In order to determine how myositis patients' illnesses change over time, information is collected from both physicians and patients in a standardized way. Disease activity assesses the manifestations of myositis which are thought to be reversible that result directly from the inflammatory process, whereas disease damage are those persistent changes in anatomy, physiology, pathology or function which result from previously active disease and from complications of therapy or other events. IMACS has developed a consensus on a set of Core Set Domains and Measures for the assessment of disease activity, disease damage and patient-reported outcomes in adult and juvenile myositis patients. They are as follows: Disease Activity Core Set Measures
Disease Damage Core Set Measures
Patient Reported Outcomes
Reference for Consensus of Core Set Domains and Measures for the assessment of disease activity, disease damage and patient-reported outcomes in adult and juvenile myositis patients
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Preliminary Definitions of Improvement
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