Presentations
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 Welcome
Isis Mikhail, M.D., M.P.H., DrP.H.
Acting Chief, Clinical and Translational Epidemiology Branch, Epidemiology
and Genetics Research Program
National Cancer Institute
Overview
Recommendations of the 2005 Epidemiology Workshop on Rare
Cancers and Goals of This Meeting
 Opening Remarks
Deborah Winn, Ph.D.
Acting Associate Director, Epidemiology and Genetics Research Program
National Cancer Institute
Rare Cancers Research in the Epidemiology and Genetics
Research Program
Childhood Cancer Research Network: An Effective Collaboration as
a Model for Rare Cancer Research
Julie Ross, Ph.D., M.P.H
Professor and Director, Division
of Pediatric Epidemiology and Clinical Research
Department of Pediatrics University
of Minnesota
Living with Cancer
Bob Graham
Executive Editor, Insurance and Financial Advisor Monthly
International
Study of Familial Glioma (Gliogene): Developing Successful Consortium
Melissa
Bondy, Ph.D.
Professor, Department of
Epidemiology
University of Texas M.D. Anderson Cancer Center
The Ovarian Cancer Consortium (OCAC)
Joellen Schildkraut, Ph.D.,
M.P.H
Professor of Community and Family
Medicine
Division of Prevention Research, Duke University Medical
Center
Challenges for a New Consortium (E2C2) Epidemiology of Endometrial
Cancer Consortium
Sara Olson, Ph.D.
Assistant
Attending Epidemiologist, Department of Epidemiology and Biostatistics
Memorial
Sloan-Kettering Cancer Center
Pre-Consortium Challenges: Urinary Bladder Cancer Consortium
Nathaniel
Rothman, M.D., M.P.H., M.H.S,
Senior Investigator, Occupational and Environmental
Epidemiology Branch
Division of Cancer Epidemiology and Genetics,
National
Cancer Institute
SARCOMA Working Group
Sharon Savage, M.D.
Investigator, Clinical Genetics
Branch
Division of Cancer Epidemiology and Genetics,
National Cancer
Institute
ESOPHAGEAL Cancer Working Group
Wong-Ho Chow, Ph.D.
Senior Investigator,
Occupational and Environmental Epidemiology Branch
Division of
Cancer Epidemiology and Genetics,
National Cancer Institute
LIVER Cancer Working Group
Katherine McGlynn, Ph.D., M.P.H
Investigator,
Hormonal and Reproductive Epidemiology Branch
Division of Cancer
Epidemiology and Genetics,
National Cancer Institute
 MULTIPLE MYELOMA Working Group
Dalsu Baris, M.D., Ph.D.
Staff Scientist, Occupational
and Environmental Epidemiology Branch
Division of Cancer Epidemiology
and Genetics,
National Cancer Institute
Cohort Consortia and Epidemiologic Research on Rare Cancers
Patricia Hartge, M.A., Sc.D.
Office of the Director
Division
of Cancer Control and Population Sciences, National Cancer Institute
Resources for Population-Based Research on Rare Cancers: NCI SEER
Residual Tissue Repositories
Marsha
Reichman, Ph.D.
Acting Chief, Cancer Statistics Branch Surveillance
Research Coordinator
Surveillance Research Program, National Cancer Institute
Genetic Association Studies in Clinically Important Subtypes of
Breast and Prostate Cancer: Lessons from the Breast and Prostate
Cancer Consortium (BPC3)
Heather Spencer Feigelson,
Ph.D., M.P.H,
Strategic Director of Genetic Epidemiology
Department
of Epidemiology and Surveillance Research, American Cancer Society
METHODS & STRATEGIES
Working Group I
Graham Colditz, M.D., Dr. P.H.
Niess-Gain
Professor, Department of Surgery, and
Associate Director, Prevention
and Control, Alvin J. Siteman Cancer Center
Washington University
School of Medicine
METHODS & STRATEGIES
Working Group II
Wendy
Cozen, D.O., M.P.H.
Associate Professor, Department of Preventive
Medicine
Keck School of Medicine and Norris Comprehensive Cancer
Center, University of Southern California
METHODS & STRATEGIES
Working Group III
David Hunter, M.B.B.S., M.P.H., Sc.D.
Vincent L.
Gregory Professor in Cancer Prevention
Department of Epidemiology
and Nutrition, Harvard School of Public Health
 METHODS & STRATEGIES
Working Group IV
Sara Strom, Ph.D.
Assistant Professor, Department
of Epidemiology
University of Texas, MD Anderson Cancer Center
Genome Wide Association and Rare Cancers
Robert Hoover, M.D., Sc.D.
Director, Epidemiology and Biostatistics Program
Division of Cancer
Epidemiology and Genetics, National Cancer Institute
Utilizing Informatics to Foster Collaboration and Networking: Challenges
and Opportunities
Peter Schad, Ph.D.
Health Informatics
Coordinator
Division of Cancer Control and Population Sciences,
National Cancer Institute
Epidemiology of Hepatocellular Carcinoma in USA
Manal Hassan, M.D.,
Ph.D.
Assistant Professor, Department of Gastrointestinal Medical
Oncology
University of Texas, MD Anderson Cancer Center
Rare Cancers in the United States and Worldwide
Brenda Edwards, Ph.D.
Associate
Director, Surveillance Research Program
National Cancer Institute
Rare Diseases Clinical Research Network (RDCRN): A Network of Consortia
and the Role of Data Technology Coordinating Center (DTCC)
Rashmi Gopal-Srivastava,
Ph.D.
Director, Extramural Research Program
Office of Rare Diseases,
National Institute of Health
 Consumer Advocates in Research and Related Activities (CARRA) Program
Richard Gorlick, M.D.
Associate Professor
of Pediatrics and Molecular Pharmacology
Albert Einstein College
of Medicine, and
Vice Chairman, Division Chief, Department of Pediatrics
Hematology/Oncology
the Children’s Hospital at Montefiore
 Dedicated to Discovering a Cure for Carcinoid
Nancy O’Hagan, J.D.
President and Founder Caring for Carcinoid
Foundation
Studies of Rare Cancers
Sholom Wacholder, Ph.D.
Senior Investigator
Division of Cancer Epidemiology
and Genetics, National Cancer Institute
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