Canavan Foundation, Inc.450 West End Avenue
#6A
New York,
NY
10024
Tel: 212-873-4640
877-4-CANAVAN (422-6282)
Fax: 212-873-7449
EMail:
info@canavanfoundation.orghttp://www.canavanfoundation.orgDescription: Works to prevent Canavan disease through education and genetic testing and supports research efforts to find an effective
therapy.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and
their families. They may offer patient and professional information and education materials, sponsor meetings and scientific
workshops, fund research, and provide referrals to chapters and support groups.