First Expert Panel Meeting, October 21, 2005

National Twin Registry

Expert Panel Members

Charge To Expert Panel  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Charge-to-ExpertPanel.pdf)   (12KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Charge-to-ExpertPanel.doc)   (25KB)]

• Chairs:

  Linda Corey, Ph.D.  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Corey-Bio.pdf)   (12KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Corey-Bio.doc)   (25KB)]
  Virginia Commonwealth University

  corey@mail2.vcu.edu

  
  

  E. Lenn Murrelle, Ph.D.  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Murrelle-Bio.pdf)   (12KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Murrelle-Bio.doc)   (30KB)]
  Philip Morris USA / Virginia Commonwealth University

  lamurrelle@mail2.vcu.edu

  
  

• Twin Registry Experts:

  Jack Goldberg, Ph.D.  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Goldberg-Bio.pdf)   (18KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Goldberg-Bio.doc)   (26KB)]
  University of Washington

  goldie1@u.washington.edu

  
  

  Jennifer Harris  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Harris-Bio.pdf)   (12KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Harris-Bio.doc)   (30KB)]
  Norwegian Institute of Public Health and National Institute on Aging, NIH

  harrisje@mail.nih.gov

  
  

  William Page, Ph.D.  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Page-Bio.pdf)   (12KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Page-Bio.doc)   (30KB)]
  Institute of Medicine, National Academy of Sciences

  wpage@nas.edu

  
  

  Andrew Heath  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Heath-Bio.pdf)   (12KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Heath-Bio.doc)   (30KB)]
  Washington University in St. Louis

  
  

  Matt McGue  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/McGue-Bio.pdf)   (12KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/McGue-Bio.doc)   (30KB)]
  University of Minnesota

  mmcgue@tfs.psych.umn.edu

  
  

  Lon Cardon, Ph.D.  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Cardon-Bio.pdf)   (12KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Cardon-Bio.doc)   (30KB)]
  University of Oxford

  lon.cardon@well.ox.ac.uk

  
  

• Disease Experts:

  Stephen Rich, Ph.D.  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Rich-Bio.pdf)   (12KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Rich-Bio.doc)   (30KB)] - Type 1 Diabetes Mellitus
  Wake Forest University

  srich@wfubmc.edu

  
  

  John Harley, M.D., Ph.D.  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Harley-Bio.pdf)   (12KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Harley-Bio.doc)   (30KB)] - Systemic Lupus Erythematosus
  Oklahoma Health Science Center

  john-harley@omrf.ouhsc.edu

  
  

  A. Dessa Sadovnick, Ph.D.  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Sadovnick-Bio.pdf)   (12KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Sadovnick-Bio.doc)   (30KB)] - Multiple Sclerosis
  University of British Columbia

  sadovnik@infinet.net

  
  

  Mary Anne Dooley, M.D., M.P.H.  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Dooley-Bio.pdf)   (12KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Dooley-Bio.doc)   (30KB)] - System Lupus Erythematosus
  University of North Carolina

  mary_dooley@med.unc.edu

  
  

• Ethics / Legal Expert:

  Paul Lombardo, JD, Ph.D.  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Lombardo-Bio.pdf)   (20KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Lombardo-Bio.doc)   (30KB)]
  University of Virginia

  pal8g@hscmail.mcc.virginia.edu

  
  

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Agenda  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/TR-ExpertPanelAgenda.pdf)   (12KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/TR-ExpertPanelAgenda.doc)   (33KB)]

Presentations

• Opening remarks - Opening remarks and overview of the study goals  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/OpeningremarksChulada.pdf)   (169KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/OpeningremarksChulada.ppt)   (1.5MB)]
• Twinning - Background information on twin births and twin studies  [ .pdf (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Twinning_Corey.pdf)   (86KB), .doc (http://www.niehs.nih.govnews/events/pastmtg/2005/twin/docs/Twinning_Corey.ppt)   (71KB)]
• Part 1 - Projections of twin population in the US
• Part 2 - Projections of twin population with type 1 diabetes, MS and SLE
• Part 3 - Brief overview of the existing twin registries and survey of the registry directors
• Part 4 - Brief overview of the proposed survey of the disease registry directors
• ELSI - Ethical, Legal and Social Issues to be considered

Meeting Pictures (Click on thumbnail to view full size photos)

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