United States Renal Data System (USRDS) is a national data
that collects, analyzes, and distributes information about end-stage
renal disease (ESRD) in the United States. The USRDS is funded
directly by the National Institute of Diabetes and Digestive
and Kidney Diseases (NIDDK) in conjunction with the Centers
& Medicaid Services (CMS). USRDS staff collaborates
with members of CMS, the United Network for Organ Sharing (UNOS),
and the ESRD networks, sharing datasets and actively working
to improve the accuracy of ESRD patient information.
· Administrative oversight of the USRDS
The Coordinating Center (CC) of the USRDS is governed by a contract (#HHSN267200715002C) between the National Institutes of Health (NIH) and the Minneapolis Medical Research Foundation (MMRF). The USRDS also includes three Special Study Centers (SSCs): the Nutrition SSC by Kirsten Johansen and George Kaysen at the University of California at San Francisco, the Rehabilitation and Quality of Life SSC by Nancy Kutner and Kirsten Johansen at Emory University, and the Cardiovascular SSC by Charles Herzog and Blanche Chavers at the University of Minnesota and the Minneapolis
Medical Research Foundation.
with producing the Annual Data Report on End-Stage Renal Disease
in the United States, the USRDS also produces the Researcher’s
Guide, fulfills data requests, provides standard analysis files
and specialized datasets to researchers, and presents the results
of its research at national conferences and in peer-reviewed journals.
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