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MISSION:  PXE International initiates, funds and conducts research; provides support for individuals and families affected by pseudoxanthoma elasticum; and provides resources for healthcare professionals.


Help tame pseudoxanthoma elasticum!

Donate to PXE International here.    DONATE

Track the progress of your Annual Appeal donations.   ANNUAL APPEAL

 
March/April Webinar:  General Overview of PXE


General Overview of PXE, Parts 1 and 2 
Presenter: Dr. Lionel Bercovitch, Medical Advisor, PXE International
Part 1: Thursday, March 26, 2009, 7:30 PM, EST  Register 

Join us for the two-part series, General Overview of PXE. Dr. Lionel Bercovitch will describe the ways PXE affects the body. He will consider the skin, eyes, gastrointestinal and cardiovascular systems. He will also describe some of the lesser known aspects of PXE. There will be ample time for questions.

If you have a phone or a computer or both, you can participate! 
Find out how:  Webinar FAQ 
View upcoming webinars:  Schedule

 
 
New MemberGram - Fall 2008   PXE Vision: By and For PXEers

MemberGram Fall 2008

Download PDF

 

 

 

Pat Manson

A PXEer's Success Story  10-08
Two Paths                             12-07
Own Your Disease              10-07
by Pat Manson

Past Columns

 
Vision Information  

Go Clinical Trials Comparing Avastin® and Lucentis®

Go Experiencing a Retinal Bleed?

Go Finally! Analysis of the Use of Avastin for Retinal Bleeding of PXE

Go

 Avastin News - Genentech agrees to allow ophthalmologists access to Avastin for intraocular injection in the treatment of potentially blinding diseases [12-20-2007]

Go One Woman's Journey

Go Amsler Grid Vision Check

 
 
What is PXE?


Pseudoxanthoma elasticum (PXE) is an inherited disorder that causes select elastic tissue in the body to become mineralized.  Learn more about PXE signs, effects and medical care in the PXE General Bulletin.

 

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