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When Someone You Love Has Advanced Cancer: Support for Caregivers
    Posted: 11/10/2005



Purpose






Overview






Helping Your Loved One During Advanced Cancer






Working with the Health Care Team






Getting Support






Life Planning






Talking with Family and Friends






Caring for Yourself






Reflection






Caregiver's Bill of Rights






Personal Affairs Worksheet






Signs That Death Is Near






Resources






For More Information



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National Cancer Institute
Provides current information on cancer prevention, screening, diagnosis, treatment, genetics, and supportive care. Lists clinical trials and specific cancer topics in NCI's Physician Data Query (PDQ®) database.

Web Site:www.cancer.gov

Cancer Information Service
Answers questions about cancer, clinical trials, and cancer-related services and helps users find information on the NCI Web site. Provides NCI printed materials.

Phone:1-800-4-CANCER (1-800-422-6237)
TTY:1-800-332-8615
Web Site:www.cancer.gov/cis
Chat online:Click on "LiveHelp."

Administration on Aging
Provides information, assistance, individual counseling, organization of support groups, caregiver training, respite care, and supplemental services.

Phone:1-202-619-0724
TTY:1-800-877-8339 (Federal Relay Serivce) or 1-202-585-1840
Web Site:www.aoa.gov

Centers for Medicare and Medicaid Services
Provides information for consumers about patient rights, prescription drugs, and health insurance issues, including Medicare and Medicaid.

Phone:1-800-MEDICARE (1-800-633-4227)
Web Site: www.medicare.gov (for Medicare information)
or www.cms.hhs.gov (other information)

Equal Employment Opportunity Commission
Provides fact sheets about job discrimination, protections under the Americans With Disabilities Act, and employer responsibilities. Coordinates investigations of employment discrimination.

Phone:1-800-669-4000
TTY:1-800-669-6820
Web Site:www.eeoc.gov

National Association of Area Agencies on Aging
Eldercare Locator

The Eldercare Locator is a nationwide directory assistance service designed to help older persons and caregivers find local resources for support. Areas of support include transportation, meals, home care, housing alternatives, legal issues, and social activities.

Phone:1-800-677-1116
Web Site:www.eldercare.gov

U.S. Department of Labor
Office of Disability Employment Policy

Provides fact sheets on a variety of disability issues, including discrimination, workplace accommodation, and legal rights.

Phone:1-866-633-7365
TTY:1-877-889-5627
Web Site:www.dol.gov/odep

Private Organizations

Aging With Dignity
Provides information and materials regarding advance directives. You can order the document Five Wishes, which states your end of life decisions for your health care team, and friends and family members.

Toll-Free:1-888-5WISHES (1-888-594-7437)
Visit:www.agingwithdignity.org

American Cancer Society
National Cancer Information Center

Available to answer questions 24 hours a day, 7 days a week.

Phone:1-800-ACS-2345 (1-800-227-2345)
Web Site:www.cancer.org

CancerCare
Offers free support, information, financial assistance, and practical help to people with cancer and their loved ones.

Phone:1-800-813-HOPE (1-800-813-4673)
Web Site:www.cancercare.org

Family Caregiver Alliance
Family Caregiver Alliance addresses the needs of families and friends who provide long-term care at home.

Phone:1-800-445-8106
Web Site:www.caregiver.org

Gilda's Club, Inc.
Gilda's Club provides social and emotional support for cancer patients and their families and friends.

Phone:1-888-GILDA-4-U (1-888-445-3248)
Web Site:www.gildasclub.org

Hospice Foundation of America
Provides programs and materials on hospice care, caregiving, grief, and end of life. They also provide a hospice locator service, and links to other organizations and resources.

Phone:1-800-854-3402
Visit:www.hospicefoundation.org

NeedyMeds
The NeedyMeds Web site lists medicine assistance programs available from drug companies.

Web Site:www.needymeds.com
NOTE:Usually, patients cannot apply directly to these programs. Ask a doctor, nurse, or social worker to contact them on behalf of your loved one.

National Coalition for Cancer Survivorship
Provides information on cancer support, employment, financial and legal issues, advocacy, and related issues.

Phone:1-877-NCCS YES (1-877-622-7937)
Web Site:www.canceradvocacy.org

National Family Caregivers Association (NFCA)
NFCA provides information, education, support, public awareness, and advocacy for caregivers.

Phone:1-800-896-3650
Web Site:www.nfcacares.org

National Hospice and Palliative Care Organization
Provides information on hospice care, local hospice programs, state specific advance directives, and locating a local health care provider. They also provide education and materials on palliative and end of life issues, as well as links to other organizations and resources.

Phone:1-800-658-8898
Web Site:www.nhpco.org

Patient Advocate Foundation
Offers education, legal counseling, and referrals concerning managed care, insurance, financial issues, job discrimination, and debt crisis matters.

Phone:1-800-532-5274
Web Site:www.patientadvocate.org

The Well Spouse Foundation
The foundation provides support to wives, husbands, and partners of chronically ill and/or disabled persons.

Phone:1-800-838-0879
Web Site:www.wellspouse.org

The Wellness Community
Provides free psychological and emotional support to cancer patients and their families.

Phone:1-888-793-WELL (1-888-793-9355)
Web Site:www.wellness-community.org
* For a complete list of resources, see the fact sheet, "National Organizations That Offer Services to People With Cancer and Their Families" at www.cancer.gov, search terms "national organizations." Or call 1-800-4-CANCER (1-800-422-6237) to ask for it.

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