Reports, fact sheets, special purpose publications, and archived materials about rare diseases.
Biennial Report on the Rare Diseases Research Activities at the National Institutes of Health FY 2006
Annual Report on the Rare Diseases Research Activities at the National Institutes of Health FY 2005
ORD Brochure
The Genetic and Rare Diseases Information Center
The Rare Diseases Clinical Research Network
Other NIH Fact Sheets
Biennial and Annual Report on the Rare Diseases Research Activities at the National Institutes of Health FY 2004
NIH Report on Research on Rare Diseases in Children, FY 2000 to FY 2005
2001 Report on the Special Emphasis Panel of the National Institutes of Health on the Coordination of Rare Diseases Research
Report on Scientific Workshops and Symposia as a Mechanism to Stimulate Research on Rare Diseases and Conditions, 1997
Genetic and Rare Diseases Information Center Brochure (PDF*)
CETT Brochure