Sturge-Weber Syndrome Organizations

March of Dimes Foundation 1275 Mamaroneck Avenue White Plains, NY   10605 askus@marchofdimes.com http://www.marchofdimes.com Tel: 914-428-7100 888-MODIMES (663-4637) Fax: 914-428-8203	National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT   06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291
National Eye Institute (NEI) National Institutes of Health, DHHS 31 Center Drive, Rm. 6A32 MSC 2510 Bethesda, MD   20892-2510 2020@nei.nih.gov http://www.nei.nih.gov Tel: 301-496-5248	Sturge-Weber Foundation P.O. Box 418 Mt. Freedom, NJ   07970 SWF@sturge-weber.org http://www.sturge-weber.org Tel: 973-895-4445 800-627-5482 Fax: 973-895-4846
Vascular Birthmarks Foundation P.O. Box 106 Latham, NY   12110 hvbf@aol.com http://birthmark.org Tel: 877-VBF-4646 (823-4646)