Rare Diseases News

Links to rare disease related-news releases and announcements at the National Institutes of Health, other Federal agencies, and outside the Federal government.

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Notice: CETT Program Update
This notice is to inform the research community of a pilot resource program established by the NIH ORDR, the Collaboration, Education, and Genetic Test Translation (CETT) Program. The program was created to facilitate the translation of genetic tests from the research setting to Clinical Laboratory Improvement Amendments (CLIA)-certified laboratories. The CETT Program promotes genetic test translation through collaborations among clinicians, laboratories, researchers, and disease-specific advocacy group.
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ARRA: ORDR Recovery Act Information
Short-term funding opportunities are available for a variety of rare disease-related projects through the NIH Challenge Grant program, part of the American Recovery and Reinvestment Act of 2009.
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2009 Flu Info
Swine Influenza (Flu) information.
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