In establishing The Cancer Genome Atlas (TCGA) Pilot Project, the National Cancer Institute (NCI) and National Human Genome Research Institute (NHGRI) developed a collaborative approach and process to ensure all ethical, legal, and policy issues are adequately addressed.
Ethics, Law, and Policy:
With the formation of the Ethics, Law, and Policy Group, issues arising during the implementation of TCGA are identified and considered, especially as data is continually generated by the Pilot Project.
Click here to learn more about TCGA Ethics, Law, and Policy Group; its membership, staff members, and purpose.
TCGA Policies and Guidelines:
NCI and NHGRI staff sought input from subject matter experts in developing TCGA policies and guidelines to help govern the way investigators implement tissue and clinical data collections, access data, and publish data for genomic studies.
To learn more about TCGA policies and guidelines and informed consent, visit Policies & Guidelines.