Ethical, Legal and Social Implications Program Reports
Reports from the Ethical, Legal and Social Implications (ELSI) Research Program
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Genetic Testing |
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Genetic Discrimination and Health Insurance |
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Issues Related to the Conduct of Genetic Research |
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Underrepresented Minorities |
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Specific Research Topics |
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Program Reviews |
Genetic Testing
- Follow-up Workshop to the Consensus Development Conference on Genetic Testing for CF (10/97)
- Promoting Safe and Effective Genetic Testing in the United States: Final Report of the Task Force on Genetic Testing (9/97)
- Genetic Testing for Cystic Fibrosis Consensus Development Conference Statement [consensus.nih.gov] (4/97)
- NIH Workshop Statement - Reproductive Genetic Testing: Impact on Women (11/91)
- NIH Workshop Statement - Population Screening for the CF Gene (7/90)
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Genetic Discrimination and Health Insurance
- Genetic Information and the Workplace (1/98)
- NIH-DOE ELSI Working Group and National Action Plan on Breast Cancer Workshop on Genetic Discrimination and the Workplace (10/96)
- NIH-DOE ELSI Working Group and National Action Plan on Breast Cancer Workshop on Genetic Discrimination and Health Insurance (7/95)
- Insurance Task Force Report--Executive Summary (5/93)
- Genetic Information and Health Insurance - Report of the Task Force on Genetic Information and Insurance (5/93)
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Issues Related to the Conduct of Genetic Research
- Report of the First Community Consultation on the Responsible Collection and Use of Samples for Genetic Research [nigms.nih.gov] (9/00)
- NCHGR/CDC Workshop on Informed Consent for Genetics Research Using Stored Tissue Samples(7/94)
- Protecting Human Research Subjects: 1993 OPRR IRB Guidebook Chapter on Human Genetic Research
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Underrepresented Minorities
- Summary of Grantees' Workshop on Strategies for Increasing the Number of Underrepresented Minorities Participating in Genomics and ELSI Research (11/01)
- Plan for Increasing the Number of Underrepresented Minorities Trained in Genomics and ELSI Research (2001)
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Specific Research Topics
- Studying interactions Among Social, Behavioral & Genetic Factors in Health (10/01)
- Cancer Genetic Studies Consortium (1998)
- Hereditary Hemochromatosis: Gene Discovery and Policy Meeting (3/97)
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Program Reviews
- The Role of ELSI Research & Policy Activities in the NHGRI Plan (10/02)
- A Review and Analysis of the ELSI Research Programs at NIH and DOE (ERPEG Final Report) (2/00)
- Report of the Joint NIH/DOE Committee to Evaluate the Ethical, Legal and Social Implications Program of the Human Genome Project (12/96)
- Review of the ELSI Program: 1990-1995 (3/96)
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Last Updated: January 28, 2009