Research

Funding Opportunities From NORD Member Organizations

NORD's member organizations are invited to post information on this page about their research funding opportunities. Researchers who have questions about programs listed below should contact the organization sponsoring the RFP.

NORD member organizations may submit copy for this page to webmaster@rarediseases.org. All entries should be submitted in the format used below.

SAMPLE Member Organization RFP:

Caring FOR Carcinoid Foundation
One Kendall Square
PMB 180
Cambridge, MA 02139
Phone: 857-222-5492
E-mail: research@caringforcarcinoid.org
Web: www.caringforcarcinoid.org

Disease name: Carcinoid
Amount: up to $X,XXX per year
Length of study: X years
Letter of Intent deadline: Month Date, Year, Time
Application deadline: Month Date, Year, Time
Guidelines and application: www.caringforcarcinoid.org/research/grantsavailable.asp

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National Tay-Sachs & Allied Diseases Association
2001 Beacon St. – Suite 204
Boston, MA 02135
Phone: 617-277-4463
E-mail: skahn@ntsad.org
Web site: www.ntsad.org

Disease names: Lysosomal storage disorders affecting CNS and pediatric leukodystrophies
Amount: $35,000
Length of study: 1 year
Application deadline: February 9, 2009
Guidelines and application: www.ntsad.org/events/research/RFP_2008_09_Guidelines.doc

Aplastic Anemia & MDS International Foundation
The Aplastic Anemia & MDS International Foundation (AA&MDSIF) offers research grants to advance the understanding and treatment of bone marrow failure diseases, including aplastic anemia, myelodysplastic syndromes (MDS), and paroxysmal nocturnal hemoglobinuria (PNH). New and established investigators are invited to apply for two-year grants of $30,000 per year to test new ideas and to explore other research leads. Second-year funding is contingent upon first-year progress. houk@aamds.org or 100 Park Ave., Ste. 108, Rockville, MD 20850 phone:(301)279-7202.
Web site:  www.aamds.org
Guidelines & Application:  www.aamds.org/2009grants
Application Deadline:  February 27, 2009

Fellowship, NIH, Nephropathic Cystinosis
William A. Gahl, MD, PhD, of the National Human Genome Research Institute, would like to train an expert in nephropathic cystinosis at the National Institutes of Health. Optimally, the fellowship training would follow a renal fellowship, last approximately 3 years, and provide a springboard to an academic career in cystinosis and related fields. However, geneticists may also be interested in this career track. Dr. Gahl has cared for 250-300 individuals with cystinosis and has more than 100 active patients. There exists ample opportunity to perform clinical and basic research into cystinosis, publish in peer-reviewed journals, and access the vast resources of the NIH Clinical Center. This is not a service position; it is intended to provide the next generation with an authority in the disease. The successful candidate will work primarily on cystinosis, but may also perform research into related disorders with renal manifestations. There may be an opportunity to participate in an ABMG-approved program leading to certification in Biochemical Genetics. The Cystinosis Research Network will support this fellowship through an NHGRI Gift Fund. To discuss this further, please contact Dr. Gahl at bgahl@helix.nih.gov or 10 Center Drive, Building 10, Room 10C-103, NHGRI, NIH, Bethesda, Maryland 20892-1851 (phone 301-402-2739). The Department of Health and Human Services and the National Institutes of Health are equal opportunity employers.

Cicatricial Alopecia Research Foundation
P.O. Box 64158
Los Angeles, CA 90064
Phone: (310)475-2419
E-mail: research@carfintl.org
Web site: www.carfintl.org

Disease name: Cicatricial Alopecia
Amount: $5000 up to $20,000
Length of study: for up to 2 years MAX
Letter of Intent deadline: Rolling applications accepted
Application deadline: Rolling applications accepted
Guidelines and application: www.carfintl.org/grants.html

American Brain Tumor Association
The ABTA is now accepting applications for its 2009 research award program. The annual program offers two-year $80,000 basic research fellowships and one-year $75,000 translational grants to young, exceptional brain tumor researchers in the U.S. and Canada.

The Basic Research Fellowships provide salary support to post-doctorate scientists conducting basic brain tumor research.  Medical doctors (MDs) within two years of completing a residency or within five years of post-residency training and PhD researchers with no more than five years of post-doctoral laboratory experience are eligible.

Translational Grants fund pre-clinical, non-human brain tumor research beyond the molecular level.  Qualified candidates are MDs within five years of post-residency training who have attained junior faculty to asistant professor status and PhDs with three to five years of post-doctoral laboratory experience.

Information: www.abta.org/index.cfm?contentid=38.
Deadline: January 7, 2009
Questions: researchinfo@abta.org

To view NORD's RFPs, click here.