the Creutzfeldt-Jakob Disease Foundation
Website. This site contains information
compiled with the needs of CJD patients
and their families in mind. The CJD
Foundation consists of members who want
to support you through this experience.
Support is a key
ingredient in coping with CJD. Support
from those who have had similar
experiences can be more helpful than any
written information. The primary goal of
the CJD Foundation is to be part of your
The CJD Foundation is
also concerned about the complexity of
issues surrounding this brain disease.
Our philosophy is to be proactive by
establishing collaborations and
linkages, communicating with family
members, researchers, physicians and
political representatives and informing
the broader community about CJD.
Our HelpLine is available. Calls are
answered during work hours Monday-Friday
9:00 am-5:00 pm Eastern Time. Calls
concerning patient issues that are
received after business hours are
returned in the evenings and on
Please call us at 1.800.659.1991
and ask for Florence or Marisa.