2003. The aims and objectives of this org. are:
1. To provide information and education required to help the sickle cell diseased and their parents /guardians in developing self-reliance and ability to participate safely and effectively in the protection and promotion of their own health.
2. To promote participation by the sickle cell community individually and collectively in the planning and implementation of their healthcare.
Contact:  Dr.Nombulelo Skeile  P.O. Box 72359,  NDOLA.  ZAMBIA. Email: adolobi@zamnet.zm Telephones 260 (02) 613961 (RES) 260 (02) 620533 (WORK) 260 (097) 801850 (MOBILE)

Zambia - Harvard Sickle Cell Project http://www.zamsickle.org/

Germany - Roswitha Dickerhoff MD, Johanniter Kinderklinik 53754 St. Augustin
Germany Tel +49-2241-2491 Fax +49-2241-249272 email: roswitha.dickerhoff@uni-bonn.de 

Dr. Kebelmann-Betzing  (email christian-kebelmann-betzing@t-online.de and kinderaerzte-berlin-tegel@t-online.de  )University Children's Hospital Charite in  Berlin.

Guyana - Linden R Swan, President, Guyana Sickle cell Association PO. box 101234, Georgetown, Guyana. Hospital:Davis Memorial Hospital in  Georgetown,Guyana e-mail: linrswan@hotmail.com

Brazil - Assocíação de Falcemicos do Rio de Janeiro.Hematology Service of Laboratório Lamina here in Rio de Janeiro. Dr Heloisa H.A. Gallo da Rocha  
 http://www.heloisa.med.br

Célia Maria Silva - Pediatric hematologist- Fundação Hemominas Rua Domingos Vieira, 319 segundo andar, Belo Horizonte, Minas Gerais Brazil 30.150-240
Phone: (5531) 32484490/92 Fax: (5531) 32416415 email celmar@gold.com.br

India - Dr.Jyotishkumar Ashokbhai Patel (Bardoli, Gujarat, India). Chief consultant : Shishudeep Children’s Hospital Director : Late Shree R.R.Chaudhary Sickle Cell Anemia Foundation Activities in Sickle Cell Anemia 
I have 30 bed hospital with I.C.U & N.I.C.U My wife Dr.Mrs.Bharati J.Patel
M.B;B.S is of great help in carrying out this most needed charity work on Sickle Cell Anemia.  Ashokbhai Patel Address 
Shishudeep Children’s Hospital
Bardoli, Gujarat, India Zip 394572
E-Mail shishudeep@satyam.net.in

DR.JYOTISH PATEL  MD Pediatrics 
Sickle cell expert National Institute of SICKLE CELL ANEMIA
Amit Park, BARDOLI-394601

Dist: Surat Gujarat state (India) Phone no:(02622) 221135(Hosp) 221342(Res)
Mobile:098252 78224 Fax:(02622) 221391 E mail-  info@sickleindia.com or sickleindia@gmail.com Web http://www.sickleindia.com

 Dr Mrs A.V.Shrikhande  Project Director
RHDMC, IGGMC,
NAGPUR, INDIA
e-mail - dravshrikhanderhdmc@yahoo.com  Ph-o712-2236988(R)
OFF-0712-2726126-EXTN303

Sampat Ramteke, President email sampat_ramteke@rediffmail.com

Sickle Cell Society Of India
712, Utkarsh Nirman Mangalwari Bazar
Sadar Nagpur-440001 Maharastra India

West Indies 

Antigua Sickle Cell Association (ABSCA) PO Box 3317, St John's, Antigua, West Indies 

Princess Margaret Hospital  Dr Corrine Sin Quee  Princess Margaret Hospital, PO Box N42 96, Nassau, Bahamas 

Sickle Cell of Hope Foundation First Avenue, Bellville, St Michael, Barbados 

St Lucia Sickle Cell Association PO Box 384, Castries, St Lucia, West Indies 

Sickle Cell Centre Dr Michael Camps Sickle Cell Centre, John Compton Highway,
Castries, St Lucia 

St Kitts Sickle Cell Association Lower Monkey Hill, St Peters, St Kitts 

West, Africa

Sickle Cell Association of Ghana  PO Box 150, Korle - Bu Accra, GHANA, West
Africa 

Association Congolese pour l'Information  B P 568 Brazza Ville, Republique de Congo 

Association Senegalise d'Assistance aux Enfants Drepanocytaires  BP 1666 Dakar Siege Social, Rue 9 Villa, 282a Bopp Dakar, Senegal 

North Africa
Professor Slabeddine Fattoum Service de Biochimie Clinique, Institut National
de Sante de l'enfance, Bab-Saadoun Tunis, Tunisia 

Department of Biochemistry  College of Medicine and King Khalid University
Hospital, PO Box 2925, Riyadh 11461, Saudi Arabia 

Israel

Israel Dagan MD DMD PhD chairman, Israeli association of thalassemia and/or sickle cell anemia
patients email israeld@meuhedet.co.il P.O. Box 11501 Jerusalem 91114 ISRAEL


Bone Marrow Transplant Centers for Sickle Cell Patients

Atlanta, GA: Emory University 


Augustin, GR: University of Bonn

Birmingham, UK: The Birmingham Children's Hospital NHS

Boston, MA: Dana Farber Cancer Institute, Children's Hospital, Harvard University,
Boston Comprehensive Sickle Center

Chapel Hill, NC: University of North Carolina

Chicago, IL: University of Illinois

Columbia, NC: Richland Memorial Hospital

Creteil FR: Hopital Henri Mondor

Dallas, TX: University of Texas, Southwestern Medical Center at Dallas

Denver, CO: University of Colorado, Sickle Cell Research & Treatment Center

Durham, NC: Duke University

Gainsville, FL: University of Southern Florida

Hackensack, NY: Hackensack Medical Center

Houston, TX: MD Anderson Cancer, University of Texas

Indianapolis, IN: Indiana University

London, UK: Royal Postgraduate Medical School; Hammersmith Hospital

Los Angeles, CA: University of Southern California, Children's Hospital of LA

Miami, FL: University of Southern Florida

Milwaukee, WI: Medical College of Wisconsin, Midwest Children's Cancer Center

New Haven, CT: Yale University

New Orleans, LA: Tulane University

New York, NY: Methodist Hospital

Oakland, CA: Children's Hospital of Oakland

Philadelphia, PA: Children's Hospital of Philadelphia, University of PA

St. Louis, MO: Cardinal Glennon Children's Hospital, University of St.Louis

St. Petersburg FL: University of South Florida, All Children's Hospital

Sao Paulo, BR: University of Campinas

San Francisco, CA: University of California at San Francisco, San Francisco General
Hospital, Comprehensive Sickle Center

Seattle, WA: University of Washington, Fred Hutchinson Cancer Research Center

Stanford, CA: Stanford University

Toronto, ON: Hospital for Sick Children

Washington, DC: Children's Hospital National Medical Center, George Washington
University, Howard University

Suggest a Clinic or a Web site beneficial to the sickle cell community. Call, write, e-mail or fax the address and a description to:

Sickle Cell Information Center
P.O.Box 109, 80 Butler Street Atlanta, GA 30335
Tel: 404-616-5994
FAX: 404-616-5998
Internet: aplatt@emory.edu

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Last modified: April 22, 2009