Parent Project Muscular Dystrophy (PPMD) seeks to improve the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, education, advocacy, and compassion. Founded in 1994, PPMD has offices in Middletown, OH and Fort Lee, NJ; a staff of 10 serves roughly 5,000 member families. In 2001, the passage of the Muscular Dystrophy Community Assistance, Research and Education (MD CARE) Act gave families additional resources and hope for a cure. Four years later, in 2005, PPMD joined Genetic Alliance and the Access to Credible Genetics Resources Network to establish standards for accurate and credible information on single-gene disorders.

www.parentprojectmd.org