Familial Dysautonomia (FD) is a rare genetic neurological condition that affects the sensory and autonomic nervous systems, causing severe gastrointestinal, cardiac, pulmonary, orthopedic, renal and ophthalmologic problems.
The Dysautonomia Foundation is a 501(c)(3) nonprofit public charity that supports medical treatment, research, public awareness and social services for the benefit of people afflicted with FD. The Foundation has established the world's only two FD treatment centers and is the largest single source of funding for research and treatment specifically for the benefit of people with FD.
FD was once considered a fatal disease, but the Foundation's efforts have
resulted in dramatic improvements in the quality of life and life expectancy
for FD patients. Still, people with FD must overcome tremendous challenges,
including frequent hospitalizations, major surgeries and daily medical and supportive therapies as they try to live normal lives.
The gene that causes FD has been identified. Genetic therapies are possible, but they are costly and time-consuming to develop. A new clinical research facility has just opened to pursue new therapies for people with FD. With your help, we can make a real difference in their lives.
Dysautonomia Foundation, Inc.
315 W 39th St, Suite 701, New York, NY 10018
212-279-1066
info@famdys.org
(c) 2008 Dysautonomia Foundation, Inc. The FD logo is
a registered trademark of the Dysautonomia Foundation, Inc.
