National Niemann-Pick Disease Foundation, Inc.P.O. Box 49
Ft. Atkinson,
WI
53538
Tel: 920-563-0930
877-CURE-NPC (287-3672)
Fax: 920-563-0931
EMail:
nnpdf@idcnet.comhttp://www.nnpdf.orgDescription: International nonprofit organization made up of parents, medical and educational professionals, friends, relatives, and others.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and
their families. They may offer patient and professional information and education materials, sponsor meetings and scientific
workshops, fund research, and provide referrals to chapters and support groups.