Cancer Control Research
5R03CA072666-02
Grant, Marcia L.
QUALITY OF LIFE FOR CANCER PATIENTS WITH OSTOMIES
AbstractThe focus of this application is on cancer control research related to
rehabilitation and quality of life (QOL) in patients with ostomies. The
specific aims of this investigations are (1) to describe QOL issues through
in-depth interviews with cancer patients who have ostomies. (2) to adapt
and evaluate the City of hope QOL Index to reflect concerns expressed in
interviews with patients, (3) to describe QOL using the adapted QOL
instrument via a mailed survey to 150 cancer patients with an ostomy, (4)
to conduct psychometric analysis of the QOL instrument used for the mailed
survey. (5) to identify immediate and long-term educational and
rehabilitation needs of cancer patients with ostomies, and (6) to generate
hypotheses for intervention studies aimed at improving QOL for cancer
patients with ostomies. A four dimensional model including psychological
well being, physical well being, social well being, and spiritual well
being forms the basis for the investigators' definition of QOL. The sample
will consist of 190 patients with ostomies. The study includes a
descriptive phase (40 patients) and an instrument testing phase (150
patients). Phase I will involve in-depth interviews of 40 patients and 4
focus groups. Patients will be stratified by type of ostomy (bowel
diversion versus urinary diversion) and time since surgery (lessor than 2
months, greater than 2 months to 12 months, greater than 12 months to 24
months, and more than 24 months). The interviews will follow qualitative
methodology with content analysis to extract themes regarding the four
domains of QOL and various rehabilitative and teaching needs. Data from
the 40 patient and 4 focus groups will be used to refine the QOL
instruments for Phase II. In Phase II, the 150 patients with ostomies
stratified as above will be surveyed with the revised instrument. Analysis
will include the psychometric properties of the revised instrument and
identification of hypotheses for future studies aimed at improving QOL in
this population of cancer patients. The investigative team involves
interdisciplinary representation from Nursing Research, Enterostomal
Therapy, Nursing, General Oncologic Surgery, and Urologic Oncology. This
study will add to our understanding of QOL and rehabilitation issues in
cancer patients with ostomies.
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