What is VHL?
Von Hippel Lindau disease (VHL) is an inherited mutation of the VHL gene, which causes tumors to form in areas of the body that contain large numbers of blood vessels. One in every 32,000 children born in the U. S. is affected by VHL. Read More.

VHL Symptoms
Symptoms can appear at any age. Eye manifestations can occur before age five and other symptoms soon thereafter. However, age of onset and symptoms can vary widely among individuals and families. Common early symptoms may include:

Treatment at M. D. Anderson
VHL patients are treated in the VHL Clinical Center. Call (713) 745-7391 for information.

Screening Guidelines - careful screening can mean early detection of potentially serious manifestations. Testing for at-risk individuals may include physical exams, blood tests and scans. The frequency and nature of tests performed depends on the age, family history and medical history of the patient.

Treatment - although VHL cannot be "cured," proactive treatment can prevent the disease from progressing.

Genetic Counseling - VHL is a genetic condition, caused by an alteration (or mutation) in the VHL gene. Most, but not all, people who have VHL inherited the mutated gene from one of their parents.

VHL Specialists - M. D. Anderson is a world leader in cutting-edge patient care. We have experts in the key specialties needed to care for patients and families living with VHL.

Education & Support

Adrenal

Brain and Spinal

Kidney

Ocular

Pancreatic

VHL Family Alliance

National Institute of Neurological Disorders and Stroke

Yahoo Groups Message Board for VHL