NCI Biospecimen Best Practices Forum - Bethesda
Natcher Conference CenterNational Institutes of Health
Bethesda, MD
June 18, 2007
Agenda
|
Bethesda Forum Agenda ![]() |
Forum Summary
|
Please click on the link below to download a summary of the forum proceedings.![]() |
Webcast
|
The entire Bethesda Forum was recorded and can be viewed via the link below. |
Presentations
|
|
8:30 a.m. - 8:45 a.m. | Welcome and Opening Remarks Carolyn C. Compton, M.D., Ph.D. Director, Office of Biorepositories and Biospecimen Research (OBBR) National Cancer Institute |
Part 1: Overview and Discussion of NCI Best Practices | |
8:45 a.m. - 9:05 a.m. | NCI Best Practices for Biospecimen Resources![]() Rationale and Development Carolyn C. Compton, M.D., Ph.D. |
9:05 a.m. - 9:25 a.m. | Overview of Technical and Operational Best Practices![]() Mark Sobel, M.D., Ph.D. Executive Officer American Society for Investigative Pathology |
9:25 a.m. - 9:35 a.m. | Audience Questions and Comments |
9:35 a.m. - 9:55 a.m. | Overview of Ethical, Legal, and Policy Best Practices![]() Karen Thiel, Ph.D., J.D. Associate Patton Boggs, LLP |
9:55 a.m. - 10:05 a.m. | Audience Questions and Comments |
10:05 a.m. - 10:25 a.m. | The Importance of Best Practices to Patients and Advocates![]() Paula Kim President and Chief Executive Officer Translating Research Across Communities (TRAC) |
10:25 a.m. - 10:35 a.m. | Audience Questions and Comments |
10:35 a.m. - 11 a.m. | Break |
Part 2: Bioinformatics and Evidence-Based Best Practices for Biospecimen Resources | |
11 a.m. - 11:20 a.m. | Tools for Tracking and Accessing High-Quality Biospecimens![]() caBIG™, caTissue, and Achieving Silver-Level Compatibility Kenneth H. Buetow, Ph.D. Director NCI Center for Bioinformatics |
11:20 a.m. - 11:30 a.m. | Audience Questions and Comments |
11:30 a.m. - 11:40 a.m. | Demonstration of caTissue ![]() Ian Fore, D. Phil. Associate Director for Biospecimen and Pathology Informatics NCI Center for Bioinformatics |
11:40 a.m. - 11:50 a.m. | Audience Questions and Comments |
11:50 a.m. - 12:10 p.m. | Updating the NCI Best Practices for Biospecimen Resources: Toward Evidence-Based Best Practices![]() Importance of Stakeholder Participation in Updating the NCI Best Practices for Biospecimen Resources Carolyn C. Compton, M.D., Ph.D. |
12:10 p.m. - 12:20 p.m. | Audience Questions and Comments |
12:20 p.m. - 12:30 p.m. | Closing Remarks Carolyn C. Compton, M.D., Ph.D. |
12:30 p.m. | Adjournment |
General Background Materials
|
NCI Best Practices for Biospecimen Resources |
NCI Best Practices for Biospecimen Resources ![]() The NCI Best Practices for Biospecimen Resources outlines the operational, technical, ethical, legal, and policy best practices for NCI-supported biospecimen resources. |
Informatics |
Implementing the NCI Best Practices for Biospecimen Resources : ![]() Bioinformatics and caBIG™-An Overview Directed at scientists, consumer advocates, and biospecimen resource directors, this fact sheet prepared by the NCI Center for Biomedical Informatics and the NCI OBBR highlights the value and need for caBIG™ and is useful to stakeholder groups interested in data handling and sharing for biospecimen resources. |
Implementing the NCI Best Practices for Biospecimen Resources : ![]() Bioinformatics and caBIG™-Next Steps This document is designed for biospecimen resource stakeholders who have been introduced to the caBIG™ initiative and are evaluating options and next steps for adopting caBIG™ or becoming caBIG™ compatible. It is a tool to help biospecimen resources make informed decisions about informatics options that would align them with the NCI Best Practices. |
Materials for Advocates and the General Public |
Biospecimen Basics![]() This informational publication issued by the NCI OBBR is designed to increase awareness and understanding among advocates and the interested public of the importance and role of biospecimens in cancer research. It outlines the need for and purpose of best practices for biospecimen resources. Providing Your Tissue for Research: What You Need to Know ![]() This National Cancer Institute brochure will aid patients in making informed decisions about donating biospecimens for research. Research Advocacy Network publications:
|
Personalized Health Care |
Personalized Health Care: Opportunities, Pathways, Resources Issued in September 2007, this is the first report by the U.S. Department of Health and Human Services on its Initiative on Personalized Health Care. This report delineates crucial areas of consensus upon which work must be focused to achieve personalized health care. |