Other Miscellaneous Resources
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Alliance for Aging Research
2021 K Street, N.W.
Suite 305
Washington, DC 20006
Tel: 202-293-2856
Fax: 202-785-8574
EMail: info@agingresearch.org
http://www.agingresearch.org
Description: Independent, not-for-profit citizen advocacy organization that works to promote medical research into human aging and to improve the health and independence of older Americans through public and private research.
2021 K Street, N.W.
Suite 305
Washington, DC 20006
Tel: 202-293-2856
Fax: 202-785-8574
EMail: info@agingresearch.org
http://www.agingresearch.org
Description: Independent, not-for-profit citizen advocacy organization that works to promote medical research into human aging and to improve the health and independence of older Americans through public and private research.
American Cancer Society
National Home Office
250 Williams Street, NW
Atlanta, GA 30303-1002
Tel: 800-ACS-2345 (227-2345)
http://www.cancer.org
Description: Nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
National Home Office
250 Williams Street, NW
Atlanta, GA 30303-1002
Tel: 800-ACS-2345 (227-2345)
http://www.cancer.org
Description: Nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
Brave Kids [For Children With Special Needs]
151 Sawgrass Corners Drive
Suite 204J
Ponte Vedra Beach, FL 32082
Tel: 800-568-1008 904-280-1895
Fax: 904-280-1897
EMail: info@bravekids.org
http://www.bravekids.org
Description: Non-profit organization that serves the needs of children with chronic and life-threatening illnesses. Provides a comprehensive directory of healthcare specialists and relevant medical information from healthcare professionals. Sponsors a community chat room, interactive contests, and an online store for children with special needs.
151 Sawgrass Corners Drive
Suite 204J
Ponte Vedra Beach, FL 32082
Tel: 800-568-1008 904-280-1895
Fax: 904-280-1897
EMail: info@bravekids.org
http://www.bravekids.org
Description: Non-profit organization that serves the needs of children with chronic and life-threatening illnesses. Provides a comprehensive directory of healthcare specialists and relevant medical information from healthcare professionals. Sponsors a community chat room, interactive contests, and an online store for children with special needs.
Cancer Care
275 Seventh Avenue
New York, NY 10001
Tel: Business: 212-712-8400 Services: 800-813-HOPE (-4673) 212-712-8080
Fax: 212-712-8495
EMail: info@cancercare.org
http://www.cancercare.org
Description: Provides free professional counseling, educational programs, financial assistance and practical help to people with cancer, their loved ones, and the bereaved across the country.
275 Seventh Avenue
New York, NY 10001
Tel: Business: 212-712-8400 Services: 800-813-HOPE (-4673) 212-712-8080
Fax: 212-712-8495
EMail: info@cancercare.org
http://www.cancercare.org
Description: Provides free professional counseling, educational programs, financial assistance and practical help to people with cancer, their loved ones, and the bereaved across the country.
Children's Craniofacial Association
13140 Coit Road
Suite 307
Dallas, TX 75240
Tel: 800-535-3643 214-570-9099
Fax: 214-570-8811
http://www.ccakids.com
Description: Non-profit organization dedicated to improving the quality of life for people with facial differences and their families.
13140 Coit Road
Suite 307
Dallas, TX 75240
Tel: 800-535-3643 214-570-9099
Fax: 214-570-8811
http://www.ccakids.com
Description: Non-profit organization dedicated to improving the quality of life for people with facial differences and their families.
Children's Neurobiological Solutions (CNS) Foundation
1726 Franceschi Road
Santa Barbara, CA 93101
Tel: 866-CNS-5580 (267-5580) 805-898-4442
EMail: info@cnsfoundation.org
http://www.cnsfoundation.org
Description: National, non-profit organization whose mission is to accelerate the development of brain repair therapies and cures by supporting cutting-edge collaborative research on brain damage due to childhood illness, injury, or any other cause. Provides information and resources for families and health care providers.
1726 Franceschi Road
Santa Barbara, CA 93101
Tel: 866-CNS-5580 (267-5580) 805-898-4442
EMail: info@cnsfoundation.org
http://www.cnsfoundation.org
Description: National, non-profit organization whose mission is to accelerate the development of brain repair therapies and cures by supporting cutting-edge collaborative research on brain damage due to childhood illness, injury, or any other cause. Provides information and resources for families and health care providers.
Compassionate Friends
P.O. Box 3696
Oak Brook, IL 60522-3696
Tel: 630-990-0010 877-969-0010
Fax: 630-990-0246
EMail: nationaloffice@compassionatefriends.org
http://www.compassionatefriends.org
Description: National, independent, non-profit, self-help support organization offering friendship and understanding to families grieving the death of a child of any age, from any cause. There are no membership fees or dues, and bereaved family members are welcome.
P.O. Box 3696
Oak Brook, IL 60522-3696
Tel: 630-990-0010 877-969-0010
Fax: 630-990-0246
EMail: nationaloffice@compassionatefriends.org
http://www.compassionatefriends.org
Description: National, independent, non-profit, self-help support organization offering friendship and understanding to families grieving the death of a child of any age, from any cause. There are no membership fees or dues, and bereaved family members are welcome.
Dana Foundation
745 Fifth Avenue
Suite 900
New York, NY 10151
Tel: 212-223-4040
Fax: 212-593-7623
EMail: danainfo@dana.org
http://www.dana.org
Description: Non-profit organization of more than 200 pre-eminent scientists dedicated to advancing education about the progress and promise of brain research.
745 Fifth Avenue
Suite 900
New York, NY 10151
Tel: 212-223-4040
Fax: 212-593-7623
EMail: danainfo@dana.org
http://www.dana.org
Description: Non-profit organization of more than 200 pre-eminent scientists dedicated to advancing education about the progress and promise of brain research.
Friend's Health Connection
P.O. Box 114
New Brunswick, NJ 08903
Tel: 732-418-1811 800-483-7436
Fax: 732-249-9897
EMail: info@friendshealthconnection.org
http://www.friendshealthconnection.org
Description: Non-profit support network that connects people with similar health problems and helps individuals cope with illness through the power of friendship.
P.O. Box 114
New Brunswick, NJ 08903
Tel: 732-418-1811 800-483-7436
Fax: 732-249-9897
EMail: info@friendshealthconnection.org
http://www.friendshealthconnection.org
Description: Non-profit support network that connects people with similar health problems and helps individuals cope with illness through the power of friendship.
Genetic Alliance
4301 Connecticut Avenue, N.W.
Suite 404
Washington, DC 20008-2369
Tel: 202-966-5557 800 336-GENE (4363)
Fax: 202-966-8553
EMail: info@geneticalliance.org
http://www.geneticalliance.org
Description: International coalition representing 600 consumer and professional organizations. Supports individuals and families with genetic conditions; educates the public; and advocates for consumer-informed public policies.
4301 Connecticut Avenue, N.W.
Suite 404
Washington, DC 20008-2369
Tel: 202-966-5557 800 336-GENE (4363)
Fax: 202-966-8553
EMail: info@geneticalliance.org
http://www.geneticalliance.org
Description: International coalition representing 600 consumer and professional organizations. Supports individuals and families with genetic conditions; educates the public; and advocates for consumer-informed public policies.
Health Resources and Services Administration (HRSA)
Information Center
U.S. Department of Health and Human Services
Parklawn Bldg., 5600 Fishers Lane
Rockville, MD 20857
Tel: 888-Ask-HRSA (275-4772)
EMail: ask@hrsa.gov
http://www.ask.hrsa.gov
U.S. Department of Health and Human Services
Parklawn Bldg., 5600 Fishers Lane
Rockville, MD 20857
Tel: 888-Ask-HRSA (275-4772)
EMail: ask@hrsa.gov
http://www.ask.hrsa.gov
Human Growth Foundation
997 Glen Cove Avenue
Suite 5
Glen Head, NY 11545
Tel: 800-451-6434
Fax: 516-671-4055
EMail: hgf1@hgfound.org
http://www.hgfound.org
Description: Voluntary, non-profit organization dedicated to helping medical science better understand the process of growth.
997 Glen Cove Avenue
Suite 5
Glen Head, NY 11545
Tel: 800-451-6434
Fax: 516-671-4055
EMail: hgf1@hgfound.org
http://www.hgfound.org
Description: Voluntary, non-profit organization dedicated to helping medical science better understand the process of growth.
International RadioSurgery Association
3002 N. Second Street
Harrisburg, PA 17110
Tel: 717-260-9808
Fax: 717-260-9809
EMail: office1@irsa.org
http://www.irsa.org
Description: Proactive patient organization providing information and referrals on Gamma Knife, Linac, and particle beam radiosurgery for brain tumors, arteriovenous malformations (AVMs), and neurological pain and movement disorders.
3002 N. Second Street
Harrisburg, PA 17110
Tel: 717-260-9808
Fax: 717-260-9809
EMail: office1@irsa.org
http://www.irsa.org
Description: Proactive patient organization providing information and referrals on Gamma Knife, Linac, and particle beam radiosurgery for brain tumors, arteriovenous malformations (AVMs), and neurological pain and movement disorders.
National Council on Patient Information and Education
4915 St. Elmo Avenue
Suite 505
Bethesda, MD 20814-6082
Tel: 301-656-8565
Fax: 301-656-4464
EMail: ncpie@ncpie.info
http://www.talkaboutrx.org
Description: Coalition of nearly 150 organizations committed to safer, more effective medicine use through better communication. Additional website is www.bemedwise.org.
4915 St. Elmo Avenue
Suite 505
Bethesda, MD 20814-6082
Tel: 301-656-8565
Fax: 301-656-4464
EMail: ncpie@ncpie.info
http://www.talkaboutrx.org
Description: Coalition of nearly 150 organizations committed to safer, more effective medicine use through better communication. Additional website is www.bemedwise.org.
National Health Council
1730 M Street, NW
Suite 500
Washington, DC 20036-3910
Tel: 202-785-3910
Fax: 202-785-5923
EMail: info@nhcouncil.org
http://www.nationalhealthcouncil.org
Description: Association of voluntary health agencies, businesses, and not-for-profit organizations. Sponsors awareness campaigns to promote the health of all people and to advance medical research and the voluntary health movement.
1730 M Street, NW
Suite 500
Washington, DC 20036-3910
Tel: 202-785-3910
Fax: 202-785-5923
EMail: info@nhcouncil.org
http://www.nationalhealthcouncil.org
Description: Association of voluntary health agencies, businesses, and not-for-profit organizations. Sponsors awareness campaigns to promote the health of all people and to advance medical research and the voluntary health movement.
National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291
EMail: orphan@rarediseases.org
http://www.rarediseases.org
Description: Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291
EMail: orphan@rarediseases.org
http://www.rarediseases.org
Description: Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
National Vaccine Information Center
204 Mill Street
Suite B1
Vienna, VA 22180
Tel: 703-938-DPT3 (3783)
Fax: 703-938-5768
http://www.nvic.org
Description: Non-profit organization dedicated to the prevention of vaccine injuries and deaths through public education and advocacy programs.
204 Mill Street
Suite B1
Vienna, VA 22180
Tel: 703-938-DPT3 (3783)
Fax: 703-938-5768
http://www.nvic.org
Description: Non-profit organization dedicated to the prevention of vaccine injuries and deaths through public education and advocacy programs.
Research!America
1101 King Street
Suite 520
Alexandria, VA 22314-2960
Tel: 703-739-2577 800-FON-CURE (366-2873)
Fax: 703-739-2372
EMail: info@researchamerica.org
http://www.researchamerica.org
Description: Research!America builds active public support for more public and private research to find treatments, cures, and prevention for both physical and mental disease and disorders.
1101 King Street
Suite 520
Alexandria, VA 22314-2960
Tel: 703-739-2577 800-FON-CURE (366-2873)
Fax: 703-739-2372
EMail: info@researchamerica.org
http://www.researchamerica.org
Description: Research!America builds active public support for more public and private research to find treatments, cures, and prevention for both physical and mental disease and disorders.
WE MOVE (Worldwide Education & Awareness for Movement Disorders)
204 West 84th Street
New York, NY 10024
Tel: 212-875-8312
Fax: 212-875-8389
EMail: wemove@wemove.org
http://www.wemove.org
Description: WE MOVE provides movement disorder information and educational materials to physicians, patients, the media, and the public.
204 West 84th Street
New York, NY 10024
Tel: 212-875-8312
Fax: 212-875-8389
EMail: wemove@wemove.org
http://www.wemove.org
Description: WE MOVE provides movement disorder information and educational materials to physicians, patients, the media, and the public.
National Institute of Neurological Disorders and Stroke
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