Synergizing Epidemiologic Research on Rare Cancers, May
2007
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Agenda
| THURSDAY, MAY 10, 2007 |
| 7:30 – 8:30 AM |
Registration |
| 8:30 – 9:00 AM |
Welcome
Isis Mikhail, M.D., M.P.H., DrP.H.
Acting
Chief, Clinical and Translational Epidemiology Branch,
Epidemiology and
Genetics Research Program
National Cancer Institute
Introduction
Stephen
Groft, Ph.D.
Director, Office of Rare Diseases
National Institutes of
Health
Opening Remarks
Deborah Winn, Ph.D.
Acting Associate Director,
Epidemiology and Genetics Research Program
National Cancer Institute |
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PLENARY SESSION |
| 9:00 – 9:30 AM |
Childhood Cancer Research Network:
An Effective Collaboration as a Model for Rare Cancer Research
Julie
Ross, Ph.D., M.P.H.
Professor and Director, Division of Pediatric Epidemiology
and Clinical Research,
Department of Pediatrics
University of Minnesota
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| 9:30 – 9:45 AM |
Life as a Cancer Patient: 10 Years as a Survivor
of Carcinoid Syndrome
Bob Graham
Executive Editor, Insurance and Financial
Advisor Monthly |
| 9:45 – 10:00 AM |
Recommendations of the 2005 Epidemiology Workshop
on Rare Cancers and Goals of This Meeting
Isis Mikhail, M.D., M.P.H., Dr.P.H.
Acting Chief, Clinical and Translational Epidemiology Branch,
Epidemiology
and Genetics Research Program
National Cancer Institute |
| 10:00 – 10:15 AM |
Rare Cancers Research in the Epidemiology and
Genetics Research Program
Deborah Winn, Ph.D.
Acting Associate Director,
Epidemiology and Genetics Research Program
National Cancer Institute |
| 10:15 – 10:30 AM |
BREAK |
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NEW CONSORTIA MODELS |
| 10:30 – 11:00 AM |
Establishing the Gliogene Consortium
Melissa Bondy,
Ph.D.
Professor, Department of Epidemiology
The University of Texas M.D.
Anderson Cancer Center |
| 11:00 – 11:30 AM |
Ovarian Cancer Consortium
Joellen Schildkraut,
Ph.D, M.P.H.
Professor of Community and Family Medicine,
Division of Prevention
Research
Duke University Medical Center |
| 11:30 – 11:45 AM |
Endometrial Cancer Consortium
Sara Olson, Ph.D.
Assistant Attending Epidemiologist,
Department of Epidemiology and Biostatistics
Memorial Sloan-Kettering Cancer Center |
| 11:45 – 12:00 PM |
Urinary Bladder Cancer Consortium: Pre-Consortium
Challenges
Nathaniel Rothman, M.D., M.P.H., M.H.S.
Senior Investigator,
Occupational and Environmental Epidemiology Branch,
Division of Cancer Epidemiology
and Genetics
National Cancer Institute |
| 12:00 – 1:00 PM |
LUNCH |
| 1:00 – 1:15 PM |
Working Groups Charge
Isis Mikhail, M.D., M.P.H.,
Dr.P.H. |
| 1:15 – 2:45 PM |
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| Group I: |
SARCOMA
Chair: Sharon Savage, M.D.
Investigator,
Clinical Genetics Branch,
Division of Cancer Epidemiology and Genetics
National
Cancer Institute
Co-Chair: Vaurice Starks
Program Director, Epidemiology
and Genetics Research Program
National Cancer Institute
Co-Chair/Writer: Shannon Lynch, M.P.H.
Program Analyst, Epidemiology and Genetics Research
Program
National Cancer Institute |
| Group II: |
ESOPHAGEAL CANCER
Chair: Wong-Ho Chow, Ph.D.
Senior Investigator,
Occupational and Environmental Epidemiology Branch,
Division of Cancer Epidemiology
and Genetics
National Cancer Institute
Co-Chair: Daniela Seminara, Ph.D.,
M.P.H.
Program Director Epidemiology and Genetics Research Program
National
Cancer Institute
Co-Chair/Writer: Keith Richardson, B.A.
Research Associate
Epidemiology and Genetics
Research Program
National Cancer Institute |
| Group III: |
LIVER (HEPATOBILIARY) CANCER
Chair: Katherine McGlynn, Ph.D.,
M.P.H.
Investigator, Hormonal and Reproductive Epidemiology Branch,
Division
of Cancer Epidemiology and Genetics
National Cancer Institute
Co-Chair: Virginia Hartmuller, Ph.D., R.D.
Acting Chief, Modifiable Risk Factors
Branch Epidemiology and Genetics Research Program
National Cancer Institute
Co-Chair/Writer: Stephanie Eber, M.P.H.
Associate Communications Coordinator
Epidemiology and Genetics Research Program
National Cancer Institute |
| Group IV: |
MULTIPLE MYELOMA
Chair: Dalsu Baris, M.D., Ph.D.
Staff Scientist,
Occupational and Environmental Epidemiology Branch,
Division of Cancer Epidemiology
and Genetics
National Cancer Institute
Co-Chair: Mukesh Verma, Ph.D.
Acting
Chief, Host Susceptibility Factors Branch & Methods and Technologies
Branch,
Epidemiology and Genetics Research Program
National Cancer Institute
Co-Chair/Writer: Brenda Birmann, Sc.D.
Instructor, Channing Laboratory,
Department of Medicine Brigham and Women’s Hospital and
Harvard
Medical School |
| 2:45 – 3:15 PM |
BREAK |
| 3:15 – 3:30 PM |
Cohort Consortia and Epidemiologic Research on Rare
Cancers
Patricia Hartge, M.A., Sc.D.
Office of the Director, Division of
Cancer Control and Population Sciences
National Cancer Institute |
| 3:30 – 3:45 PM |
Resources for Population-Based Research on Rare
Cancers: Residual Tissue Repositories
Marsha Reichman, Ph.D.
Acting Chief,
Cancer Statistics Branch Surveillance Research Coordinator,
Surveillance
Research Program
National Cancer Institute |
| 3:45 – 4:45 PM |
PANEL: Rare Cancers Working Groups Report Backs |
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3:45 – 4:00 PM |
Sarcoma Working Group
Chair: Sharon Savage, M.D. |
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4:00 – 4:15 PM |
Esophageal Cancer Working Group
Chair: Wong-Ho Chow,
Ph.D. |
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4:15 – 4:30 PM |
Liver (Hepatobiliary) Cancer Working Group
Chair: Katherine A. McGlynn, Ph.D, M.P.H. |
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4:30 – 4:45 PM |
Multiple Myeloma Working Group
Chair: Dalsu Baris,
M.D., Ph.D |
| 4:45 – 5:00 PM |
Discussion |
| 5:00 PM |
ADJOURN |
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| FRIDAY, MAY 11, 2007 |
| 7:30 – 8:30 AM |
Registration and Refreshments |
| 8:30 – 8:35 AM |
Welcome
Deborah Winn, Ph.D. |
| 8:35 – 9:05 AM |
Genetic Association Studies in Clinically
Important Subtypes of Breast and Prostate Cancer: Lessons from the Breast
and Prostate Cancer Consortium (BPC3)
Heather Spencer Feigelson, Ph.D.,
M.P.H.
Strategic Director of Genetic Epidemiology,
Department of Epidemiology
and Surveillance Research
American Cancer Society |
| 9:05 – 9:15 AM |
Working Groups Charge
Isis Mikhail,
M.D., M.P.H., Dr.P.H. |
| Go to Assigned Groups (4 Rooms) |
| 9:15 – 10:45 AM |
Methods
and Strategies Working Groups |
| Group I: |
Chair: Graham Colditz, M.D., Dr.P.H.
Niess-Gain
Professor, Department of Surgery
Associate Director, Prevention and Control
Alvin J. Siteman Cancer Center
Washington University School of Medicine
Co-Chair: Francine Laden, Sc.D.
Assistant Professor, Department of Environmental
Health
Harvard School of Public Health
Co-Chair/Coordinator: Leah Sansbury,
Ph.D., M.S.P.H.
Program Director, Epidemiology and Genetics Research
Program
National Cancer Institute |
| Group II: |
Chair: Wendy Cozen, D.O., M.P.H.
Associate Professor,
Department of Preventive Medicine,
Keck School of Medicine and Norris Comprehensive
Cancer Center
University of Southern California
Co-Chair: Robert Greenlee,
Ph.D., M.P.H.
MESA Lead Scientist, Epidemiology Research Center
Marshfield
Clinic Research Foundation
Co-Chair/Coordinator: Britt Reid, D.D.S.,
Ph.D.
Program Director, Epidemiology and Genetics Research Program
National
Cancer Institute |
| Group III: |
Chair: David Hunter, M.B.B.S., M.P.H., Sc. D.
Vincent L. Gregory Professor in Cancer Prevention,
Department of Epidemiology
and Nutrition
Harvard School of Public Health
Co-Chair: Jill Barnholtz-Sloan,
Ph.D.
Assistant Professor, Case Comprehensive Cancer Center
Case Western
Reserve University School of Medicine
Co-Chair/ Coordinator: Sheri Schully,
Ph.D.
Program Director, Epidemiology and Genetics Research Program
National
Cancer Institute |
| Group IV: |
Chair: Sara Strom, Ph.D.
Associate Professor, Department
of Epidemiology,
Division of Cancer Prevention
The University of Texas M.
D. Anderson Cancer Center
Co-Chair: Sholom Wacholder, Ph.D.
Senior Investigator,
Biostatistics Branch,
Division of Cancer Epidemiology and Genetics
National
Cancer Institute
Co-Chair/Coordinator: Shannon Lemrow, Ph.D.
Program
Director, Epidemiology and Genetics Research Program
National Cancer
Institute |
| 10:45 – 11:00 AM |
BREAK – Return to Main Conference
Room |
| 11:00 – 11:15 AM |
Genome Wide Association and Rare Cancers
Robert Hoover, M.D., Sc.D.
Director, Epidemiology and Biostatistics Program,
Division of Cancer Epidemiology and Genetics
National Cancer Institute |
| 11:15 – 11:30 AM |
Utilizing Informatics to Foster Collaboration
and Networking: Challenges and Opportunities
Peter Schad, Ph.D.
Health
Informatics Coordinator, Division of Cancer Control and Population Sciences
National Cancer Institute |
| 11:30 – 11:45 AM |
Epidemiology of Hepatocellular Carcinoma
Manal Hassan, M.D., Ph.D.
Assistant Professor, Department of Gastrointestinal
Medical Oncology
The University of Texas M. D. Anderson Cancer Center |
| 11:45 – 12:00 PM |
International Tumor Registries
Brenda
Edwards, Ph.D.
Associate Director, Surveillance Research Program
National
Cancer Institute
Lynn Ries, M.S.
Health Statistician, Surveillance Research
Program
National Cancer Institute |
| 12:00 – 1:00 PM |
LUNCH |
| 1:00 – 1:30 PM |
Rare Diseases Clinical Research Network
(RDCRN): A Network of Consortia and the Role of Data Technology Coordinating
Center (DTCC)
Rashmi Gopal-Srivastava, Ph.D.
Director, Extramural Research
Program,
Office of Rare Diseases
National Institutes of Health
Audrey Shor,
Ph.D., M.P.H.
Research Associate, Department of Pediatrics
University
of South Florida |
| 1:30 – 1:45 PM |
Consumer Advocates in Research and Related
Activities (CARRA) Program
Richard Gorlick, M.D.
Associate Professor of
Pediatrics and Molecular Pharmacology
Albert Einstein College of Medicine
Vice Chairman, Division Chief Department of Pediatrics Hematology/Oncology
The Children’s Hospital at Montefiore |
| 1:45 - 2:00 PM |
Role of Advocacy Groups
Nancy O’Hagan,
J.D.
President and Founder Caring for Carcinoid Foundation |
| 2:00 – 2:15 PM |
Studies of Rare Cancers
Sholom Wacholder,
Ph.D.
Senior Investigator, Biostatistics Branch,
Division of Cancer Epidemiology
and Genetics
National Cancer Institute |
| 2:15 – 2:30 PM |
BREAK |
| 2:30– 3:30 PM |
PANEL: Methods and Strategies Working
Groups Report Backs |
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2:30 – 2:45 PM |
Working Group I
Chair: Graham Colditz, M.D., Dr.P.H. |
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2:45 – 3:00 PM |
Working Group II
Chair: Wendy Cozen, D.O., M.P.H. |
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3:00 – 3:15 PM |
Working Group III
Chair: David Hunter, M.B.B.S,
M.P.H., Sc.D. |
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3:15 – 3:30 PM |
Working Group IV
Chair: Sara Strom, Ph.D. |
| 3:30 - 3:45 PM |
Discussion |
| 3:45 – 4:00 PM |
Closing Remarks: The Future of Rare
Cancer Epidemiology Research at EGRP: Where to Go From Here?
Deborah Winn,
Ph.D.
Acting Associate Director, Epidemiology and Genetics Research Program
National Cancer Institute |
| 4:00 PM |
ADJOURN |
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