Muscular Dystrophy Organizations

Facioscapulohumeral Muscular Dystrophy (FSHD) Society 3 Westwood Road Lexington, MA   02420 info@fshsociety.org http://www.fshsociety.org Tel: 781-275-7781 781-860-0501 Fax: 781-860-0599	Muscular Dystrophy Association 3300 East Sunrise Drive Tucson, AZ   85718-3208 mda@mdausa.org http://www.mda.org Tel: 520-529-2000 800-344-4863 Fax: 520-529-5300
Muscular Dystrophy Family Foundation 7220 U.S. 31 South Indianapolis, IN   46227 mdff@mdff.org http://www.mdff.org Tel: 317-923-6333 800-544-1213 Fax: 317-923-6334	Parent Project Muscular Dystrophy (PPMD) 158 Linwood Plaza Suite 220 Fort Lee, NJ   07024 info@parentprojectmd.org http://www.parentprojectmd.org Tel: 201-944-9985 800-714-KIDS (5437) Fax: 201-944-9987
International Myotonic Dystrophy Organization P.O. Box 1121 Sunland, CA   91041-1121 info@myotonicdystrophy.org http://www.myotonicdystrophy.org Tel: 818-951-2311 866-679-7954	National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) National Institutes of Health, DHHS 31 Center Dr., Rm. 4C02 MSC 2350 Bethesda, MD   20892-2350 NIAMSinfo@mail.nih.gov http://www.niams.nih.gov Tel: 301-496-8190 877-22-NIAMS (226-4267)
National Institute of Child Health and Human Development (NICHD) National Institutes of Health, DHHS 31 Center Drive, Rm. 2A32 MSC 2425 Bethesda, MD   20892-2425 http://www.nichd.nih.gov Tel: 301-496-5133 Fax: 301-496-7101	Centers for Disease Control and Prevention (CDCP) U.S. Department of Health and Human Services 1600 Clifton Road, N.E. Atlanta, GA   30333 inquiry@cdc.gov http://www.cdc.gov Tel: 800-311-3435 404-639-3311/404-639-3543