Introduction ~ September 2007
- Finalize ARWG charge
- Membership formation
Phase I ~ March 2008
- Analyze background information
- Develop early findings and ideal model
Phase II ~ Early 2009
- Preliminary analysis of where and how advocates are involved at NCI and across NCI funded activities
- Develop initiatives to address barriers and missed opportunities
Phase III
- Develop implementation plans for each initiative ~ March 2009
- Write final report ~ October 2009
SPECIAL PUBLIC COMMENT TELECONFERENCE & WEBINAR Advocates in Research Working Group Public Comment Wednesday, November 5, 2008 from 3:00 - 4:30 p.m. (ET)
PowerPoint Slide Presentation Text-only Version
NCI wants to hear from all segments of the advocacy community about the best way to involve advocates in research. This is an opportunity to provide public comment on the work of the Advocates in Research Working Group (ARWG). The NCI Director asked the ARWG to provide recommendations on the most effective ways to consistently involve advocates in NCI activities.
A replay of the call was available for 30 days after the call. Public comments or questions are welcome at any time at nciadvocacywg@mail.nih.gov.
Written input will be accepted and considered throughout the process. Please address your written statement to:
James Hadley Advocacy Relations Manager Office of Advocacy Relations, NCI Building 31, Room 10A28 31 Center Drive, MSC 2580 Bethesda, MD 20892-2580
or in an email to James Hadley at nciadvocacywg@mail.nih.gov. Notice will also be given on this website of public teleconferences where input can be provided before the final report is submitted.
Working Group meeting summaries will be posted here after they are finalized. Click on the meeting date(s) below to view the summary of the meeting you are interested in.
March 5, 2008
January 30, 2008
December 12, 2007
November 11, 2007
Members represent various interests in the research advocacy community. Members include advocates who work with Cancer Centers, advocates who work in SPORE grants, research advocates in the community, extramural investigators, and NCI program staff.
Members were appointed by NCI leadership. NCI encourages all advocates to funnel any input they may have to members.
Current Working Group Members
1.
|
Ms. Kelly Cotter
|
Working Group Chair, DCLG Member
|
2.
|
Col. (Ret.) James Williams, Jr.
|
Advocate Member at Large
|
3.
|
Ms. Paula Kim
|
Biorepositories and Biospecimen Research Program Advocate
|
4.
|
Ms. Peggy Devine
|
Consumer Advocates in Research and Related Activities Member
|
5.
|
Dr. Richard Gorlick
|
Consumer Advocates in Research and Related Activities Member
|
6.
|
Ms. Vernal Branch
|
Advocate Member at Large
|
7.
|
Ms. Jane Reese-Coulbourne
|
Advocate Member at Large
|
8.
|
Ms. Nancy Roach
|
Clinical Trials Cooperative Group Advocate
|
9.
|
Ms. Francine Huckaby
|
NCI-Designated Cancer Centers Advocate
|
10.
|
Dr. Paul A. Bunn, Jr.
|
University of Colorado at Denver and Health Sciences Center
|
11.
|
Dr. H. Kim Lyerly
|
Duke University Cancer Center
|
12.
|
Ms. Jane Condon
|
Specialized Programs of Research Excellence Program Advocate
|
13.
|
Ms. Deborah Collyar
|
Specialized Programs of Research Excellence Program Advocate
|
14.
|
Ms. Cindy Geoghegan
|
Specialized Programs of Research Excellence Program Advocate
|
15.
|
Dr. John Minna
|
Chair SPORE Executive Committee, University of Texas Southwestern Medical Center
|
16.
|
Dr. C. Kent Osborne
|
SPORE Principal Investigator, Baylor Medical School Cancer Center
|
17.
|
Dr. L. Michelle Bennett
|
Center for Cancer Research, NCI Program Staff
|
18.
|
Dr. Jane Daye
|
Center to Reduce Cancer Health Disparities, NCI Program Staff
|
19.
|
Ms. Jean Lynn
|
Coordinating Center for Clinical Trials, NCI Program Staff
|
20.
|
Ms. Erin Baney
|
Division of Cancer Biology, NCI Program Staff
|
21.
|
Dr. R. Allan Mufson
|
Division of Cancer Biology, NCI Program Staff
|
22.
|
Dr. Brenda Edwards
|
Division of Cancer Control and Population Sciences, NCI Program Staff
|
23.
|
Dr. Judith Swan*
|
Division of Cancer Control and Population Sciences, NCI Program Staff
|
24.
|
Dr. Sudhir Srivastava
|
Division of Cancer Prevention, NCI Program Staff
|
25.
|
Ms. Andrea Denicoff
|
Division of Cancer Treatment and Diagnosis, NCI Program Staff
|
26.
|
Dr. Ted Trimble*
|
Division of Cancer Treatment and Diagnosis, NCI Program Staff
|
27.
|
Dr. Shamala Srinivas
|
Division of Extramural Activities, NCI Program Staff
|
28.
|
Dr. Jennifer Loud
|
Division of Epidemiology and Genetics, NCI Program Staff
|
29.
|
Ms. Shannon Bell
|
Office of Advocacy Relations, NCI Program Staff
|
30.
|
Mr. James Hadley
|
Office of Advocacy Relations, NCI Program Staff
|
31.
|
Dr. Kimberly Myers
|
Office of Biorepositories and Biospecimen Research, NCI Program Staff
|
32.
|
Dr. Julia Rowland
|
Office of Cancer Survivorship, NCI Program Staff
|
33.
|
Dr. Nancy Breen*
|
Applied Research Program, Division of Cancer Control and Population Sciences, NCI Program Staff
|
34.
|
Ms. Nina Ghanem
|
Office of Communications and Education, NCI Program Staff
|
35.
|
Dr. Jeff White
|
Office of Complementary and Alternative Medicine, NCI Program Staff
|
36.
|
Ms. Susan Erickson
|
Office of Government and Congressional Relations, NCI Program Staff
|
37.
|
Ms. Jeanette Contreras*
|
Office of Government and Congressional Relations, NCI Program Staff
|
38.
|
Dr. Margaret Ames
|
Office of Science Planning and Assessment, NCI Program Staff
|
39.
|
Dr. Lisa Stevens*
|
Office of Science Planning and Assessment, NCI Program Staff
|
40.
|
Ms. Karen Creamer
|
Coalition of Cancer Cooperative Groups, Partner Organization
|
41.
|
Ms. Margo Michaels
|
Education Network to Advance Cancer Clinical Trials, Partner Organization
|
42.
|
Dr. Syed Ahmed
|
National Institutes of Health Council of Public Representatives, Partner Organization
|
43.
|
Ms. Ann-Gel Palermo*
|
National Institutes of Health Council of Public Representatives, Partner Organization
|
* |
Indicates Alternate |
|
Members of the ARWG in Phase I
Ms. Kelly Cotter, ARWG Chair, DCLG member Col. (Ret.) James Williams, Jr., DCLG member Ms. Paula Kim, Biospecimens and Biorepositories program Ms. Peggy Devine, CARRA member Dr. Richard Gorlick, CARRA member Ms. Vernal Branch, Member-at-Large Ms. Nancy Roach, Cooperative Group advocate Ms. Francine Huckaby, Cancer Center advocate Mr. Gerald (Buddy) Leo, Cancer Center advocate Dr. Paul A. Bunn, Jr., Cancer Center Director Dr. H. Kim Lyerly, Cancer Center Director Dr. Kirby I. Bland, SPORE Principal Investigator Ms. Deborah Collyar, SPORE advocate Ms. Cindy Geoghegan, SPORE advocate Ms. Lori Monroe, SPORE advocate Dr. John Minna, SPORE Executive Committee Chair Dr. Shamala Srinivas, NCI Program Staff Dr. Jaye Viner, NCI Program Staff Ms. Shannon Bell, Office of Advocacy Relations Mr. James Hadley, Office of Advocacy Relations
|